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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Lyrica gave me my life back

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Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 3:57 pm

Hi ladies, Ive had LSC for over a year and it had complete control over my life. I couldnt go swimming because I couldnt wear a swimming suit, couldnt go out to dinner because it hurt to sit, couldnt go to a movie theater, couldnt attend many parties, was restricted to when I could have guests come over, couldnt have sex with out pain.....etc. I was so depressed and at times I had wished that I were dead. I went to my Gyno's office and saw a NP and she prescribed me Lyrica. I kinda rolled my eyes and thought "Oh great, another useless med. that will cost me too much money". After I took the med. my pain was gone, I couldnt believe it. OMG, I was so happy, I wanted to run around the house doing the Snoopy dance. lol. Ive been taking Lyrica for a little over a week now and sometimes it takes away the pain completely and sometimes it reduces the pain to a level that I can handle. The only draw backs are that it makes me feel really druggy, I have a hard time concentrating and I cant drive. I really dont like the druggy feeling but I will take that over pain any day. If you havent tried Lyrica then by all means, give it a try. I want very single woman who has vulva pain to be able to have a life with out pain. I wish you all luck. hugs
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Me too!

Post  sadone on Fri Apr 20, 2012 4:11 pm

Hi BpCookie,

So glad that the Lyrica helped you. What dose are you on? I used to take it daily- 150 mg twice a day was the prescribed dose, but I ended up taking just 150 at bedtime. Definitely helped with pain, and it made me feel drugged also. But thought it was quite a pleasant feeling actually! Was scared to take it during the day b/c of the loopy feeling. Now I take it "as needed", and it works. I only take it when I have a flare up. I was happy too when I found this med. The other meds I had tried had intolerable side effects and/or did not work. Hope you continue to do well. You may want to try just taking a dose at bedtime and see if that helps with the druggy feeling. Smile

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Re: Lyrica gave me my life back

Post  BpCookie on Fri Apr 20, 2012 4:17 pm

Hi ya, I take 150 mgs twice a day, just like you did. Im going to try 100 mgs in the day and 150 mgs at night to see if that helps with the pain but also with the druggy feeling. Im so glad that Lyrica has helped you also. Its amazing what one little pill can do and to think that I went through pain for a year and all somebody had to do was to prescribe me that drug. gggggrrrrr Makes me want to slap some Dr.s lol.

Anyways, take care of yourself and once again, Im ssssoooo glad you have found something that helps your pain. Its wonderful to have your life back isnt it?! hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Mon Apr 23, 2012 7:57 am

Yes I'm pleased with Lyrica, been on it for nearly two years. I had a bad flare up about a year ago and it was put up to 400mg from 300 a day. The pain has reduced a lot and flare ups are milder and less frequent. The druggy feeling goes away after a few weeks.
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Shebby

Post  BpCookie on Mon Apr 23, 2012 4:30 pm

I see ppl talking about flare ups quite a bit. I have Lichen Simplex Chronicus and my burning is a 24 hour thing. Can you explain what you mean when you say flare up? Do you still have daily pain even when you arent having a flare up?

Glad Lyrica help you as well. Have a nice day. hugs
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Re: Lyrica gave me my life back

Post  Sebby (Admin) on Tue Apr 24, 2012 6:50 am

Luckily I don't always have daily pain now but when I talk about a flare up it means a bout of extra bad pain which is more severe than daily pain. They tend to come and go and you don't always know what the trigger was or if its just a random cycle v goes through.

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Re: Lyrica gave me my life back

Post  penfebruary on Sun May 06, 2012 5:27 pm

Hi there sorry if this is a stupid question but what type of drug is Lyrica? I'm currently on amitryptaline and it seems to be losing its effectiveness. This month is my one year anniversary of having vulvodynia so I'm pretty down in the dumps.
BPCookie I'm so glad that you're doing so much better - I've read several of your posts before and it's lovely to hear that you're getting your life back, you deserve it! Smile
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Re: Lyrica gave me my life back

Post  BpCookie on Mon May 07, 2012 6:57 pm

Hello penfebruary, Lyrica is an anticonvulsant drug used for neuropathic pain. I tried Amitryptaline but it didnt work for me. I do used the Amitryptaline ointment twice a day. It numbs the area. I suggest giving that a try as well.

Im so very sorry that your having such a rough time. I feel your pain and have been through it myself. Over one year of constant burning pain with out much relief. I got so depressed and was mad at the world. There were time that I just wanted to die because I had lost hope in ever getting any relief. Now since Im taking Lynesta, Im back to being my old self again. Im able to watch movies with out constantly thinking about the pain, able to go to restaurants and sit with out being uncomfortable, I can have sex again (wwwooootttt) I can actually go places and do things that I couldnt do before. I still have some days where Im in pain but thats ok, as long as most days are good.

If you decide to try Lyrica, I hope it works for you. Everyone deserves to be pain free!!!!!!

Hugs to you
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p.s. if you would like to email me, my email addy is runracey@msn.com Smile
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Re: Lyrica gave me my life back

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