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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

I'm New Here so I Guess My Story is too.

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I'm New Here so I Guess My Story is too.

Post  rachlea on Thu Dec 22, 2011 4:55 am

I am 42 years old, I have suffered from Vulvo for almost 11 years.

My medical hystory has been normal I had 2 children. I have had 2 Episotomies. My plevic muscles were weak and my Uterus developed a lot of cysts after the last baby. I had vaginal deliveries both normal. I started experiencing a lot of internal pain during sex. My Gyno recommended a Hysterectomy when I was 30. I was ok with this my husband and I were done with having children. He had actually had a vasectomey done for me (He was sweet)

The Pain was immediately better. I did notice some vaginal itching and burning around the week I usually had my period. I also noticed I began to sweat in my vaginal area. I had never experieced this before. It was mild and I used some creams and it helped. I still have the Burning during my previous Menstral time to this day.

When I turned 34 I developed a large Cyst on my left ovary. Since I no longer menustrated my gyno suggested I remove it. I went ahead with the surgery. I currently have my right ovary and as Far as I know its working well.
(except for the darn mustashe that wants to grow)

Over the next couple of years the vaginal itching became worse, I developed a large fissure between my vulva and anus. It was all I could do to keep from scratching. I went back to my gyno several times. He prescribed steroids to help the fissures which eventually cracked and bled. He tested me for everything under the sun, Finally convinced it was my hormones he tested my estrogen and testosterone levels for 4 weeks and they were all normal. I did not suffer from Vaginal Dryness at this time.

I asked him if he thought it may be skin related he said no, however I made myself an appointment with a Dermatologist anyway to be sure. I have had some cystic acne as a teenager and took acutane for almost a year so I was thinking the acutane caused my problems.

The Dermatologist took one look at my skin and said you have Vulvodynia, I had been there 2 minutes! Gyno FIRED!

She prescribed me a very High dose of CLOB and gave me a diagnoses of LICHEN SCHLEROSIS/VULVODYNIA, I went home and read it online and was devastated at what she told me. Telling me that My vagina would close up eventually and I would not be able to find a cure Sad (On a Brighter Note my hubby told me he would never let it close)

Fortunately I had been diagnosed early and the CLOB helped me tremendously, I only use it for a few days a month.

I am now 42 and over time vaginal dryness has become an issue, sex has always been difficult, I have found that using a skin balm in this area before sex usually helps, I usually hurt internally for a day or so after sex, so I have learned to take some motin or drink a little wine/beer beforehand to relax the muscles. My New Gyno also tells me to wash the area well and apply my cream after going to the bathroom. (I always have to go after sex anyway). Moisturization is also a key I use cetaphil Lotion in this area to keep it very soft.

I have a smell at times and I have asked my New Gyno about this however I never have any yeast or bacteria growing. I am perplexed about this. It makes me self Conscious at times.

My Husband has been wonderful it was not easy in the beginning so if anyone needs to talk I have been there. Its always best to be totally honest with your partner, They have to know that you love them and that they are still sexy to you and that your problem is not about them, but it does involve them. I think the one thing that bothers me about my hubby tho, He washes himself like I have a disease sometimes after sex and it bothers me. I wash too I mean we did before I had problems but I donno its somehow different.

I am now starting to have a lot of discomfort internally with sex, However my Gyno cannot find anything wrong. Sad

I Hope someone can tell me something useful I do not have any friends that understand my problems they all think a pantyliner and a bottle of perfume will solve my Problem Rolling Eyes

I Hope to make some friends here Very Happy


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Re: I'm New Here so I Guess My Story is too.

Post  Sarah001 on Fri Dec 23, 2011 8:25 pm

Hi and welcome. I'm sure another member had a hysterectomy and then mentioned a strange odour but I can't recsall who it was, it might be in a thread with hysterectomy in the title if you want to have a look for it. I have heard aloe vera gel is good for LS so it might be worth a try, there is a lube called Yes that contins it too. Have you considered you may have scar tissue and stuck fascia from the surgery? Might be worth a trip to a women's health physio to discuss that possibility. Anyway, welcome and I hope you find some posts of interest here.

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