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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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officially diagnosed....

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officially diagnosed....

Post  julia on Mon Aug 02, 2010 9:44 pm

with vulvodynia. by my gyno, so i'm an official member of the club now unfortunately! the consultant will write to my gp for me to take amytriptyline as i have done previously. Thought I would tell you all the news, but I'm in a weird mood about it after 3 years of waiting for a diagnosis, here it is.

xxx

julia

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Re: officially diagnosed....

Post  Sebby (Admin) on Tue Aug 03, 2010 11:36 am


Why on earth does it take them 3years to diagnoise! Its silly...I had to diagnoise myself and eventually the gynea agreed!

Welcome to the club then, I should make up sum sort of memebership badges lol Lets hope we will all be members of the 'Im now out of pain' club very soonnnnnnn!!!

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Re: officially diagnosed....

Post  Julie on Wed Aug 11, 2010 6:55 pm

I was just prescribed amitriptyline (elavil) today as well... any progress? I didn't know how I felt about the idea of it being a nerve/pain receptor problem but any relief would be good!

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Re: officially diagnosed....

Post  Sarah001 on Wed Aug 11, 2010 7:19 pm

Funnily enough I keep being sent away with information leaflets that imply Amitriptyline is a temporary thing for vulvodynia and after 6 months or so most women should be able to come off it but that's not what I'm reading online from real women!

I was really worried about side effects from the Ami when I was given it for my musculoskeletal pain and the majority of people I told didn't help by claiming it would make me "like a zombie" and "completely loopy" so I started by chopping the tablets in half and taking half the dose to see how I felt. After a couple of weeks I'd got past feeling drowsy so I went to a whole tablet and the drowsiness started again so I'm working my way through it again until I up the dose some more. I get a terrible dry mouth with it though and have to drink nearly constantly to be able to speak!! If you keep taking it the side effects do actually seem to decrease as your body gets used to it so it's not too bad and I would liken the drowsiness to how I feel if I have a big glass of red wine so it's quite nice as long as you don't have to drive! I'm not at a high enough dose to get much pain relief yet but I'm working on it.

What bothers me is just because we can't feel our clothes rubbing on the skin and making it redder and sorer doesn't mean it isn't still happening so I try and stay sensible about what I wear and do etc.
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Re: officially diagnosed....

Post  julia on Tue Aug 17, 2010 1:03 pm

that sounds so bad Sad

I was on amytriptyline for this beforea bout 2 yrs ago. I can't remember how much it helped because I was on a cocktail of a lot of different things at the time.

But I do remember when I came off of them I felt very low.. damn antidepressants.

julia

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Re: officially diagnosed....

Post  Sarah001 on Tue Aug 17, 2010 1:46 pm

Do you know Julia I find if I miss one tablet I get really irritated! They must be having a calming effect on me I think. My partner says I'm a naturally irritable person so when I don't take a tablet I revert back to my normal self Rolling Eyes but it feels alot worse than that and I feel so annoyed all the time. For the first few days I took them I actually felt very depressed and down but it does say in the leaflet they can do this. Weird isn't it? An anti-depressant makes you more depressed to begin with! I'm not a fan of taking medication but I frankly can't deal with all my joint pains, the Fibromyalgia and this hateful vulvodynia without them so I'm resigned to a life of medication now.
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Re: officially diagnosed....

Post  Sebby (Admin) on Tue Aug 17, 2010 7:33 pm


Im on Citalopram and Buspirone for anxiety anyway so I dont think it would be a good idea to change to another anti depressant..I do think I would get side effects.

Im pretty scared also of trying the anti-convulsants as they have a warning of increased risk of depressive symptoms.

I used to self harm so I have to be careful

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Re: officially diagnosed....

Post  Sarah001 on Tue Aug 17, 2010 7:39 pm

What about good old fashioned co-codomal Sebby? It's quite a good painkiller if you can take it with your other meds.
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Re: officially diagnosed....

Post  jules on Thu Aug 19, 2010 2:36 am

Hey everyone..i have written under other topics..this is to Julia. If the amitrip. does not work, try Lyrica. Lyrica has taken my pain away by about 95%. it has been a miracle for me. it is used for people w/ fibromyalgia. I like others, have tried everything else. i never did try amitrip. but, tried it years ago for headaches and for me..i became a zombie. i have had no side effects w lyrica. i'm on 150 mgs. can go up to 300%. i am slowly tapering off my neurontin (was at 3000 mgs)...that helped cut the pain by about 40%. now that the pain is controlled, i am doing physical therapy. i am working w/ a pelvic pain specialist. i am truly hopeful that this will get even better.

keep on trying! if amitrip. doesn't help try Lyrica. I am so happy.

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Re: officially diagnosed....

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