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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Lyrica gave me my life back

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Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 3:57 pm

Hi ladies, Ive had LSC for over a year and it had complete control over my life. I couldnt go swimming because I couldnt wear a swimming suit, couldnt go out to dinner because it hurt to sit, couldnt go to a movie theater, couldnt attend many parties, was restricted to when I could have guests come over, couldnt have sex with out pain.....etc. I was so depressed and at times I had wished that I were dead. I went to my Gyno's office and saw a NP and she prescribed me Lyrica. I kinda rolled my eyes and thought "Oh great, another useless med. that will cost me too much money". After I took the med. my pain was gone, I couldnt believe it. OMG, I was so happy, I wanted to run around the house doing the Snoopy dance. lol. Ive been taking Lyrica for a little over a week now and sometimes it takes away the pain completely and sometimes it reduces the pain to a level that I can handle. The only draw backs are that it makes me feel really druggy, I have a hard time concentrating and I cant drive. I really dont like the druggy feeling but I will take that over pain any day. If you havent tried Lyrica then by all means, give it a try. I want very single woman who has vulva pain to be able to have a life with out pain. I wish you all luck. hugs
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Me too!

Post  sadone on Fri Apr 20, 2012 4:11 pm

Hi BpCookie,

So glad that the Lyrica helped you. What dose are you on? I used to take it daily- 150 mg twice a day was the prescribed dose, but I ended up taking just 150 at bedtime. Definitely helped with pain, and it made me feel drugged also. But thought it was quite a pleasant feeling actually! Was scared to take it during the day b/c of the loopy feeling. Now I take it "as needed", and it works. I only take it when I have a flare up. I was happy too when I found this med. The other meds I had tried had intolerable side effects and/or did not work. Hope you continue to do well. You may want to try just taking a dose at bedtime and see if that helps with the druggy feeling. Smile

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Re: Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 4:17 pm

Hi ya, I take 150 mgs twice a day, just like you did. Im going to try 100 mgs in the day and 150 mgs at night to see if that helps with the pain but also with the druggy feeling. Im so glad that Lyrica has helped you also. Its amazing what one little pill can do and to think that I went through pain for a year and all somebody had to do was to prescribe me that drug. gggggrrrrr Makes me want to slap some Dr.s lol.

Anyways, take care of yourself and once again, Im ssssoooo glad you have found something that helps your pain. Its wonderful to have your life back isnt it?! hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Mon Apr 23, 2012 7:57 am

Yes I'm pleased with Lyrica, been on it for nearly two years. I had a bad flare up about a year ago and it was put up to 400mg from 300 a day. The pain has reduced a lot and flare ups are milder and less frequent. The druggy feeling goes away after a few weeks.
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Shebby

Post  BpCookie on Mon Apr 23, 2012 4:30 pm

I see ppl talking about flare ups quite a bit. I have Lichen Simplex Chronicus and my burning is a 24 hour thing. Can you explain what you mean when you say flare up? Do you still have daily pain even when you arent having a flare up?

Glad Lyrica help you as well. Have a nice day. hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Tue Apr 24, 2012 6:50 am

Luckily I don't always have daily pain now but when I talk about a flare up it means a bout of extra bad pain which is more severe than daily pain. They tend to come and go and you don't always know what the trigger was or if its just a random cycle v goes through.

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Re: Lyrica gave me my life back

Post  penfebruary on Sun May 06, 2012 5:27 pm

Hi there sorry if this is a stupid question but what type of drug is Lyrica? I'm currently on amitryptaline and it seems to be losing its effectiveness. This month is my one year anniversary of having vulvodynia so I'm pretty down in the dumps.
BPCookie I'm so glad that you're doing so much better - I've read several of your posts before and it's lovely to hear that you're getting your life back, you deserve it! Smile
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Re: Lyrica gave me my life back

Post  BpCookie on Mon May 07, 2012 6:57 pm

Hello penfebruary, Lyrica is an anticonvulsant drug used for neuropathic pain. I tried Amitryptaline but it didnt work for me. I do used the Amitryptaline ointment twice a day. It numbs the area. I suggest giving that a try as well.

Im so very sorry that your having such a rough time. I feel your pain and have been through it myself. Over one year of constant burning pain with out much relief. I got so depressed and was mad at the world. There were time that I just wanted to die because I had lost hope in ever getting any relief. Now since Im taking Lynesta, Im back to being my old self again. Im able to watch movies with out constantly thinking about the pain, able to go to restaurants and sit with out being uncomfortable, I can have sex again (wwwooootttt) I can actually go places and do things that I couldnt do before. I still have some days where Im in pain but thats ok, as long as most days are good.

If you decide to try Lyrica, I hope it works for you. Everyone deserves to be pain free!!!!!!

Hugs to you
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p.s. if you would like to email me, my email addy is runracey@msn.com Smile
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Re: Lyrica gave me my life back

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