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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


After getting almost healed: I feel almost numb when having intercourse. Any suggestions?!

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After getting almost healed: I feel almost numb when having intercourse. Any suggestions?!

Post  Hillelana on Sat Jun 09, 2018 8:18 pm

Hi everybody!

I’ve been trying googling around to see if I could find any information on my issue, but it doesn’t seem quite like it. So I hope that some of you might be able to help me!

I’ve started having muscle pain for 8,5 years ago during intercourse, after I had some severe yeast infection. It took me many years to start solving it, but more than 3 years ago, I started going to different things, and a physiotherapist helped me the most, getting the tense muscle stretched.

The pain has been fading ever since then, somehow, and now I’m done to not having too much direct pain anymore. Some of the muscle in the region are still sore and painful when I touch, but don’t get touched when having sex.
I still have to go very slow, but i can have somewhat pain free sex today.

Now my main problem is that I feel numb when having sex. I remember this great feeling before those 8,5 years ago about having sex, than anything would be a great pleasure.
Now I get annoyed if the man goes on for too long, because the feeling of pleasure for me is low, and I have to be very horny and excited for it to be good sex - and it’s still never as it used to be.
I need most of the time to touch my clitoris, while having intercourse, to transfer that pleasure to my vagina.
Some of the intercourse can be pleasureble, but going just a little too fast (and still very slow), in a wrong position or too deep, it makes me feel numb - if not pain. The numbness is just like the feeling of any other skin getting trusted back and forth. Like to arms rubbing each other.
I talk with my sexologist and she says its very normal, when the body has been protecting itself and shutting down the pain for so many years.
I got a new boyfriend, and I will start looking for new treatment again to get the rest of the pain away.
But I’m still about clueless what to do about the numbness.
Is anybody here on my “stage” and recognize this numbness and have any ideas for me?!?

Thank you!
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Hillelana

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