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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Weird Reactions to Natural Remedies

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Weird Reactions to Natural Remedies

Post  emalita on Thu Jul 19, 2018 3:12 pm

If I've learned anything from having a chronic pain condition, it's that my body reacts however the heck it feels like it regardless if anyone has ever heard of such a reaction.

So, I figured I would share some of those reaction with you just to remind everyone that just because your doctor, friends, family, or even this forum say they've never heard of anyone having your type of reaction to a product before that does NOT mean your experience is not true or possible.

1. D-Mannose (natural treatment for most UTIs): This natural treatment caused me horrible bladder pain. I had no idea that the supplement was the cause because I was usually taking it to prevent UTIs. So when the bladder pain started, I had assumed for a very long time that it was a low grade infection, not the treatment itself.

2. Desert Harvest Aloe Vera Oral Capsules (natural treatment for bladder pain/Interstitial Cystitis): This supplement causes my vaginal discharge to be thinner and more runny. Yep, it changes the consistency of my vaginal discharge. No, I do not have an infection like BV, and my pH is acidic. I even tested this theory by weaning myself off of the pills slowly, and after about 2 or 3 days of taking no pills my discharge was no longer as thin. I waited about 5 days and started taking the pills again. Within a day or 2, my discharge was thin again. As of right now this does not concern me, but who knows what the future will hold.

3. Coconut Oil & Coconut Water: Coconut oil when used on my vulva caused whitehead pimples and one deep almost cyst-like zit on my inner labia. My dermatologist said she never recommends coconut oil because it causes a lot of negative reactions in her patients. She recommended hempseed oil, which never caused these pimples for me. Coconut water caused my whole face to breakout in a zitty rash that took months to heal. So clearly coconut products aren't as gentle as everyone is lead to believe.

Hope some of you find this a little helpful  Very Happy


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I agree!

Post  Gaby on Thu Jul 19, 2018 3:25 pm

Hi Emalita!

Thanks for sharing!! I read that taking magnesium could help with chronic pain so i went directly to the drugstore to get me the pills. After 3 days taking them i got an awful cistitis. In the beginning i didnt know that was the cause but i stopped them because i was on treatment for the cistitis, when my UTI was finally gone i started taking them again and i noticed pain on my bladder again so i stopped them.

Unfortunately what works for one does not work for the other.... so we need to keep on the trial and error path. Sad .

Good luck everyone!


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Re: Weird Reactions to Natural Remedies

Post  emalita on Thu Jul 19, 2018 4:38 pm

Oh, and another one that I thought of was Chamomile tea!

It causes me to have hard stools and constipation. I read that some people use it to calm diarrhea, so I guess it makes sense. I was only steeping it for less than a minute, too, because I don't like the taste when steeped for the time recommended.

This one really makes me sad because I was using tea to try to relax at night, but not needing to strain to have a bowel movement is far more important.

I was adding a good amount of pure maple syrup as a sweetener. So it is possible that the syrup has an impact on things too, but my tea is not tea without pure maple syrup Wink


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