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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Vulvodynia was candida for me

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Vulvodynia was candida for me

Post  snarky on Mon Jun 20, 2011 7:32 pm

Hi everyone,

I am posting my story here in the hopes that someone else with my symptoms/background will read it and find some relief. I was plagued by vulvodynia for about 5 years and went to probably 20-25 different doctors, an utterly frustrating and at times soul-crushing experience for me.

8 yrs ago, I went on several courses of antibiotics for UTI-like symptoms, maybe 5 or so courses. I am not sure to this day if I really had UTIs, or if there was some other thing going on, but everything got much worse after the antibiotics. My symptoms were yeast-infection like: burning, itching, etc. I tried topical yeast infection creams, and they would temporarily help but then two weeks later it would be back. Eventually, my skin stopped tolerating the topical creams and I broke out into horrible burning pain. Sometimes my symptoms were chronic, sometimes just after sex, and sometimes only after sex at certain times of the month. Sometimes I would stay up all night b/c I had such bad pain (felt like poison oak or something). I was tested for every strain of yeast and bacteria and the tests were always negative, and I had no discharge whatsoever that would indicate infection. However, my doctors said I did have high levels of white blood cells, indicating my body was trying to fight something, I guess. I was diagnosed with generalized vulvodynia and also vestibulitis after many years and being lucky enough to find a doctor with experience treating vulvodynia (heads up, I found her on the website for the NVA, national vulvodynia association or something... skip the regular gynecologists and go to these people if possible. I paid out of pocket to see her and it was worth every penny).

Here's how I figured out it was candida:
- I kept a pain journal detailing the level of pain. My symptoms always got a bit worse right before and right after my period (like three days before, three days after). My doctor told me that this is the time of the month when yeast grows the most.
- Boric acid suppositories really helped me, although they didn't make things go away completely. I would use them for five days or so when things were getting bad, and my symptoms would subside a bit. Boric acid is a natural treatment for yeast infections but it doesn't have the harsh chemicals in the topical creams that are so irritating.
- My body didn't really respond to amitryptyline, making it unlikely to be nerve related. It made me fatter and more tired, that's it.
- My trigger was antibiotics, which obviously kill off yeast-fighting bacteria.

I presented this to my doctor, and she finally decided it could be candida. Originally she had rejected this possibility b/c of the negative tests for yeast (also, she thought "only AIDS patients get candida," not people with normal immune systems). But after several years maybe research advanced and she changed her mind about it being possible. She prescribed me diflucan, one tablet per week for several months. I have not really had any pain since going on this medication, so she must have been right.

Ladies, if you have these symptoms (in particular, your disease is mimicking a yeast infection), candida IS a possibility no matter what doctors tell you and EVEN IF YEAST TESTS COME OUT NEGATIVE. I don't know how it works, but it can happen. This is a demoralizing, terrible disease to have, and there's not a lot of help from the medical community in my experience, so you have to be your own advocate!







snarky

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Re: Vulvodynia was candida for me

Post  Aussie on Fri Jun 24, 2011 6:39 am

Hi Snarkey,

I too think this is yeast related, my v started after 4 yeast infections in 3 months. After a year of doctors visits I have finally convinced my gyne to give me 6 months of difflucan. I noticed a decrease in symptoms when the yeast infection flared and I went to the gp for nizoral. He took one look and said I had an infection. My overall symptoms I have been experiencing for 1 year were much less on the Nizoral, and came back when I finished the dose, thus my gyne was convinced to give me the difflucan.

I saw a lady on Wednesday who is a naturapath and womens health physio. She said I am zinc deficient which does something to the stomach acid which can make you more prone to yeast infections and less likely to fight it off. So I am taking supps for that and magnesium because I have pfd (muscle relaxant) She also said all of her v patients are zinc deficient, so there must be a link there.

Heres to hoping with the appropriate treatment of the yeast I will have success like you Smile

Aussie

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Re: Vulvodynia was candida for me

Post  jules on Sat Jun 25, 2011 12:51 am

I too thought i had a UTI, went on antibiotics, developed what i thought was a on-going yeast infection for months. all of my tests were negative as well. i went on Diflucan daily for months. i used creams, gels, ointments....all made my skin burn. i tried boric acid pills (in my vagina) for quite sometime...to no avail. i had a biopsy...nothing...finally a diagnosis of Vulvodynia. i went to a specialist recommend by the National V. association..i was not impressed. i cried the whole time, while she typed everything in her computer. she never looked up to comfort me. she also asked me some very judgmental questions and then i was the one who brought up possible treatment options. she referred me to a pain clinic at my request. i have gotten the best treatment from the pain clinic. I'm sure they recommend good doctors too. So happy that you have found relief and that those treatments worked for you. here i am over a year later w/ horrific pain...on three meds for this, plus pain meds. i'm doing acupuncture and P.t. i have had 4 nerve blocks w/ no relief. the meds have helped a little on and off. its better than it was w/ no meds. i am not a candidate for surgery because i have generalized V. i would have loved to found your success. it is wonderful to hear success stories. i hope it helps others....don't give up ladies!

jules

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Re: Vulvodynia was candida for me

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