Vulvodynia Support
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» Hope to all my suffering ladies
Lyrica gave me my life back EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Lyrica gave me my life back EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Lyrica gave me my life back EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Lyrica gave me my life back EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Lyrica gave me my life back EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Lyrica gave me my life back EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Lyrica gave me my life back EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Lyrica gave me my life back EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Lyrica gave me my life back EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Lyrica gave me my life back

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Lyrica gave me my life back Empty Lyrica gave me my life back

Post  BpCookie Fri Apr 20, 2012 3:57 pm

Hi ladies, Ive had LSC for over a year and it had complete control over my life. I couldnt go swimming because I couldnt wear a swimming suit, couldnt go out to dinner because it hurt to sit, couldnt go to a movie theater, couldnt attend many parties, was restricted to when I could have guests come over, couldnt have sex with out pain.....etc. I was so depressed and at times I had wished that I were dead. I went to my Gyno's office and saw a NP and she prescribed me Lyrica. I kinda rolled my eyes and thought "Oh great, another useless med. that will cost me too much money". After I took the med. my pain was gone, I couldnt believe it. OMG, I was so happy, I wanted to run around the house doing the Snoopy dance. lol. Ive been taking Lyrica for a little over a week now and sometimes it takes away the pain completely and sometimes it reduces the pain to a level that I can handle. The only draw backs are that it makes me feel really druggy, I have a hard time concentrating and I cant drive. I really dont like the druggy feeling but I will take that over pain any day. If you havent tried Lyrica then by all means, give it a try. I want very single woman who has vulva pain to be able to have a life with out pain. I wish you all luck. hugs
BpCookie
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Lyrica gave me my life back Empty Me too!

Post  sadone Fri Apr 20, 2012 4:11 pm

Hi BpCookie,

So glad that the Lyrica helped you. What dose are you on? I used to take it daily- 150 mg twice a day was the prescribed dose, but I ended up taking just 150 at bedtime. Definitely helped with pain, and it made me feel drugged also. But thought it was quite a pleasant feeling actually! Was scared to take it during the day b/c of the loopy feeling. Now I take it "as needed", and it works. I only take it when I have a flare up. I was happy too when I found this med. The other meds I had tried had intolerable side effects and/or did not work. Hope you continue to do well. You may want to try just taking a dose at bedtime and see if that helps with the druggy feeling. Smile

sadone

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Post  BpCookie Fri Apr 20, 2012 4:17 pm

Hi ya, I take 150 mgs twice a day, just like you did. Im going to try 100 mgs in the day and 150 mgs at night to see if that helps with the pain but also with the druggy feeling. Im so glad that Lyrica has helped you also. Its amazing what one little pill can do and to think that I went through pain for a year and all somebody had to do was to prescribe me that drug. gggggrrrrr Makes me want to slap some Dr.s lol.

Anyways, take care of yourself and once again, Im ssssoooo glad you have found something that helps your pain. Its wonderful to have your life back isnt it?! hugs
BpCookie
BpCookie

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Location : Arizona

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Post  Sebby (Admin) Mon Apr 23, 2012 7:57 am

Yes I'm pleased with Lyrica, been on it for nearly two years. I had a bad flare up about a year ago and it was put up to 400mg from 300 a day. The pain has reduced a lot and flare ups are milder and less frequent. The druggy feeling goes away after a few weeks.
Sebby (Admin)
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Lyrica gave me my life back Empty Shebby

Post  BpCookie Mon Apr 23, 2012 4:30 pm

I see ppl talking about flare ups quite a bit. I have Lichen Simplex Chronicus and my burning is a 24 hour thing. Can you explain what you mean when you say flare up? Do you still have daily pain even when you arent having a flare up?

Glad Lyrica help you as well. Have a nice day. hugs
BpCookie
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Post  Sebby (Admin) Tue Apr 24, 2012 6:50 am

Luckily I don't always have daily pain now but when I talk about a flare up it means a bout of extra bad pain which is more severe than daily pain. They tend to come and go and you don't always know what the trigger was or if its just a random cycle v goes through.
Sebby (Admin)
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Post  penfebruary Sun May 06, 2012 5:27 pm

Hi there sorry if this is a stupid question but what type of drug is Lyrica? I'm currently on amitryptaline and it seems to be losing its effectiveness. This month is my one year anniversary of having vulvodynia so I'm pretty down in the dumps.
BPCookie I'm so glad that you're doing so much better - I've read several of your posts before and it's lovely to hear that you're getting your life back, you deserve it! Smile
penfebruary
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Post  BpCookie Mon May 07, 2012 6:57 pm

Hello penfebruary, Lyrica is an anticonvulsant drug used for neuropathic pain. I tried Amitryptaline but it didnt work for me. I do used the Amitryptaline ointment twice a day. It numbs the area. I suggest giving that a try as well.

Im so very sorry that your having such a rough time. I feel your pain and have been through it myself. Over one year of constant burning pain with out much relief. I got so depressed and was mad at the world. There were time that I just wanted to die because I had lost hope in ever getting any relief. Now since Im taking Lynesta, Im back to being my old self again. Im able to watch movies with out constantly thinking about the pain, able to go to restaurants and sit with out being uncomfortable, I can have sex again (wwwooootttt) I can actually go places and do things that I couldnt do before. I still have some days where Im in pain but thats ok, as long as most days are good.

If you decide to try Lyrica, I hope it works for you. Everyone deserves to be pain free!!!!!!

Hugs to you
Cookie

p.s. if you would like to email me, my email addy is runracey@msn.com Smile
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