Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
How do men deal with it? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
How do men deal with it? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
How do men deal with it? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
How do men deal with it? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
How do men deal with it? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
How do men deal with it? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
How do men deal with it? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
How do men deal with it? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
How do men deal with it? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


How do men deal with it?

2 posters

Go down

How do men deal with it? Empty How do men deal with it?

Post  Male VVS sufferer Sun Jan 15, 2012 12:45 am

Hi there,

I've read a few stories on this forum and thought I would share mine. Now this is from a male perspective (my wife has had VVS for at least the last 10 years) and it's got to the point where it's nearly torn us apart. To give you some background, my wife started having pain during sex about 12 years ago. She blames it on a night when we sat in a hot tub or spa for about 4-5 hours and drank ourselves silly. Then we decided to have sex that night. She relates that night directly to when she started having pain. Now I'm not sure if that would cause the VVS to become part of our lives, but it seems like it did. Anyway, she went to different doctors like a lot of women on this forum and got diagnosed with a yeast infection first up, then a while later once the pain didn't subside, she went to a specialist who then diagnosed her with Vaginismus. It wasn't until around 18 months ago that she went to see another specialist who diagnosed her with Vulva Vestibulitis. We now think that has has been diagnosed correctly.

So all through this I have tried to comfort her, be very understanding and help her deal with this. I've even helped her with some exercises she was asked to do, and I've done the q-tip test a number of times. But I have read a lot of entries from members of this forum saying they fell out of love with their partner and didn't desire them or think they could love their husband or BF the way they feel they should. And that is where we are. We have been married for 10 years, and just separated about 9 months ago. I just thought that she needed time to think about our relationship, and figure out what she wanted. But the concerning part for me was that she keeps telling me she doesn't feel the way she should about me, and that's not fair on me (her words). But I love her and want to help her in anyway I can, but it seems I have absolutely no control here, and that her mind is made up. I'm completely devastated about this and we're close to a divorce, which I definitely don't want.

I'm not sure whether I should be blaming this condition on our failed relationship or not? I need some help here because I have no idea what to do, and what she really feels. If her condition was to go away tomorrow, would she feel differently? I guess what I'm asking is for someone to explain: 1. Why has my wife decided she isn't in love with me anymore, if in fact VVS has contributed to her feelings? 2. What can I do to try to hold onto our relationship?

Any insight would be greatly appreciated as I'm lost right now, and need some perspective on where we are at.



Last edited by Male VVS sufferer on Mon Jan 16, 2012 12:03 am; edited 1 time in total (Reason for editing : Just wanted to my name out of the conversation)

Male VVS sufferer

Posts : 1
Join date : 2012-01-15
Location : canada

Back to top Go down

How do men deal with it? Empty Re: How do men deal with it?

Post  Sarah001 Sun Jan 15, 2012 12:55 pm

Hi Mick, I think you sound like a really caring guy who desperately wants his marriage to survive the hell that is VVS. From my point of view I think the condition affects us mentally and emotionally as much as physically. There may be a part of your wife who feels like she isn't a full woman and it isn't fair to hold onto you when you could be with someone else who can have sex, I'm sure alot of the ladies here in relationships feel that way. My partner went and found someone else after 6 months of my V problems and I know others here have had the same kind of treatment from their partners and husbands so your wife may also be thinking that's bound to happen anyway so why not just get it over with. The pain being in such a personal area of the body and such a key area to most relationships affects how we feel about any sort of closeness and we can easily switch off to any aspect of a relationship. I have a complete mental block regarding relationships and don't feel feminine or sexy anymore, a couple of guys have asked me out on dates and I turn them down without any further thought because I just think it's not going to work out so why bother and it would be easy to feel that way about an existing relationship too. I don't know if your wife still loves you, there may be other issues at work here too but I can see how closing off to any kind of closeness could translate to feeling like you don't love the other person anymore. Alot of us girls with V problems build a wall between us and men and stay firmly behind it.

I think counselling might be a good idea, a sex therapist could talk all this through with you both and perhaps find a way to move forwards together or even a marriage counsellor if your wife didn't fancy a sex therapist. As for your wife's problems I don't know what treatments she has tried already but perhaps there are some not yet tried that might help. Communication is vital and you do sound like you are not even putting the sexual difficulties at the top of the list which is fantastic, it's important your wife feels like there are other aspects that are more important than just the physical side of things. I think it's great that you're not even complaining on an anonymous forum about lack of sex, it shows you really do love your wife as a whole person and that's a huge thing when it comes to trying to work things out together. I hope it works out for you.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum