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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Vulvodynia??? What do I have?????

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Vulvodynia??? What do I have?????

Post  katie220 on Sun Sep 30, 2012 7:09 pm

Hi, I'm new to this website. I decided to go here because there just aren't very many people to talk to when it comes to this topic. I've been suffering from a "mild" (actually extremely irritating) burning throughout my vagnia for the past year and a half.

At first I thought I had a yeast problem, so I went to the store and bought some monistat. Didn't work (not surprising). The pain was so bad at first that I would cry. Luckily the pain became less severe over time but it's just this lingering, irritating thing that will never go away.

I have seen probably five doctors over a year and a half. They told me I had a bacterial problem and gave me round after round of anti biotics that never worked, not even temporarily. He did a "Q-Tip test on me that didn't hurt, so he told me a didn't have vulvodynia and kept saying it's "extremely rare" over and over again. Then a doctor prescribed me with boric acid suppositories that didn't do anything either. I have tried everything. I even quit smoking and drastically lessened my caffeine intake which hasn't minimized it that much.

Could any of you give me your opinion? Do you think I have vulvodynia or something else? At this point I am tired of seeing doctors and I just want it to go away.

katie220

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Re: Vulvodynia??? What do I have?????

Post  abovetheknee on Mon Oct 01, 2012 9:18 am

Hi Katie

Doctors do like everything to be black and white dont they? Your story so far sounds alot like mine, ie showing ones private parts to a wide selection of medical folk who ALL say 'well I cant SEE anything wrong, maybe a little red.....hmmmm have you tried anti fungal??' - very frustrating. Have you asked your doctor to refer you to a vulval clinic? do you have those in the states? Someone there should know about Vulvodynia. I dont think the 'q-tip test' is that great really - I had the exact same test & I really didnt feel it meant anything. The condition can vary so much from person to person, just because on a particular day you can touch it gently with a q-tip and its not agony does not mean you have nothing wrong down there. Vulvodynia can be touch sensitive or the pain can just spontaneously happen OR it can be a mixture of the two, which is what I have, & for a long time I thought because it didnt fit neatly into the various 'official' diagnosis it meant I must have someting else/I was a freak. Not so. And it can vary so much from week to week, day to day. So dont give up, dont take any more thrush/yeast treatments or any of that stuff unless you are sure it actually IS thrush, & insist on seeing someone who actually knows what they're talking about.

There are some treatments available to try for vulvodynia, and after reading alot of the posts on this site it seems to me that for some women, some of the treatments really do work. SO there IS hope, dont give up, read up on it, & then when you do get to see a specialist you'll be able to have an informed discussion & be able to work out what treatments you could try. I think its good you're trying to do something about it & that you have engaged with this forum - I wasted alot of time trying to pretend it wasnt happening & would go away by itself. I now think that is unlikely.

Best of luck to you, I really hope you shift it!!

abovetheknee

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Re:

Post  katie220 on Mon Oct 01, 2012 6:31 pm

Thanks for the reply and finally someone understands what I mean! I don't think the Q-tip test is all that accurate either. My doctor just relies on that to diagnose me and nothing else. I went to another doctor and she sent me to a pelvic floor therapist although I kept telling them it's not muscle tightness that is giving me an issue. I'm almost positive it is hormonal because I can track on a calender how bad my pain will be. It is 90 percent gone when I ovulate and progressively gets worse as I get closer and closer to my period. I have a feeling it is a low estrogen problem and my doctor put me on low dose birth control of all things. When I take them I have pain all month.

Do you know of a website I can go to that can refer me to a specialist? I live in the midwest and we don't have that many specialists around here Sad

katie220

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Re: Vulvodynia??? What do I have?????

Post  Alana3 on Mon Oct 01, 2012 8:37 pm

Hey Katie,

I live in Florida and just went to an amazing doctor here today- I feel like he's going to be awesome and he's a specialist. There is also another specialist in Orlando (I didn't like her) and another one in D.C. and New York. This is definetely something that can be made better. And acupuncture has helped me a lot. Message me if you need any advice or the doctors names that I have used. Be careful I was put on 27 scripts and acycolvir which is a herpes drug, I don't have herpes! They said it could help. This doctor said it was BS. So be careful, and if it doesn't sound right it probably isn't. Don't put lots of stuff up there it irritates it worse.

Alana3

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Re: Vulvodynia??? What do I have?????

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