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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Vulvodynia??? What do I have?????

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Vulvodynia??? What do I have?????

Post  katie220 on Sun Sep 30, 2012 7:09 pm

Hi, I'm new to this website. I decided to go here because there just aren't very many people to talk to when it comes to this topic. I've been suffering from a "mild" (actually extremely irritating) burning throughout my vagnia for the past year and a half.

At first I thought I had a yeast problem, so I went to the store and bought some monistat. Didn't work (not surprising). The pain was so bad at first that I would cry. Luckily the pain became less severe over time but it's just this lingering, irritating thing that will never go away.

I have seen probably five doctors over a year and a half. They told me I had a bacterial problem and gave me round after round of anti biotics that never worked, not even temporarily. He did a "Q-Tip test on me that didn't hurt, so he told me a didn't have vulvodynia and kept saying it's "extremely rare" over and over again. Then a doctor prescribed me with boric acid suppositories that didn't do anything either. I have tried everything. I even quit smoking and drastically lessened my caffeine intake which hasn't minimized it that much.

Could any of you give me your opinion? Do you think I have vulvodynia or something else? At this point I am tired of seeing doctors and I just want it to go away.

katie220

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Re: Vulvodynia??? What do I have?????

Post  abovetheknee on Mon Oct 01, 2012 9:18 am

Hi Katie

Doctors do like everything to be black and white dont they? Your story so far sounds alot like mine, ie showing ones private parts to a wide selection of medical folk who ALL say 'well I cant SEE anything wrong, maybe a little red.....hmmmm have you tried anti fungal??' - very frustrating. Have you asked your doctor to refer you to a vulval clinic? do you have those in the states? Someone there should know about Vulvodynia. I dont think the 'q-tip test' is that great really - I had the exact same test & I really didnt feel it meant anything. The condition can vary so much from person to person, just because on a particular day you can touch it gently with a q-tip and its not agony does not mean you have nothing wrong down there. Vulvodynia can be touch sensitive or the pain can just spontaneously happen OR it can be a mixture of the two, which is what I have, & for a long time I thought because it didnt fit neatly into the various 'official' diagnosis it meant I must have someting else/I was a freak. Not so. And it can vary so much from week to week, day to day. So dont give up, dont take any more thrush/yeast treatments or any of that stuff unless you are sure it actually IS thrush, & insist on seeing someone who actually knows what they're talking about.

There are some treatments available to try for vulvodynia, and after reading alot of the posts on this site it seems to me that for some women, some of the treatments really do work. SO there IS hope, dont give up, read up on it, & then when you do get to see a specialist you'll be able to have an informed discussion & be able to work out what treatments you could try. I think its good you're trying to do something about it & that you have engaged with this forum - I wasted alot of time trying to pretend it wasnt happening & would go away by itself. I now think that is unlikely.

Best of luck to you, I really hope you shift it!!

abovetheknee

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Re:

Post  katie220 on Mon Oct 01, 2012 6:31 pm

Thanks for the reply and finally someone understands what I mean! I don't think the Q-tip test is all that accurate either. My doctor just relies on that to diagnose me and nothing else. I went to another doctor and she sent me to a pelvic floor therapist although I kept telling them it's not muscle tightness that is giving me an issue. I'm almost positive it is hormonal because I can track on a calender how bad my pain will be. It is 90 percent gone when I ovulate and progressively gets worse as I get closer and closer to my period. I have a feeling it is a low estrogen problem and my doctor put me on low dose birth control of all things. When I take them I have pain all month.

Do you know of a website I can go to that can refer me to a specialist? I live in the midwest and we don't have that many specialists around here Sad

katie220

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Re: Vulvodynia??? What do I have?????

Post  Alana3 on Mon Oct 01, 2012 8:37 pm

Hey Katie,

I live in Florida and just went to an amazing doctor here today- I feel like he's going to be awesome and he's a specialist. There is also another specialist in Orlando (I didn't like her) and another one in D.C. and New York. This is definetely something that can be made better. And acupuncture has helped me a lot. Message me if you need any advice or the doctors names that I have used. Be careful I was put on 27 scripts and acycolvir which is a herpes drug, I don't have herpes! They said it could help. This doctor said it was BS. So be careful, and if it doesn't sound right it probably isn't. Don't put lots of stuff up there it irritates it worse.

Alana3

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Re: Vulvodynia??? What do I have?????

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