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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

I'm New Here so I Guess My Story is too.

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I'm New Here so I Guess My Story is too.

Post  rachlea on Thu Dec 22, 2011 4:55 am

I am 42 years old, I have suffered from Vulvo for almost 11 years.

My medical hystory has been normal I had 2 children. I have had 2 Episotomies. My plevic muscles were weak and my Uterus developed a lot of cysts after the last baby. I had vaginal deliveries both normal. I started experiencing a lot of internal pain during sex. My Gyno recommended a Hysterectomy when I was 30. I was ok with this my husband and I were done with having children. He had actually had a vasectomey done for me (He was sweet)

The Pain was immediately better. I did notice some vaginal itching and burning around the week I usually had my period. I also noticed I began to sweat in my vaginal area. I had never experieced this before. It was mild and I used some creams and it helped. I still have the Burning during my previous Menstral time to this day.

When I turned 34 I developed a large Cyst on my left ovary. Since I no longer menustrated my gyno suggested I remove it. I went ahead with the surgery. I currently have my right ovary and as Far as I know its working well.
(except for the darn mustashe that wants to grow)

Over the next couple of years the vaginal itching became worse, I developed a large fissure between my vulva and anus. It was all I could do to keep from scratching. I went back to my gyno several times. He prescribed steroids to help the fissures which eventually cracked and bled. He tested me for everything under the sun, Finally convinced it was my hormones he tested my estrogen and testosterone levels for 4 weeks and they were all normal. I did not suffer from Vaginal Dryness at this time.

I asked him if he thought it may be skin related he said no, however I made myself an appointment with a Dermatologist anyway to be sure. I have had some cystic acne as a teenager and took acutane for almost a year so I was thinking the acutane caused my problems.

The Dermatologist took one look at my skin and said you have Vulvodynia, I had been there 2 minutes! Gyno FIRED!

She prescribed me a very High dose of CLOB and gave me a diagnoses of LICHEN SCHLEROSIS/VULVODYNIA, I went home and read it online and was devastated at what she told me. Telling me that My vagina would close up eventually and I would not be able to find a cure Sad (On a Brighter Note my hubby told me he would never let it close)

Fortunately I had been diagnosed early and the CLOB helped me tremendously, I only use it for a few days a month.

I am now 42 and over time vaginal dryness has become an issue, sex has always been difficult, I have found that using a skin balm in this area before sex usually helps, I usually hurt internally for a day or so after sex, so I have learned to take some motin or drink a little wine/beer beforehand to relax the muscles. My New Gyno also tells me to wash the area well and apply my cream after going to the bathroom. (I always have to go after sex anyway). Moisturization is also a key I use cetaphil Lotion in this area to keep it very soft.

I have a smell at times and I have asked my New Gyno about this however I never have any yeast or bacteria growing. I am perplexed about this. It makes me self Conscious at times.

My Husband has been wonderful it was not easy in the beginning so if anyone needs to talk I have been there. Its always best to be totally honest with your partner, They have to know that you love them and that they are still sexy to you and that your problem is not about them, but it does involve them. I think the one thing that bothers me about my hubby tho, He washes himself like I have a disease sometimes after sex and it bothers me. I wash too I mean we did before I had problems but I donno its somehow different.

I am now starting to have a lot of discomfort internally with sex, However my Gyno cannot find anything wrong. Sad

I Hope someone can tell me something useful I do not have any friends that understand my problems they all think a pantyliner and a bottle of perfume will solve my Problem Rolling Eyes

I Hope to make some friends here Very Happy


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Re: I'm New Here so I Guess My Story is too.

Post  Sarah001 on Fri Dec 23, 2011 8:25 pm

Hi and welcome. I'm sure another member had a hysterectomy and then mentioned a strange odour but I can't recsall who it was, it might be in a thread with hysterectomy in the title if you want to have a look for it. I have heard aloe vera gel is good for LS so it might be worth a try, there is a lube called Yes that contins it too. Have you considered you may have scar tissue and stuck fascia from the surgery? Might be worth a trip to a women's health physio to discuss that possibility. Anyway, welcome and I hope you find some posts of interest here.

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