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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Weird Reactions to Natural Remedies

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Weird Reactions to Natural Remedies

Post  emalita on Thu Jul 19, 2018 3:12 pm

If I've learned anything from having a chronic pain condition, it's that my body reacts however the heck it feels like it regardless if anyone has ever heard of such a reaction.

So, I figured I would share some of those reaction with you just to remind everyone that just because your doctor, friends, family, or even this forum say they've never heard of anyone having your type of reaction to a product before that does NOT mean your experience is not true or possible.

1. D-Mannose (natural treatment for most UTIs): This natural treatment caused me horrible bladder pain. I had no idea that the supplement was the cause because I was usually taking it to prevent UTIs. So when the bladder pain started, I had assumed for a very long time that it was a low grade infection, not the treatment itself.

2. Desert Harvest Aloe Vera Oral Capsules (natural treatment for bladder pain/Interstitial Cystitis): This supplement causes my vaginal discharge to be thinner and more runny. Yep, it changes the consistency of my vaginal discharge. No, I do not have an infection like BV, and my pH is acidic. I even tested this theory by weaning myself off of the pills slowly, and after about 2 or 3 days of taking no pills my discharge was no longer as thin. I waited about 5 days and started taking the pills again. Within a day or 2, my discharge was thin again. As of right now this does not concern me, but who knows what the future will hold.

3. Coconut Oil & Coconut Water: Coconut oil when used on my vulva caused whitehead pimples and one deep almost cyst-like zit on my inner labia. My dermatologist said she never recommends coconut oil because it causes a lot of negative reactions in her patients. She recommended hempseed oil, which never caused these pimples for me. Coconut water caused my whole face to breakout in a zitty rash that took months to heal. So clearly coconut products aren't as gentle as everyone is lead to believe.


Hope some of you find this a little helpful  Very Happy

emalita

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I agree!

Post  Gaby on Thu Jul 19, 2018 3:25 pm

Hi Emalita!

Thanks for sharing!! I read that taking magnesium could help with chronic pain so i went directly to the drugstore to get me the pills. After 3 days taking them i got an awful cistitis. In the beginning i didnt know that was the cause but i stopped them because i was on treatment for the cistitis, when my UTI was finally gone i started taking them again and i noticed pain on my bladder again so i stopped them.

Unfortunately what works for one does not work for the other.... so we need to keep on the trial and error path. Sad .

Good luck everyone!

Gaby

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Re: Weird Reactions to Natural Remedies

Post  emalita on Thu Jul 19, 2018 4:38 pm

Oh, and another one that I thought of was Chamomile tea!

It causes me to have hard stools and constipation. I read that some people use it to calm diarrhea, so I guess it makes sense. I was only steeping it for less than a minute, too, because I don't like the taste when steeped for the time recommended.

This one really makes me sad because I was using tea to try to relax at night, but not needing to strain to have a bowel movement is far more important.

I was adding a good amount of pure maple syrup as a sweetener. So it is possible that the syrup has an impact on things too, but my tea is not tea without pure maple syrup Wink

emalita

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Re: Weird Reactions to Natural Remedies

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