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» 7 months since the diagnosis
Smear Tests EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Smear Tests EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Smear Tests EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Smear Tests EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Smear Tests EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Smear Tests EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Smear Tests EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Smear Tests EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Smear Tests EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Smear Tests

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Post  MysteryMe on Sat Aug 13, 2011 9:05 pm

Forgive me for my ignorance, but like I said in my other post I have only just been diagnosed and feel that there is so much I don't know. I have read through a lot of posts on here and have noticed that in a lot of cases people's symptoms have been triggered by something such as an infection or bad experience. I don't think this is true in my case as I can never remember a time when it wasn't painful to touch or be touched down there.

I also noticed that lots of you mentioned having Smear Tests/Pap Tests to see what the cause of pain was. Does this mean you do not also suffer from vaginismus/clamping up? I attempted a smear but it was so painful I was in tears and it was completely impossible because I was involuntarily clamping up. Has anyone else experienced this? My doctor has told me a smear test will have to be done and is recommending a general anaesthetic which I am incredibly thankful for, though I understand it's pretty unusual.

I think I am still coming to terms with how unusual my condition is, as even here I haven't read anyone elses' story and thought "That sounds exactly like me" which is a bit disappointing. Still, I guess I'm very lucky I have a doctor who diagnosed me immediately as I can only imagine the distress that not knowing would cause.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Post  Mouse on Sun Aug 14, 2011 2:34 am

Hey there and welcome!

A smear test is just that and I don't think they are used for any other purpose. Most of the women on here are unable to have them without extreme pain, if at all. I have generalised unprovoked V. which is pain all day every day without provocation so smear tests aren't an issue. I'm fairly much in the minority. Are you maybe referring to the the cotton tip test? This a mapping of painful areas using a cue tip/cotton bud.

It's would also be unusual to find someone with exactly the same condition. Or at least that's what we've found on here. There are some similarities. We share information to find out what works and I guess because we are all so different it's a bit trial and error.

Good luck with your journey. I know we are a looking for answers.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  MysteryMe on Sun Aug 14, 2011 9:55 am

Hi! Thank you so much for your reply. Because of my age I had never attempted a Smear until last week, I didn't know what it entailed aside from the basis details. They tried a small speculum (sp?) but that didn't work at all because of the pain, they then tried a much smaller one but not no avail. The gel itself was very painful too.

A cotton swab didn't work either, I think because I just don't trust anyone to touch me there and a cotton swab would probably be one of the worst things anyone could use quite honestly!

I'm glad that my doctor is recommending a smear under general anaesthetic - I do think it's the only way it'll get done. I am so lucky to be an NHS patient. The reason I was having a smear in the first place was to establish why I was bleeding at strange times of the month and why my periods were so irregular; I still need to know why that is. It's a bit scary not knowing what's wrong with you and not being able to talk to anyone about it. I'm so glad I found this site.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Post  Sebby (Admin) on Mon Aug 15, 2011 12:00 pm


Hi there and welcolme to the forum

I have had pain with examinations, intercourse and tampons as well as vaginismus all my life, well since I tried tampons at 13 and ended up in tears

I always found it difficult to get smears done and even had to take a valium beforehand. I ended up getting more constant pain about 2 1/2 years ago now and put off my smear. Eventually the Gynea asked me to try when I had my appointment as the pain was low that day.

What he let me do was to insert (with his guidance) the instrument myself (I dont know what its called lol) and also press the lever when it opens a bit inside you. I found this easier as I had more control. Yes it hurt but I breathed and knew that it was only temporary.

If you need to get it done under general anaesthetic then do this as if I had not been able to do it the last time I would have asked to be put under anaesthetic

Good luck

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Sebby (Admin)
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Age : 38
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Post  Aussie on Tue Aug 16, 2011 1:39 am

There are many women who have had pain with sex their whole lives. Read the case studys on www.vulvodynia.com.au. Most on there suffered pain from day one.

Claire

Aussie

Posts : 230
Join date : 2011-03-15
Age : 30
Location : Queensland, Australia

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Post  Sarah001 on Tue Aug 16, 2011 7:32 pm

I'm actually overdue for a smear test and keep getting bombarded with letters about it but I can't face the pain it would cause so I'm leaving it for a while until I (hopefully) have some better days.
Sarah001
Sarah001

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Location : UK

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Post  lisadoc on Tue Aug 16, 2011 9:32 pm

i am also due a smear and am trying to get sorted out to having it as its so important, especially if anyone else is watching eastenders at the minute. have started pyhsio to sort out my pelvic floor so hoping to get that smear sooner rather than later xx

lisadoc

Posts : 22
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