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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Lyrica gave me my life back

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Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 3:57 pm

Hi ladies, Ive had LSC for over a year and it had complete control over my life. I couldnt go swimming because I couldnt wear a swimming suit, couldnt go out to dinner because it hurt to sit, couldnt go to a movie theater, couldnt attend many parties, was restricted to when I could have guests come over, couldnt have sex with out pain.....etc. I was so depressed and at times I had wished that I were dead. I went to my Gyno's office and saw a NP and she prescribed me Lyrica. I kinda rolled my eyes and thought "Oh great, another useless med. that will cost me too much money". After I took the med. my pain was gone, I couldnt believe it. OMG, I was so happy, I wanted to run around the house doing the Snoopy dance. lol. Ive been taking Lyrica for a little over a week now and sometimes it takes away the pain completely and sometimes it reduces the pain to a level that I can handle. The only draw backs are that it makes me feel really druggy, I have a hard time concentrating and I cant drive. I really dont like the druggy feeling but I will take that over pain any day. If you havent tried Lyrica then by all means, give it a try. I want very single woman who has vulva pain to be able to have a life with out pain. I wish you all luck. hugs
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Me too!

Post  sadone on Fri Apr 20, 2012 4:11 pm

Hi BpCookie,

So glad that the Lyrica helped you. What dose are you on? I used to take it daily- 150 mg twice a day was the prescribed dose, but I ended up taking just 150 at bedtime. Definitely helped with pain, and it made me feel drugged also. But thought it was quite a pleasant feeling actually! Was scared to take it during the day b/c of the loopy feeling. Now I take it "as needed", and it works. I only take it when I have a flare up. I was happy too when I found this med. The other meds I had tried had intolerable side effects and/or did not work. Hope you continue to do well. You may want to try just taking a dose at bedtime and see if that helps with the druggy feeling. Smile

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Re: Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 4:17 pm

Hi ya, I take 150 mgs twice a day, just like you did. Im going to try 100 mgs in the day and 150 mgs at night to see if that helps with the pain but also with the druggy feeling. Im so glad that Lyrica has helped you also. Its amazing what one little pill can do and to think that I went through pain for a year and all somebody had to do was to prescribe me that drug. gggggrrrrr Makes me want to slap some Dr.s lol.

Anyways, take care of yourself and once again, Im ssssoooo glad you have found something that helps your pain. Its wonderful to have your life back isnt it?! hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Mon Apr 23, 2012 7:57 am

Yes I'm pleased with Lyrica, been on it for nearly two years. I had a bad flare up about a year ago and it was put up to 400mg from 300 a day. The pain has reduced a lot and flare ups are milder and less frequent. The druggy feeling goes away after a few weeks.
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Shebby

Post  BpCookie on Mon Apr 23, 2012 4:30 pm

I see ppl talking about flare ups quite a bit. I have Lichen Simplex Chronicus and my burning is a 24 hour thing. Can you explain what you mean when you say flare up? Do you still have daily pain even when you arent having a flare up?

Glad Lyrica help you as well. Have a nice day. hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Tue Apr 24, 2012 6:50 am

Luckily I don't always have daily pain now but when I talk about a flare up it means a bout of extra bad pain which is more severe than daily pain. They tend to come and go and you don't always know what the trigger was or if its just a random cycle v goes through.

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Re: Lyrica gave me my life back

Post  penfebruary on Sun May 06, 2012 5:27 pm

Hi there sorry if this is a stupid question but what type of drug is Lyrica? I'm currently on amitryptaline and it seems to be losing its effectiveness. This month is my one year anniversary of having vulvodynia so I'm pretty down in the dumps.
BPCookie I'm so glad that you're doing so much better - I've read several of your posts before and it's lovely to hear that you're getting your life back, you deserve it! Smile
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Re: Lyrica gave me my life back

Post  BpCookie on Mon May 07, 2012 6:57 pm

Hello penfebruary, Lyrica is an anticonvulsant drug used for neuropathic pain. I tried Amitryptaline but it didnt work for me. I do used the Amitryptaline ointment twice a day. It numbs the area. I suggest giving that a try as well.

Im so very sorry that your having such a rough time. I feel your pain and have been through it myself. Over one year of constant burning pain with out much relief. I got so depressed and was mad at the world. There were time that I just wanted to die because I had lost hope in ever getting any relief. Now since Im taking Lynesta, Im back to being my old self again. Im able to watch movies with out constantly thinking about the pain, able to go to restaurants and sit with out being uncomfortable, I can have sex again (wwwooootttt) I can actually go places and do things that I couldnt do before. I still have some days where Im in pain but thats ok, as long as most days are good.

If you decide to try Lyrica, I hope it works for you. Everyone deserves to be pain free!!!!!!

Hugs to you
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p.s. if you would like to email me, my email addy is runracey@msn.com Smile
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Re: Lyrica gave me my life back

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