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    » Diagnosed Recently
    Thu Feb 14, 2019 6:35 pm by davesjen

    » New and need advice and help
    Wed Feb 13, 2019 12:42 pm by feeling desperate

    » New here would very much appreciate advice at the end of my rope
    Wed Feb 13, 2019 12:33 pm by feeling desperate

    » MonaLisa Touch
    Sat Feb 09, 2019 3:46 pm by Julquint

    » New member desperate need of other vulvadynia sufferers
    Sat Feb 09, 2019 10:09 am by Tfc13

    » The pain CAN get better - What's worked for me
    Sat Feb 09, 2019 8:17 am by Ginger

    » Remission and relapse and again and again
    Thu Feb 07, 2019 1:10 pm by mary jane

    » Long term pain after partial vestibulectomy?
    Wed Feb 06, 2019 1:56 pm by mary jane

    » Recovery story please read !!
    Fri Feb 01, 2019 1:33 pm by mary jane

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 1

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 7

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3


    COCONUT OIL cured me.

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    COCONUT OIL cured me.

    Post  britneyb93 on Thu May 24, 2012 12:58 am

    for the past week I have been ingesting 2 tablespoons of coconut oil.

    by 3 PM day 1 I was pain free.

    I was the girl in class crying and running out of the classroom because I could not sit down on those stupid plastic chairs for longer then 15 minutes.

    I could not have sex, no tampons, no tight clothes, no underwear, no baths, no contact to my privates at all.

    I am pain free. PLEASE go buy coconut oil I got mine at the Vitamin Shoppe in Manhattan Beach Nutiva brand under $12.

    I tried Zmax, rephresh, vagisil, all types of washes, lidocaine, aloe vera, ice, pelvic floor muscles, chiropractor.

    Everyone is different, but this worked for me, I had to share since I have been visiting this site for months getting tips and advice.


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    Re: COCONUT OIL cured me.

    Post  Chelsea1991 on Fri May 25, 2012 6:59 am

    Hi, I was wondering what type of coconut oil did you use?

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    Thank you!

    Post  karris87 on Thu Jul 26, 2012 4:50 am

    After reading your post, I went out and bought some coconut oil pills at Vitamin World, and I take about three of the gel pills a day. It has really improved my pain with urination. Not 100%, but like 75%. Thanks so much for posting about it!

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    Re: COCONUT OIL cured me.

    Post  Gizzy on Mon Oct 01, 2012 4:01 pm

    With the Coconut oil,how many times a day and how much do you take it? Very Happy
    Gizzy
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    Symptoms?

    Post  katie220 on Mon Oct 01, 2012 6:33 pm

    I want to try that. I have a sensitive stomach though. Does it give you any stomach issues when you take it? Thanks for the advice btw.

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    Re: COCONUT OIL cured me.

    Post  Aussie on Tue Oct 02, 2012 4:39 am

    I use coconut oil as lubricant. I would be interested to learn how long have you been pain free from using this method?

    I have not tried eating the stuff but find it helps greatly with yeast issues when I use it as lubricant Smile

    Thanks,

    Claire

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    Coconut oil

    Post  Char29 on Fri Oct 05, 2012 1:30 am

    Hi there
    I was just wondering - you said you use coconut oil and it has helped - did you ingest it or use it as a lubricant?
    I have had this issue my whole life - and things are really getting to a head in my marriage; I have tried everything!!! I am really desperate!!
    I look forward to your answer in anticipation and will be going to buy some ASAP!!!
    I really hope to have the same result as yourself!! Crying or Very sad

    I have just found this site - out of pure desperation!!!! I am tired of living like this and have no idea what to do!!
    Thanks
    Charmaine xx

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    Re: COCONUT OIL cured me.

    Post  britneyb93 on Mon Nov 05, 2012 10:49 pm

    I incorporated it into my diet,

    Used it as an oil in my vegetable stir frys, mixed 2 tablespoons in cranberry juice, spread it on toast with butter. And yes ingest it with food or it will make you nauseous!

    It can be used as a lubricant. I should also add that I used it for about 3 weeks and then I stopped, no symptoms since 10 days ago and I have been ingesting it everyday and I'm pain free again.

    I have probably ingested 2-3 tablespoons a day when I take it.

    That's about it guys.

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    Re: COCONUT OIL cured me.

    Post  Ceriane on Tue Nov 06, 2012 8:05 pm

    Bought myself some coconut oil and I'm going to try it!!!

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    Re: COCONUT OIL cured me.

    Post  tamtam on Sat Dec 22, 2012 3:40 am

    I am going to try it. I am now using a compound it does help but does not get better. I just joined this group so glad I can talk to woman about the same issues. Thanks so much!

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    any cocnut updates

    Post  sherunsandknits on Thu Jan 17, 2013 3:00 am

    Just wondering from everyone who was going to try it - any positive results?

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    Coconut Oil

    Post  hojolly on Sun Jan 20, 2013 9:57 pm

    I'm shooting the moon and going for the coconut treament. No sex in 11 years because of this condition. My husband is a saint! Finger & toes crossed. Exclamation

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    Re: COCONUT OIL cured me.

    Post  dmilly01 on Mon Mar 25, 2013 4:20 pm

    I use coconut oil to soothe my vulva every day and if very bad, I use it with lidocaine so doesnt burn as much as lidocaine can sting for few mins when first applying it. But i havent ingested coconut oil, So i will have to give it a go. I get mine from Tescos in the UK. It is pure organic coconut oil and it says on it that you can use it as a spread. I keep mine in a cupboard as goes hard in fridge. Probably because it is an oilx

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    Re: COCONUT OIL cured me.

