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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


How do men deal with it?

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How do men deal with it?

Post  Male VVS sufferer on Sun Jan 15, 2012 12:45 am

Hi there,

I've read a few stories on this forum and thought I would share mine. Now this is from a male perspective (my wife has had VVS for at least the last 10 years) and it's got to the point where it's nearly torn us apart. To give you some background, my wife started having pain during sex about 12 years ago. She blames it on a night when we sat in a hot tub or spa for about 4-5 hours and drank ourselves silly. Then we decided to have sex that night. She relates that night directly to when she started having pain. Now I'm not sure if that would cause the VVS to become part of our lives, but it seems like it did. Anyway, she went to different doctors like a lot of women on this forum and got diagnosed with a yeast infection first up, then a while later once the pain didn't subside, she went to a specialist who then diagnosed her with Vaginismus. It wasn't until around 18 months ago that she went to see another specialist who diagnosed her with Vulva Vestibulitis. We now think that has has been diagnosed correctly.

So all through this I have tried to comfort her, be very understanding and help her deal with this. I've even helped her with some exercises she was asked to do, and I've done the q-tip test a number of times. But I have read a lot of entries from members of this forum saying they fell out of love with their partner and didn't desire them or think they could love their husband or BF the way they feel they should. And that is where we are. We have been married for 10 years, and just separated about 9 months ago. I just thought that she needed time to think about our relationship, and figure out what she wanted. But the concerning part for me was that she keeps telling me she doesn't feel the way she should about me, and that's not fair on me (her words). But I love her and want to help her in anyway I can, but it seems I have absolutely no control here, and that her mind is made up. I'm completely devastated about this and we're close to a divorce, which I definitely don't want.

I'm not sure whether I should be blaming this condition on our failed relationship or not? I need some help here because I have no idea what to do, and what she really feels. If her condition was to go away tomorrow, would she feel differently? I guess what I'm asking is for someone to explain: 1. Why has my wife decided she isn't in love with me anymore, if in fact VVS has contributed to her feelings? 2. What can I do to try to hold onto our relationship?

Any insight would be greatly appreciated as I'm lost right now, and need some perspective on where we are at.



Last edited by Male VVS sufferer on Mon Jan 16, 2012 12:03 am; edited 1 time in total (Reason for editing : Just wanted to my name out of the conversation)

Male VVS sufferer

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Re: How do men deal with it?

Post  Sarah001 on Sun Jan 15, 2012 12:55 pm

Hi Mick, I think you sound like a really caring guy who desperately wants his marriage to survive the hell that is VVS. From my point of view I think the condition affects us mentally and emotionally as much as physically. There may be a part of your wife who feels like she isn't a full woman and it isn't fair to hold onto you when you could be with someone else who can have sex, I'm sure alot of the ladies here in relationships feel that way. My partner went and found someone else after 6 months of my V problems and I know others here have had the same kind of treatment from their partners and husbands so your wife may also be thinking that's bound to happen anyway so why not just get it over with. The pain being in such a personal area of the body and such a key area to most relationships affects how we feel about any sort of closeness and we can easily switch off to any aspect of a relationship. I have a complete mental block regarding relationships and don't feel feminine or sexy anymore, a couple of guys have asked me out on dates and I turn them down without any further thought because I just think it's not going to work out so why bother and it would be easy to feel that way about an existing relationship too. I don't know if your wife still loves you, there may be other issues at work here too but I can see how closing off to any kind of closeness could translate to feeling like you don't love the other person anymore. Alot of us girls with V problems build a wall between us and men and stay firmly behind it.

I think counselling might be a good idea, a sex therapist could talk all this through with you both and perhaps find a way to move forwards together or even a marriage counsellor if your wife didn't fancy a sex therapist. As for your wife's problems I don't know what treatments she has tried already but perhaps there are some not yet tried that might help. Communication is vital and you do sound like you are not even putting the sexual difficulties at the top of the list which is fantastic, it's important your wife feels like there are other aspects that are more important than just the physical side of things. I think it's great that you're not even complaining on an anonymous forum about lack of sex, it shows you really do love your wife as a whole person and that's a huge thing when it comes to trying to work things out together. I hope it works out for you.
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