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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Advice for my mother

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Re: Advice for my mother

Post  meelie on Fri Dec 06, 2013 7:31 pm

Cool, okay so I'm older than you. Have you found a Dr.? I can def. recommend a PT. There are only two in the metro area that speciailize in V. She is in Decatur. The other one I think is in Alpharetta. I used to keep my horse is Palmetto.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Fri Dec 06, 2013 9:34 pm

Ok I haven't found anyone who specializes in V. I'm seeing a Gyn and I know more than him. That information would be great. I'm just tired of taking all the pills.

lonelyone48

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Re: Advice for my mother

Post  meelie on Sat Dec 07, 2013 1:48 am

My gyn doesn't specialize in V but she does know about it and the meds usually given. But the PT does specialize in it. Have you determined that yours might be pelvic floor dysfunction? My PT is Laura Higgins and Decatur Hand and Physical Therapy 404-296-8512. I needed a referrel for ins. to help pay, don't know what your situation is. What meds are you on? Did you write your story on here? If not, care to share. Did you want my gyn name also. I do suggest a female gyn, they seem to have much more empathy with us than men do. I've had good gyns who are male and female but I truly believe a good female beats a good male any day because they can identify with us, but the trick here is to get a good one:) Before I went to mine I was seeing a male gyn with many years experience who actually, finally answered yes to my question?". I had to actually find it myself on the internet after weeks of his "treating" me for infection, hormones, etc. Then his only answer was Estrace cream and SHOTs in my twott that he even admitted only works 1/2 the time! No thank you.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 5:34 am

I think I did share, but I don't mind doing it here. I was diagnosed with V in 2005 by a urologist. Since then I've been on every drug I think they make. Currently I am on gabapentin 1200mg, effexor 150mg, and lidocaine ointment 5%. It is unprovoked and I want to cry as I'm writing this. My GYN thinks it came from the instruments used for my vaginal hysterectomy in 2001. I've had no shots no mention of pt and no mention of surgery. I can see and feel scar tissue on the left side of the vestibule and that is where my pain radiates from. Everything hurts back and legs included.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:10 am

Oh and I have IBS which keeps me constipated which has caused thrombosed hemorroids. I am a big body of ailments and I see no relief any time soon.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:12 am

I'm going to see a new gyn next month. Female. Maybe she will be able to help me.

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Re: Advice for my mother

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