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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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officially diagnosed....

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officially diagnosed....

Post  julia on Mon Aug 02, 2010 9:44 pm

with vulvodynia. by my gyno, so i'm an official member of the club now unfortunately! the consultant will write to my gp for me to take amytriptyline as i have done previously. Thought I would tell you all the news, but I'm in a weird mood about it after 3 years of waiting for a diagnosis, here it is.

xxx

julia

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Re: officially diagnosed....

Post  Sebby (Admin) on Tue Aug 03, 2010 11:36 am


Why on earth does it take them 3years to diagnoise! Its silly...I had to diagnoise myself and eventually the gynea agreed!

Welcome to the club then, I should make up sum sort of memebership badges lol Lets hope we will all be members of the 'Im now out of pain' club very soonnnnnnn!!!

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Re: officially diagnosed....

Post  Julie on Wed Aug 11, 2010 6:55 pm

I was just prescribed amitriptyline (elavil) today as well... any progress? I didn't know how I felt about the idea of it being a nerve/pain receptor problem but any relief would be good!

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Re: officially diagnosed....

Post  Sarah001 on Wed Aug 11, 2010 7:19 pm

Funnily enough I keep being sent away with information leaflets that imply Amitriptyline is a temporary thing for vulvodynia and after 6 months or so most women should be able to come off it but that's not what I'm reading online from real women!

I was really worried about side effects from the Ami when I was given it for my musculoskeletal pain and the majority of people I told didn't help by claiming it would make me "like a zombie" and "completely loopy" so I started by chopping the tablets in half and taking half the dose to see how I felt. After a couple of weeks I'd got past feeling drowsy so I went to a whole tablet and the drowsiness started again so I'm working my way through it again until I up the dose some more. I get a terrible dry mouth with it though and have to drink nearly constantly to be able to speak!! If you keep taking it the side effects do actually seem to decrease as your body gets used to it so it's not too bad and I would liken the drowsiness to how I feel if I have a big glass of red wine so it's quite nice as long as you don't have to drive! I'm not at a high enough dose to get much pain relief yet but I'm working on it.

What bothers me is just because we can't feel our clothes rubbing on the skin and making it redder and sorer doesn't mean it isn't still happening so I try and stay sensible about what I wear and do etc.
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Re: officially diagnosed....

Post  julia on Tue Aug 17, 2010 1:03 pm

that sounds so bad Sad

I was on amytriptyline for this beforea bout 2 yrs ago. I can't remember how much it helped because I was on a cocktail of a lot of different things at the time.

But I do remember when I came off of them I felt very low.. damn antidepressants.

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Re: officially diagnosed....

Post  Sarah001 on Tue Aug 17, 2010 1:46 pm

Do you know Julia I find if I miss one tablet I get really irritated! They must be having a calming effect on me I think. My partner says I'm a naturally irritable person so when I don't take a tablet I revert back to my normal self Rolling Eyes but it feels alot worse than that and I feel so annoyed all the time. For the first few days I took them I actually felt very depressed and down but it does say in the leaflet they can do this. Weird isn't it? An anti-depressant makes you more depressed to begin with! I'm not a fan of taking medication but I frankly can't deal with all my joint pains, the Fibromyalgia and this hateful vulvodynia without them so I'm resigned to a life of medication now.
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Re: officially diagnosed....

Post  Sebby (Admin) on Tue Aug 17, 2010 7:33 pm


Im on Citalopram and Buspirone for anxiety anyway so I dont think it would be a good idea to change to another anti depressant..I do think I would get side effects.

Im pretty scared also of trying the anti-convulsants as they have a warning of increased risk of depressive symptoms.

I used to self harm so I have to be careful

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Re: officially diagnosed....

Post  Sarah001 on Tue Aug 17, 2010 7:39 pm

What about good old fashioned co-codomal Sebby? It's quite a good painkiller if you can take it with your other meds.
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Re: officially diagnosed....

Post  jules on Thu Aug 19, 2010 2:36 am

Hey everyone..i have written under other topics..this is to Julia. If the amitrip. does not work, try Lyrica. Lyrica has taken my pain away by about 95%. it has been a miracle for me. it is used for people w/ fibromyalgia. I like others, have tried everything else. i never did try amitrip. but, tried it years ago for headaches and for me..i became a zombie. i have had no side effects w lyrica. i'm on 150 mgs. can go up to 300%. i am slowly tapering off my neurontin (was at 3000 mgs)...that helped cut the pain by about 40%. now that the pain is controlled, i am doing physical therapy. i am working w/ a pelvic pain specialist. i am truly hopeful that this will get even better.

keep on trying! if amitrip. doesn't help try Lyrica. I am so happy.

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Re: officially diagnosed....

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