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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Vulvodynia was candida for me

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Vulvodynia was candida for me

Post  snarky on Mon Jun 20, 2011 7:32 pm

Hi everyone,

I am posting my story here in the hopes that someone else with my symptoms/background will read it and find some relief. I was plagued by vulvodynia for about 5 years and went to probably 20-25 different doctors, an utterly frustrating and at times soul-crushing experience for me.

8 yrs ago, I went on several courses of antibiotics for UTI-like symptoms, maybe 5 or so courses. I am not sure to this day if I really had UTIs, or if there was some other thing going on, but everything got much worse after the antibiotics. My symptoms were yeast-infection like: burning, itching, etc. I tried topical yeast infection creams, and they would temporarily help but then two weeks later it would be back. Eventually, my skin stopped tolerating the topical creams and I broke out into horrible burning pain. Sometimes my symptoms were chronic, sometimes just after sex, and sometimes only after sex at certain times of the month. Sometimes I would stay up all night b/c I had such bad pain (felt like poison oak or something). I was tested for every strain of yeast and bacteria and the tests were always negative, and I had no discharge whatsoever that would indicate infection. However, my doctors said I did have high levels of white blood cells, indicating my body was trying to fight something, I guess. I was diagnosed with generalized vulvodynia and also vestibulitis after many years and being lucky enough to find a doctor with experience treating vulvodynia (heads up, I found her on the website for the NVA, national vulvodynia association or something... skip the regular gynecologists and go to these people if possible. I paid out of pocket to see her and it was worth every penny).

Here's how I figured out it was candida:
- I kept a pain journal detailing the level of pain. My symptoms always got a bit worse right before and right after my period (like three days before, three days after). My doctor told me that this is the time of the month when yeast grows the most.
- Boric acid suppositories really helped me, although they didn't make things go away completely. I would use them for five days or so when things were getting bad, and my symptoms would subside a bit. Boric acid is a natural treatment for yeast infections but it doesn't have the harsh chemicals in the topical creams that are so irritating.
- My body didn't really respond to amitryptyline, making it unlikely to be nerve related. It made me fatter and more tired, that's it.
- My trigger was antibiotics, which obviously kill off yeast-fighting bacteria.

I presented this to my doctor, and she finally decided it could be candida. Originally she had rejected this possibility b/c of the negative tests for yeast (also, she thought "only AIDS patients get candida," not people with normal immune systems). But after several years maybe research advanced and she changed her mind about it being possible. She prescribed me diflucan, one tablet per week for several months. I have not really had any pain since going on this medication, so she must have been right.

Ladies, if you have these symptoms (in particular, your disease is mimicking a yeast infection), candida IS a possibility no matter what doctors tell you and EVEN IF YEAST TESTS COME OUT NEGATIVE. I don't know how it works, but it can happen. This is a demoralizing, terrible disease to have, and there's not a lot of help from the medical community in my experience, so you have to be your own advocate!


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Re: Vulvodynia was candida for me

Post  Aussie on Fri Jun 24, 2011 6:39 am

Hi Snarkey,

I too think this is yeast related, my v started after 4 yeast infections in 3 months. After a year of doctors visits I have finally convinced my gyne to give me 6 months of difflucan. I noticed a decrease in symptoms when the yeast infection flared and I went to the gp for nizoral. He took one look and said I had an infection. My overall symptoms I have been experiencing for 1 year were much less on the Nizoral, and came back when I finished the dose, thus my gyne was convinced to give me the difflucan.

I saw a lady on Wednesday who is a naturapath and womens health physio. She said I am zinc deficient which does something to the stomach acid which can make you more prone to yeast infections and less likely to fight it off. So I am taking supps for that and magnesium because I have pfd (muscle relaxant) She also said all of her v patients are zinc deficient, so there must be a link there.

Heres to hoping with the appropriate treatment of the yeast I will have success like you Smile


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Re: Vulvodynia was candida for me

Post  jules on Sat Jun 25, 2011 12:51 am

I too thought i had a UTI, went on antibiotics, developed what i thought was a on-going yeast infection for months. all of my tests were negative as well. i went on Diflucan daily for months. i used creams, gels, ointments....all made my skin burn. i tried boric acid pills (in my vagina) for quite sometime...to no avail. i had a biopsy...nothing...finally a diagnosis of Vulvodynia. i went to a specialist recommend by the National V. association..i was not impressed. i cried the whole time, while she typed everything in her computer. she never looked up to comfort me. she also asked me some very judgmental questions and then i was the one who brought up possible treatment options. she referred me to a pain clinic at my request. i have gotten the best treatment from the pain clinic. I'm sure they recommend good doctors too. So happy that you have found relief and that those treatments worked for you. here i am over a year later w/ horrific pain...on three meds for this, plus pain meds. i'm doing acupuncture and P.t. i have had 4 nerve blocks w/ no relief. the meds have helped a little on and off. its better than it was w/ no meds. i am not a candidate for surgery because i have generalized V. i would have loved to found your success. it is wonderful to hear success stories. i hope it helps others....don't give up ladies!


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Re: Vulvodynia was candida for me

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