Vulvodynia Support
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» Hope to all my suffering ladies
topical creams EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
topical creams EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
topical creams EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
topical creams EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
topical creams EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
topical creams EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
topical creams EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
topical creams EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
topical creams EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  kateelizabeth Thu Aug 11, 2011 8:23 pm

I really want to try topical Gabapentin, however English doctors aren't willing to contact compounding pharmacies to make such a cream.
I have searched high and low for it, as it has such great reviews on the internet.
Does anyone know where I can purchase it?
Also I am using topical Lidocaine 2% (vagisil) at the moment, it does help numb but I really want to try the 5% as it doesn't do much for the pain.

I have heard people use this internally, however I am scared that vagisil cannot be used this way and I will cause more damage.
How do people here apply it?
I read about the cotton ball theory, but I think thats a recipe for bv.

If anyone has had any success with topical creams, please share with us lovely ladies Smile

I am only 21, so I don't think estrace is the right choice for me, but who knows.

Wishing you all much health and happiness

Kate x

kateelizabeth

Posts : 13
Join date : 2011-07-29

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Post  lolainslacks Thu Aug 11, 2011 9:38 pm

I'm in the UK too, and I use lidocaine 2%, although it's called 'Instillagel'. You need a prescription for it. It comes in a syringe. You insert the tiny tip off the syringe, and push down on the plunger, and it squeezes the gel inside you. If you need to, and if it's not too painful, you can use your fingers to rub the gel onto the places that hurt the most for you. I have to do this, because my pain is just inside the entrance, and just squeezing the gel inside doesn't work, I have to sort of push the product into the right places. It can be uncomfortable and it's a very messy process, but it's worth it for the pain relief.

I was originally prescribed 5% but I was then told that it's no longer available in the UK at such a strong dosage. You can always ask your GP though.

I'm also taking Gabapentin in pill form, but it's too soon to tell whether or not it's working. However, if that's the medicine you were initially looking for, you could always try using the pill with the gel.

This gel has been a miracle product for me, I really recommend you try it. If so, I hope it works as well for you as it does for me.


Last edited by lolainslacks on Sun Aug 14, 2011 4:29 pm; edited 1 time in total

lolainslacks

Posts : 115
Join date : 2011-04-18

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Post  kateelizabeth Sat Aug 13, 2011 1:07 pm

Thank you ever so much, that is really helpful.
I will ask for that gel on tuesday when I get my next appointment.
I am currently on amitriptyline, have been on it for 3 weeks but apparently it can take months to come into effect.
Let me know how you find Gabapentin! I am interested in trying this.

x

kateelizabeth

Posts : 13
Join date : 2011-07-29

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