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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Advice for my mother

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Re: Advice for my mother

Post  meelie on Fri Dec 06, 2013 7:31 pm

Cool, okay so I'm older than you. Have you found a Dr.? I can def. recommend a PT. There are only two in the metro area that speciailize in V. She is in Decatur. The other one I think is in Alpharetta. I used to keep my horse is Palmetto.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Fri Dec 06, 2013 9:34 pm

Ok I haven't found anyone who specializes in V. I'm seeing a Gyn and I know more than him. That information would be great. I'm just tired of taking all the pills.

lonelyone48

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Re: Advice for my mother

Post  meelie on Sat Dec 07, 2013 1:48 am

My gyn doesn't specialize in V but she does know about it and the meds usually given. But the PT does specialize in it. Have you determined that yours might be pelvic floor dysfunction? My PT is Laura Higgins and Decatur Hand and Physical Therapy 404-296-8512. I needed a referrel for ins. to help pay, don't know what your situation is. What meds are you on? Did you write your story on here? If not, care to share. Did you want my gyn name also. I do suggest a female gyn, they seem to have much more empathy with us than men do. I've had good gyns who are male and female but I truly believe a good female beats a good male any day because they can identify with us, but the trick here is to get a good one:) Before I went to mine I was seeing a male gyn with many years experience who actually, finally answered yes to my question?". I had to actually find it myself on the internet after weeks of his "treating" me for infection, hormones, etc. Then his only answer was Estrace cream and SHOTs in my twott that he even admitted only works 1/2 the time! No thank you.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 5:34 am

I think I did share, but I don't mind doing it here. I was diagnosed with V in 2005 by a urologist. Since then I've been on every drug I think they make. Currently I am on gabapentin 1200mg, effexor 150mg, and lidocaine ointment 5%. It is unprovoked and I want to cry as I'm writing this. My GYN thinks it came from the instruments used for my vaginal hysterectomy in 2001. I've had no shots no mention of pt and no mention of surgery. I can see and feel scar tissue on the left side of the vestibule and that is where my pain radiates from. Everything hurts back and legs included.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:10 am

Oh and I have IBS which keeps me constipated which has caused thrombosed hemorroids. I am a big body of ailments and I see no relief any time soon.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:12 am

I'm going to see a new gyn next month. Female. Maybe she will be able to help me.

lonelyone48

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Re: Advice for my mother

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