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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Vulvodynia was candida for me

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Vulvodynia was candida for me

Post  snarky on Mon Jun 20, 2011 7:32 pm

Hi everyone,

I am posting my story here in the hopes that someone else with my symptoms/background will read it and find some relief. I was plagued by vulvodynia for about 5 years and went to probably 20-25 different doctors, an utterly frustrating and at times soul-crushing experience for me.

8 yrs ago, I went on several courses of antibiotics for UTI-like symptoms, maybe 5 or so courses. I am not sure to this day if I really had UTIs, or if there was some other thing going on, but everything got much worse after the antibiotics. My symptoms were yeast-infection like: burning, itching, etc. I tried topical yeast infection creams, and they would temporarily help but then two weeks later it would be back. Eventually, my skin stopped tolerating the topical creams and I broke out into horrible burning pain. Sometimes my symptoms were chronic, sometimes just after sex, and sometimes only after sex at certain times of the month. Sometimes I would stay up all night b/c I had such bad pain (felt like poison oak or something). I was tested for every strain of yeast and bacteria and the tests were always negative, and I had no discharge whatsoever that would indicate infection. However, my doctors said I did have high levels of white blood cells, indicating my body was trying to fight something, I guess. I was diagnosed with generalized vulvodynia and also vestibulitis after many years and being lucky enough to find a doctor with experience treating vulvodynia (heads up, I found her on the website for the NVA, national vulvodynia association or something... skip the regular gynecologists and go to these people if possible. I paid out of pocket to see her and it was worth every penny).

Here's how I figured out it was candida:
- I kept a pain journal detailing the level of pain. My symptoms always got a bit worse right before and right after my period (like three days before, three days after). My doctor told me that this is the time of the month when yeast grows the most.
- Boric acid suppositories really helped me, although they didn't make things go away completely. I would use them for five days or so when things were getting bad, and my symptoms would subside a bit. Boric acid is a natural treatment for yeast infections but it doesn't have the harsh chemicals in the topical creams that are so irritating.
- My body didn't really respond to amitryptyline, making it unlikely to be nerve related. It made me fatter and more tired, that's it.
- My trigger was antibiotics, which obviously kill off yeast-fighting bacteria.

I presented this to my doctor, and she finally decided it could be candida. Originally she had rejected this possibility b/c of the negative tests for yeast (also, she thought "only AIDS patients get candida," not people with normal immune systems). But after several years maybe research advanced and she changed her mind about it being possible. She prescribed me diflucan, one tablet per week for several months. I have not really had any pain since going on this medication, so she must have been right.

Ladies, if you have these symptoms (in particular, your disease is mimicking a yeast infection), candida IS a possibility no matter what doctors tell you and EVEN IF YEAST TESTS COME OUT NEGATIVE. I don't know how it works, but it can happen. This is a demoralizing, terrible disease to have, and there's not a lot of help from the medical community in my experience, so you have to be your own advocate!


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Re: Vulvodynia was candida for me

Post  Aussie on Fri Jun 24, 2011 6:39 am

Hi Snarkey,

I too think this is yeast related, my v started after 4 yeast infections in 3 months. After a year of doctors visits I have finally convinced my gyne to give me 6 months of difflucan. I noticed a decrease in symptoms when the yeast infection flared and I went to the gp for nizoral. He took one look and said I had an infection. My overall symptoms I have been experiencing for 1 year were much less on the Nizoral, and came back when I finished the dose, thus my gyne was convinced to give me the difflucan.

I saw a lady on Wednesday who is a naturapath and womens health physio. She said I am zinc deficient which does something to the stomach acid which can make you more prone to yeast infections and less likely to fight it off. So I am taking supps for that and magnesium because I have pfd (muscle relaxant) She also said all of her v patients are zinc deficient, so there must be a link there.

Heres to hoping with the appropriate treatment of the yeast I will have success like you Smile


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Re: Vulvodynia was candida for me

Post  jules on Sat Jun 25, 2011 12:51 am

I too thought i had a UTI, went on antibiotics, developed what i thought was a on-going yeast infection for months. all of my tests were negative as well. i went on Diflucan daily for months. i used creams, gels, ointments....all made my skin burn. i tried boric acid pills (in my vagina) for quite sometime...to no avail. i had a biopsy...nothing...finally a diagnosis of Vulvodynia. i went to a specialist recommend by the National V. association..i was not impressed. i cried the whole time, while she typed everything in her computer. she never looked up to comfort me. she also asked me some very judgmental questions and then i was the one who brought up possible treatment options. she referred me to a pain clinic at my request. i have gotten the best treatment from the pain clinic. I'm sure they recommend good doctors too. So happy that you have found relief and that those treatments worked for you. here i am over a year later w/ horrific pain...on three meds for this, plus pain meds. i'm doing acupuncture and P.t. i have had 4 nerve blocks w/ no relief. the meds have helped a little on and off. its better than it was w/ no meds. i am not a candidate for surgery because i have generalized V. i would have loved to found your success. it is wonderful to hear success stories. i hope it helps others....don't give up ladies!


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Re: Vulvodynia was candida for me

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