Vulvodynia Support
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» Hope to all my suffering ladies
Advice for my mother - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Advice for my mother - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Advice for my mother - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Advice for my mother - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Advice for my mother - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Advice for my mother - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Advice for my mother - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Advice for my mother - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Advice for my mother - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Advice for my mother

+2
maudie
BerylH
6 posters

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Post  meelie Fri Dec 06, 2013 7:31 pm

Cool, okay so I'm older than you. Have you found a Dr.? I can def. recommend a PT. There are only two in the metro area that speciailize in V. She is in Decatur. The other one I think is in Alpharetta. I used to keep my horse is Palmetto.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  Guest Fri Dec 06, 2013 9:34 pm

Ok I haven't found anyone who specializes in V. I'm seeing a Gyn and I know more than him. That information would be great. I'm just tired of taking all the pills.

Guest
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Post  meelie Sat Dec 07, 2013 1:48 am

My gyn doesn't specialize in V but she does know about it and the meds usually given. But the PT does specialize in it. Have you determined that yours might be pelvic floor dysfunction? My PT is Laura Higgins and Decatur Hand and Physical Therapy 404-296-8512. I needed a referrel for ins. to help pay, don't know what your situation is. What meds are you on? Did you write your story on here? If not, care to share. Did you want my gyn name also. I do suggest a female gyn, they seem to have much more empathy with us than men do. I've had good gyns who are male and female but I truly believe a good female beats a good male any day because they can identify with us, but the trick here is to get a good one:) Before I went to mine I was seeing a male gyn with many years experience who actually, finally answered yes to my question?". I had to actually find it myself on the internet after weeks of his "treating" me for infection, hormones, etc. Then his only answer was Estrace cream and SHOTs in my twott that he even admitted only works 1/2 the time! No thank you.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  Guest Sat Dec 07, 2013 5:34 am

I think I did share, but I don't mind doing it here. I was diagnosed with V in 2005 by a urologist. Since then I've been on every drug I think they make. Currently I am on gabapentin 1200mg, effexor 150mg, and lidocaine ointment 5%. It is unprovoked and I want to cry as I'm writing this. My GYN thinks it came from the instruments used for my vaginal hysterectomy in 2001. I've had no shots no mention of pt and no mention of surgery. I can see and feel scar tissue on the left side of the vestibule and that is where my pain radiates from. Everything hurts back and legs included.

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Post  Guest Sat Dec 07, 2013 6:10 am

Oh and I have IBS which keeps me constipated which has caused thrombosed hemorroids. I am a big body of ailments and I see no relief any time soon.

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Post  Guest Sat Dec 07, 2013 6:12 am

I'm going to see a new gyn next month. Female. Maybe she will be able to help me.

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