Vulvodynia Support
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» Hope to all my suffering ladies
Inflammation and hormones! HELP! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Inflammation and hormones! HELP! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Inflammation and hormones! HELP! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Inflammation and hormones! HELP! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Inflammation and hormones! HELP! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Inflammation and hormones! HELP! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Inflammation and hormones! HELP! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Inflammation and hormones! HELP! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Inflammation and hormones! HELP! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Inflammation and hormones! HELP!

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Post  sailor_moon Mon Jul 07, 2014 12:04 am

Hi ladies,

I have been dealing with a chronic itch and burning for the last year. I am only 26. I had 2 biopsies done, the first one was normal, the second one showed chronic non-specific inflammation.

Does vulvodynia involve chronic inflammation? Because doctors tell me that if I had vulvodynia my vulva would look normal with no inflammation. I do not have pain at touch of a q-tip test.

I have intense itching on an everyday basis as well as burning leading up to my period. My periods are all over the place. 47 days apart, 66 days apart ect.

I have tried every lotion and potion on the market. If I hear the word "steroid cream" one more time I am going to scream, steriod cream does not work!!!

I feel like this thing is coming from the inside out. I also experience constant nausea, lethargy, vomiting and acne. I feel like my problem is hormonal but doctors do a basic blood test and tell me my hormones are "good" and dismiss me. All they want to do is send me to councilling! How is councilling going to fix my vag!

I have read that a basic hormone blood test will not give a real reading if you have a hormone imbalance. I read you have to do a 24 hour hormone blood test and a saliva hormone test to show a real reading?

Any advice would be much much appreciated. I am going insane. Noone should have to go though this :'(


sailor_moon
sailor_moon

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Location : Australia

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Post  Alana3 Mon Jul 07, 2014 2:28 pm

Try to find a diagnosis for strep B or ureaplasma!

Alana3

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Post  sailor_moon Mon Jul 07, 2014 9:52 pm

Thankyou,

I don't know if I have been tested for strep B or Ureaplasma. Isn't Ureaplasma an STD? I thought if it was the doctors would have checked me for that? I'm married and I made my husband go and get tested too and everything they tested him for came back negative.
sailor_moon
sailor_moon

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Post  Alana3 Tue Jul 08, 2014 12:56 pm

No ureaplasma is NOT an STD! I got it and was NOT having sex. 

http://my.clevelandclinic.org/disorders/infections/hic_ureaplasma_and_mycoplasma.aspx

Alana3

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Post  sailor_moon Tue Jul 08, 2014 9:20 pm

Oh ok! Thankyou. I thought it was an STD. I will definitely be asking the new Gyno I'm seeing in a few weeks.

I've read some of your other posts and it looks like you have done your research and know your stuff Smile

The last doctor that did a biopsy held a magnifier over the area and said under the magnifier it looks like this inflammed 'rash' is covered in tiny little yellow-white dots. But only non-specific inflammation came back as a result.

Any ideas on what it could be?
sailor_moon
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