Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
does a vestibulectomy change the look of the vagina EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
does a vestibulectomy change the look of the vagina EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
does a vestibulectomy change the look of the vagina EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
does a vestibulectomy change the look of the vagina EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
does a vestibulectomy change the look of the vagina EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
does a vestibulectomy change the look of the vagina EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
does a vestibulectomy change the look of the vagina EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
does a vestibulectomy change the look of the vagina EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
does a vestibulectomy change the look of the vagina EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


does a vestibulectomy change the look of the vagina

5 posters

Vulvodynia Support :: Support and Advice

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Post  stlgirl21 Sat Jun 15, 2013 2:58 pm

Hi, I'm new. I'm having a vestibulectomy on August 5th.  I've had provoked/primary vulvodynia since the beginning of my sex life (age 16), I'm now 29.  I'm ready to have the vestibulectomy but one thing scares me:  How will my vagina look after surgery?  I really don't want it to look any different or change for the worst. Everything is nicely in tact down there now. So I guess my question is how will a vestibulectomy change my vagina if at all?  It would be horrible to have the surgery and then be self concious about how my vagina looks.

stlgirl21

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Post  Alana3 Sat Jun 15, 2013 3:38 pm

No it doesn't at all at least mine didn't. But even if it did do you really want to have pain the rest of your life? If a guy is looking there at all I'm assuming he wouldn't notice or care lol

Alana3

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Post  Alana3 Sat Jun 15, 2013 3:39 pm

But I wouldn't worry I don't even have a scar on mine lol ask your doc to show u before and after pics of previous surgeries. Mine did

Alana3

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Post  jen007 Sun Jun 16, 2013 2:16 am

Hi stlgirl21


I had a full vestibulectomy in July of last year. I was also worried about what I'd look like "down there" after surgery as well. After the surgery and being fully healed I didn't really notice a difference. A full vestibulectomy takes away more skin than a partial so there is a slight difference, but nothing significant. If anything I think mine looks better. It almost looks tighter, haha. 


Which type of vestibulectomy are you getting? A full or partial?


-Jen

jen007

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Post  stlgirl21 Sun Jun 16, 2013 11:08 am

Thank you ladies for the replies.  That gives me hope!  I am having a full vestibulectomy.  I will definitely ask for before and after photos, I had not thought about that.  Alana and Jen, are you happy with the overall outcome of your vestibulectomy? Is your sex life less painless or completely pain free?  How many weeks or months before I can start having intercourse?

stlgirl21

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Post  Alana3 Sun Jun 16, 2013 11:59 am

I had partial I was fine after 6 weeks but still haven't had sex. However my exams arent painful so I know I could. Remember everyone is different so if it takes longer than 6 weeks don't get discouraged. I would do it again if I had to it was well worth it in my.opinion. who's doing it for u

Alana3

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Post  stlgirl21 Sun Jun 16, 2013 4:06 pm

As far as I know I'm getting a full done.  My doctor is in Phoenix his name is Dr. Brooks.  I chose to travel because there seems not to be any top notch specialists here in St. Louis where I live.

stlgirl21

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Post  Alana3 Sun Jun 16, 2013 5:59 pm

You'll be fine!

Alana3

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Post  stlgirl21 Mon Jun 17, 2013 12:14 am

I sure hope everything works out.  My boyfriend has been patient so far.  For our sake, I hope the surgery will give me a pain free sex life. Smile

stlgirl21

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Post  Fingerscrossed Tue Sep 17, 2013 6:30 am

How did your vestibulectomy go? I know it's still early for you to see how sex goes with it, but I would like to know about your pain levels and mobility. It looks like I'm having one in December and I'm trying to prepare.

Fingerscrossed

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Post  Alana3 Tue Sep 17, 2013 12:23 pm

Iv was able to have sex 6 weeks after I didn't cuz no boyfriend sex is amazing and the pain was nothing I took Advil a day after and was out of they house in 3 days you'll be fine

Alana3

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Post  Jenn89 Tue Sep 17, 2013 9:27 pm

Ohh I'd like to see an update on this too!

Jenn89

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Post  Alana3 Tue Sep 17, 2013 10:21 pm

All good! Trust me

Alana3

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