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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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I'm New Here so I Guess My Story is too.

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I'm New Here so I Guess My Story is too.

Post  rachlea on Thu Dec 22, 2011 4:55 am

I am 42 years old, I have suffered from Vulvo for almost 11 years.

My medical hystory has been normal I had 2 children. I have had 2 Episotomies. My plevic muscles were weak and my Uterus developed a lot of cysts after the last baby. I had vaginal deliveries both normal. I started experiencing a lot of internal pain during sex. My Gyno recommended a Hysterectomy when I was 30. I was ok with this my husband and I were done with having children. He had actually had a vasectomey done for me (He was sweet)

The Pain was immediately better. I did notice some vaginal itching and burning around the week I usually had my period. I also noticed I began to sweat in my vaginal area. I had never experieced this before. It was mild and I used some creams and it helped. I still have the Burning during my previous Menstral time to this day.

When I turned 34 I developed a large Cyst on my left ovary. Since I no longer menustrated my gyno suggested I remove it. I went ahead with the surgery. I currently have my right ovary and as Far as I know its working well.
(except for the darn mustashe that wants to grow)

Over the next couple of years the vaginal itching became worse, I developed a large fissure between my vulva and anus. It was all I could do to keep from scratching. I went back to my gyno several times. He prescribed steroids to help the fissures which eventually cracked and bled. He tested me for everything under the sun, Finally convinced it was my hormones he tested my estrogen and testosterone levels for 4 weeks and they were all normal. I did not suffer from Vaginal Dryness at this time.

I asked him if he thought it may be skin related he said no, however I made myself an appointment with a Dermatologist anyway to be sure. I have had some cystic acne as a teenager and took acutane for almost a year so I was thinking the acutane caused my problems.

The Dermatologist took one look at my skin and said you have Vulvodynia, I had been there 2 minutes! Gyno FIRED!

She prescribed me a very High dose of CLOB and gave me a diagnoses of LICHEN SCHLEROSIS/VULVODYNIA, I went home and read it online and was devastated at what she told me. Telling me that My vagina would close up eventually and I would not be able to find a cure Sad (On a Brighter Note my hubby told me he would never let it close)

Fortunately I had been diagnosed early and the CLOB helped me tremendously, I only use it for a few days a month.

I am now 42 and over time vaginal dryness has become an issue, sex has always been difficult, I have found that using a skin balm in this area before sex usually helps, I usually hurt internally for a day or so after sex, so I have learned to take some motin or drink a little wine/beer beforehand to relax the muscles. My New Gyno also tells me to wash the area well and apply my cream after going to the bathroom. (I always have to go after sex anyway). Moisturization is also a key I use cetaphil Lotion in this area to keep it very soft.

I have a smell at times and I have asked my New Gyno about this however I never have any yeast or bacteria growing. I am perplexed about this. It makes me self Conscious at times.

My Husband has been wonderful it was not easy in the beginning so if anyone needs to talk I have been there. Its always best to be totally honest with your partner, They have to know that you love them and that they are still sexy to you and that your problem is not about them, but it does involve them. I think the one thing that bothers me about my hubby tho, He washes himself like I have a disease sometimes after sex and it bothers me. I wash too I mean we did before I had problems but I donno its somehow different.

I am now starting to have a lot of discomfort internally with sex, However my Gyno cannot find anything wrong. Sad

I Hope someone can tell me something useful I do not have any friends that understand my problems they all think a pantyliner and a bottle of perfume will solve my Problem Rolling Eyes

I Hope to make some friends here Very Happy


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Re: I'm New Here so I Guess My Story is too.

Post  Sarah001 on Fri Dec 23, 2011 8:25 pm

Hi and welcome. I'm sure another member had a hysterectomy and then mentioned a strange odour but I can't recsall who it was, it might be in a thread with hysterectomy in the title if you want to have a look for it. I have heard aloe vera gel is good for LS so it might be worth a try, there is a lube called Yes that contins it too. Have you considered you may have scar tissue and stuck fascia from the surgery? Might be worth a trip to a women's health physio to discuss that possibility. Anyway, welcome and I hope you find some posts of interest here.

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