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» Hope to all my suffering ladies
 A Glimmer of hope? Inversion table EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
 A Glimmer of hope? Inversion table EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
 A Glimmer of hope? Inversion table EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
 A Glimmer of hope? Inversion table EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
 A Glimmer of hope? Inversion table EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
 A Glimmer of hope? Inversion table EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
 A Glimmer of hope? Inversion table EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
 A Glimmer of hope? Inversion table EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
 A Glimmer of hope? Inversion table EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


A Glimmer of hope? Inversion table

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Sebby (Admin)
Delilah1
6 posters

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 A Glimmer of hope? Inversion table Empty A Glimmer of hope? Inversion table

Post  Delilah1 Tue Jun 11, 2013 8:59 pm

Hello ladies. For some reason I have had some pain free days this month. I really don't know why. The pain/burning was at a level one during ovulation. It crept back up while on my period and days after but those few days were such a relief I had to tell you all! All I have been doing for months is taking a multivitamin, washing the vulva with only water, deep breathing, rinsing with water after urinating, stretching exercises, lying on an inversion table 3 times a day, taking aveeno oatmeal baths and trying to think positive. I keep telling myself I will be pain free one day and this will go away as quickly and suddenly as it came.
I would like to ask if anyone else has tried an inversion table. The first time I used it I knew I was stretching muscles/tendons I had never stretched before. I felt a stretch in the psoas muscles, inside my vagina, lower abdominal muscles and even the labia felt like they were stretching. I don't know what if any of these things have helped. Just thought I would share. I still think mine was caused by a bacteria or virus that damaged the nerves and the muscles tightened up to guard from the pain. I'm no scientist but thats my feeling! Still waiting to see a specialist. I hope you are all having a pain free day! Thanks for listening!

Delilah

Delilah1

Posts : 55
Join date : 2013-04-24

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 A Glimmer of hope? Inversion table Empty Re: A Glimmer of hope? Inversion table

Post  Sebby (Admin) Tue Jun 11, 2013 9:05 pm


So glad to hear you have had some pain free days!

I always find period time and just after, the time I am most likely to get a flare up!

Umm...I don't actually know what an inversion table is?

Is it something you can use at home? Embarassed
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Delilah1 Tue Jun 11, 2013 9:13 pm

Thank you Sebby! Yes, you can buy an inversion table online. You lie on your back on it with your feet secured and hang upside down. My husband purchased it for his back. I decided to give it a try and was surprised at the stretch I felt in those areas.

Delilah1

Posts : 55
Join date : 2013-04-24

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 A Glimmer of hope? Inversion table Empty Interesting

Post  jessica1980 Tue Jun 18, 2013 7:31 pm

Might want to try that myself....thank you for your suggestion

jessica1980

Posts : 3
Join date : 2013-06-11

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Post  Sebby (Admin) Wed Jun 19, 2013 6:00 pm

Yes thank you, I will deff be looking into that as I also get back problems. I have noticed my lower back has been quite painful the last few days. This is after my flare up a few weeks ago.

I bend down to pick something up or wash my hair and have to get back up slowly like I am in my 90's! I'm only 32!lol

Gonna have a look at pics of this table, hanging upside down sounds a bit scary tho Shocked lol
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

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Post  BpCookie Wed Jun 19, 2013 7:33 pm

Ive always wanted an inversion table for my back pain. I think Im going to buy one now. I know that my pudendal nerves are probably pinched because of the way I have to sit because of my vagina pain. This only cause the nerves to get more pissed off. Also, when your in pain, you tend to tighten your muscles, so this Inversion table may help a lot of us.

Thanks for letting us know. hugs
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Post  ringostarr26 Thu Jun 20, 2013 4:22 am

Amazing! I am so glad you are feeling better! It is so great to hear women fighting through this and having good days as opposed to feeling alone and in pain. I wish you many more pain free days!

ringostarr26

Posts : 59
Join date : 2012-07-31

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Post  Delilah1 Fri Jun 21, 2013 3:27 am

Hello ladies!  If you do try the inversion table just take it slow.  I started out just lowering my head slightly.  I could feel the stretch with just that slight recline.  I don't spend a long time in the recline either just long enough to do a few deep breaths and to relax through them.  Thank you for your encouragement and support!  I wish you all pain free days!  Thanks for the laughs BPCookie:D some of your posts have made me laugh out loud!  Thank you Ringo:D  Hanging upside down is really kind of fun Sebby. And it is relaxing for me.  There are warnings for people who have high blood pressure, eye disease and heart disease.  Just check it out before you use it.

Delilah1

Posts : 55
Join date : 2013-04-24

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Post  Sarah001 Mon Jun 24, 2013 6:38 pm

At the risk of being a party pooper anyone with stability issues should not use an inversion table until they are stable.  That is all! Wink
Sarah001
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