Vulvodynia Support
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» Hope to all my suffering ladies
Weird Reactions to Natural Remedies EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Weird Reactions to Natural Remedies EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Weird Reactions to Natural Remedies EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Weird Reactions to Natural Remedies EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Weird Reactions to Natural Remedies EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Weird Reactions to Natural Remedies EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Weird Reactions to Natural Remedies EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Weird Reactions to Natural Remedies EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Weird Reactions to Natural Remedies EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Weird Reactions to Natural Remedies

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Post  emalita Thu Jul 19, 2018 3:12 pm

If I've learned anything from having a chronic pain condition, it's that my body reacts however the heck it feels like it regardless if anyone has ever heard of such a reaction.

So, I figured I would share some of those reaction with you just to remind everyone that just because your doctor, friends, family, or even this forum say they've never heard of anyone having your type of reaction to a product before that does NOT mean your experience is not true or possible.

1. D-Mannose (natural treatment for most UTIs): This natural treatment caused me horrible bladder pain. I had no idea that the supplement was the cause because I was usually taking it to prevent UTIs. So when the bladder pain started, I had assumed for a very long time that it was a low grade infection, not the treatment itself.

2. Desert Harvest Aloe Vera Oral Capsules (natural treatment for bladder pain/Interstitial Cystitis): This supplement causes my vaginal discharge to be thinner and more runny. Yep, it changes the consistency of my vaginal discharge. No, I do not have an infection like BV, and my pH is acidic. I even tested this theory by weaning myself off of the pills slowly, and after about 2 or 3 days of taking no pills my discharge was no longer as thin. I waited about 5 days and started taking the pills again. Within a day or 2, my discharge was thin again. As of right now this does not concern me, but who knows what the future will hold.

3. Coconut Oil & Coconut Water: Coconut oil when used on my vulva caused whitehead pimples and one deep almost cyst-like zit on my inner labia. My dermatologist said she never recommends coconut oil because it causes a lot of negative reactions in her patients. She recommended hempseed oil, which never caused these pimples for me. Coconut water caused my whole face to breakout in a zitty rash that took months to heal. So clearly coconut products aren't as gentle as everyone is lead to believe.


Hope some of you find this a little helpful  Very Happy

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Weird Reactions to Natural Remedies Empty I agree!

Post  Gaby Thu Jul 19, 2018 3:25 pm

Hi Emalita!

Thanks for sharing!! I read that taking magnesium could help with chronic pain so i went directly to the drugstore to get me the pills. After 3 days taking them i got an awful cistitis. In the beginning i didnt know that was the cause but i stopped them because i was on treatment for the cistitis, when my UTI was finally gone i started taking them again and i noticed pain on my bladder again so i stopped them.

Unfortunately what works for one does not work for the other.... so we need to keep on the trial and error path. Sad .

Good luck everyone!

Gaby

Posts : 8
Join date : 2018-07-10

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Post  emalita Thu Jul 19, 2018 4:38 pm

Oh, and another one that I thought of was Chamomile tea!

It causes me to have hard stools and constipation. I read that some people use it to calm diarrhea, so I guess it makes sense. I was only steeping it for less than a minute, too, because I don't like the taste when steeped for the time recommended.

This one really makes me sad because I was using tea to try to relax at night, but not needing to strain to have a bowel movement is far more important.

I was adding a good amount of pure maple syrup as a sweetener. So it is possible that the syrup has an impact on things too, but my tea is not tea without pure maple syrup Wink

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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