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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


After getting almost healed: I feel almost numb when having intercourse. Any suggestions?!

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After getting almost healed: I feel almost numb when having intercourse. Any suggestions?!

Post  Hillelana on Sat Jun 09, 2018 8:18 pm

Hi everybody!

I’ve been trying googling around to see if I could find any information on my issue, but it doesn’t seem quite like it. So I hope that some of you might be able to help me!

I’ve started having muscle pain for 8,5 years ago during intercourse, after I had some severe yeast infection. It took me many years to start solving it, but more than 3 years ago, I started going to different things, and a physiotherapist helped me the most, getting the tense muscle stretched.

The pain has been fading ever since then, somehow, and now I’m done to not having too much direct pain anymore. Some of the muscle in the region are still sore and painful when I touch, but don’t get touched when having sex.
I still have to go very slow, but i can have somewhat pain free sex today.

Now my main problem is that I feel numb when having sex. I remember this great feeling before those 8,5 years ago about having sex, than anything would be a great pleasure.
Now I get annoyed if the man goes on for too long, because the feeling of pleasure for me is low, and I have to be very horny and excited for it to be good sex - and it’s still never as it used to be.
I need most of the time to touch my clitoris, while having intercourse, to transfer that pleasure to my vagina.
Some of the intercourse can be pleasureble, but going just a little too fast (and still very slow), in a wrong position or too deep, it makes me feel numb - if not pain. The numbness is just like the feeling of any other skin getting trusted back and forth. Like to arms rubbing each other.
I talk with my sexologist and she says its very normal, when the body has been protecting itself and shutting down the pain for so many years.
I got a new boyfriend, and I will start looking for new treatment again to get the rest of the pain away.
But I’m still about clueless what to do about the numbness.
Is anybody here on my “stage” and recognize this numbness and have any ideas for me?!?

Thank you!
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Hillelana

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