    Post  catchme on Mon May 20, 2013 11:01 am

    Wow, this is quite surprising! But I'm gonna try it too, it's worth a shot. I wonder what it is in it that could ease the pain by eating it. Thanks for the tip! Smile And really happy for you that you found some real help!

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    Re: COCONUT OIL cured me.

    Post  Alana3 on Mon May 20, 2013 12:36 pm

    Just saying be very careful with that. If you ingest it it has.a ton of calories and makes you break out. If you put it down there it can cause bacterial infections and yeast. I asked my doctor he said maybe but sometimes it can cause more problems in the long run. If you use it everyday. I've heard of people using it with success so it's worth it but it can cause worse problems so just.be.very careful Smile

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    Re: COCONUT OIL cured me.

    Post  catchme on Mon May 20, 2013 4:41 pm

    Alana3 wrote:Just saying be very careful with that. If you ingest it it has.a ton of calories and makes you break out. If you put it down there it can cause bacterial infections and yeast. I asked my doctor he said maybe but sometimes it can cause more problems in the long run. If you use it everyday. I've heard of people using it with success so it's worth it but it can cause worse problems so just.be.very careful Smile

    that's why living with this illness is so difficult. there's so many different things that has helped different people that you don't know where to start, don't know what you dare to try 100 % and so on. It feels like trying different things but not full on hasn't gotten me anywhere. Shocked

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    Re: COCONUT OIL cured me.

    Post  Alana3 on Mon May 20, 2013 6:50 pm

    We'll oils aren't good to put there they trap bacteria. I did surgery it worked for me but I was sick of experimenting

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    Re: COCONUT OIL cured me.

    Post  catchme on Mon May 20, 2013 8:18 pm

    Alana3 wrote:We'll oils aren't good to put there they trap bacteria. I did surgery it worked for me but I was sick of experimenting

    I think using some kind of oil is really important for most of us and most doctors recommend it too. It helps me at least. And I've also done surgery (2 months ago) but it's not gonna help for my generalized symptoms even though the vestibulum area is almost pain free now. But sex is still impossible and I get pain inside only by gently using dilators. Plus unprovoked pain on a daily basis Neutral

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    Re: COCONUT OIL cured me.

    Post  Sarah001 on Mon May 20, 2013 8:46 pm

    Funnily enough when I use my dilators I use oil, it does make things feel better for me and water based lubricants were the ones responsible for my many UTIs while I used them so it's a case of what works for one may not work for another I suppose. I tried coconut oil however and that made matters worse but a little bit of vaseline with a drop of lavender oil is very soothing for me.
    Sarah001
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    Re: COCONUT OIL cured me.

    Post  Alana3 on Tue May 21, 2013 2:45 am

    Just saying what I was told and what worked for me. I may have something different than u girls too if you have generalized it probably would be soothing. I just didn't want to mess with any chance of bacteria. But I had provoked v so it's a different beast

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    Re: COCONUT OIL cured me.

    Post  catchme on Tue May 21, 2013 6:24 am

    yeah, we are all different and react differently to different things. And some may have had a lot of issues with different infections and maybe then it's not so smart to use oil. So I get your point Alana Smile But those who haven't had those problems and for whom the vagina feels dry it's usually good to use some kind of oil. I use Weleda Organic Calendula Oil and I've found that it does help with the burning and rawness. Plus when you apply the oil you get used to touching and for some that has also alleviated the pain

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    Re: COCONUT OIL cured me.

    Post  yoginimom on Tue Oct 28, 2014 2:47 am

    My gyno recommended cocnut oil, and said to use it as a lube as all the over the counter ones can give me V flare ups. Coconut oil is the only moisturiser or lube that doesn't give me a flare so far. But i'm open to trying others. Would replens and such also be in the same risk category for BV and/or yeast?


    Last edited by yoginimom on Mon Nov 17, 2014 6:04 am; edited 1 time in total

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    Re: COCONUT OIL cured me.

    Post  Alana3 on Tue Oct 28, 2014 7:12 pm

    I got off the pill and i no longer get BV or yeast. Maybe it is hormone levels for you? But I refuse to ever get back on the pill ugh! If coconut oil works for you have at it. Very Happy

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    Re: COCONUT OIL cured me.

    Post  JulesB on Sun Jan 18, 2015 7:36 pm

    Before I use anything in my cag I fully research it. Coconut oil has anti bacterial and anti fungal properties and doesn't go rancid. As a result of this it is a good deterrent against candida (although you may need to combine it with a low sugar and low yeast diet). Other oils that can be soothing, such as olive oil, and encourage bacterial growth, but not coconut oil, in fact it is a powerful destroyer of all kinds of microbes, from viruses to bacteria to protozoa. It also has anti irritant and anti inflammatory properties. Around 50 percent of the fat in coconut oil is lauric acid, which is rarely found in nature. In fact, coconut oil contains the most lauric acid of any substance on Earth. Your body converts lauric acid into monolaurin, a monoglyceride that can actually destroy lipid-coated viruses such as HIV and herpes, influenza, measles, gram-negative bacteria, and protozoa such as giardia lamblia. Yes, it is a fat but Coconut oil is comprised of medium chain fatty acids (MCFAs) that are easily digested and readily cross cell membranes. MCFAs are immediately converted by your liver into energy rather than being stored as fat.

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    Re: COCONUT OIL cured me.

    Post  JulesB on Sun Jan 18, 2015 7:39 pm

    I meant vag!

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    Re: COCONUT OIL cured me.

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