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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Advice for my mother

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Re: Advice for my mother

Post  meelie on Fri Dec 06, 2013 7:31 pm

Cool, okay so I'm older than you. Have you found a Dr.? I can def. recommend a PT. There are only two in the metro area that speciailize in V. She is in Decatur. The other one I think is in Alpharetta. I used to keep my horse is Palmetto.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Fri Dec 06, 2013 9:34 pm

Ok I haven't found anyone who specializes in V. I'm seeing a Gyn and I know more than him. That information would be great. I'm just tired of taking all the pills.

lonelyone48

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Re: Advice for my mother

Post  meelie on Sat Dec 07, 2013 1:48 am

My gyn doesn't specialize in V but she does know about it and the meds usually given. But the PT does specialize in it. Have you determined that yours might be pelvic floor dysfunction? My PT is Laura Higgins and Decatur Hand and Physical Therapy 404-296-8512. I needed a referrel for ins. to help pay, don't know what your situation is. What meds are you on? Did you write your story on here? If not, care to share. Did you want my gyn name also. I do suggest a female gyn, they seem to have much more empathy with us than men do. I've had good gyns who are male and female but I truly believe a good female beats a good male any day because they can identify with us, but the trick here is to get a good one:) Before I went to mine I was seeing a male gyn with many years experience who actually, finally answered yes to my question?". I had to actually find it myself on the internet after weeks of his "treating" me for infection, hormones, etc. Then his only answer was Estrace cream and SHOTs in my twott that he even admitted only works 1/2 the time! No thank you.

meelie

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 5:34 am

I think I did share, but I don't mind doing it here. I was diagnosed with V in 2005 by a urologist. Since then I've been on every drug I think they make. Currently I am on gabapentin 1200mg, effexor 150mg, and lidocaine ointment 5%. It is unprovoked and I want to cry as I'm writing this. My GYN thinks it came from the instruments used for my vaginal hysterectomy in 2001. I've had no shots no mention of pt and no mention of surgery. I can see and feel scar tissue on the left side of the vestibule and that is where my pain radiates from. Everything hurts back and legs included.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:10 am

Oh and I have IBS which keeps me constipated which has caused thrombosed hemorroids. I am a big body of ailments and I see no relief any time soon.

lonelyone48

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Re: Advice for my mother

Post  lonelyone48 on Sat Dec 07, 2013 6:12 am

I'm going to see a new gyn next month. Female. Maybe she will be able to help me.

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Re: Advice for my mother

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