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I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Mar 09, 2018 6:17 pm by Tunes25
Hello!
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
Comments: 4
I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Mon Mar 12, 2018 4:33 pm by totallycured
Hi,
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Comments: 3
Hi Im from Australia :)
Sat Jan 08, 2011 1:08 am by emma
Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
Comments: 35
Somebody please help me...
Fri Nov 24, 2017 8:05 am by Andlag
Hey everyone,
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
Comments: 14
Lidocaine with condoms?
Wed Mar 21, 2018 10:44 pm by AEM1
Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks!
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …
Comments: 1
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 23
Recently Diagnosed which has motivated my research study
Tue Mar 06, 2018 4:54 pm by ebclose2free
Hi everyone,
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
Comments: 0
MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering
Dear all,
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Comments: 3
New and desperate for advice
Sat Mar 03, 2018 2:37 pm by srbry
Hi everyone,
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
Comments: 3
Advice for my mother
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Re: Advice for my mother
Cool, okay so I'm older than you. Have you found a Dr.? I can def. recommend a PT. There are only two in the metro area that speciailize in V. She is in Decatur. The other one I think is in Alpharetta. I used to keep my horse is Palmetto.
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: Advice for my mother
Ok I haven't found anyone who specializes in V. I'm seeing a Gyn and I know more than him. That information would be great. I'm just tired of taking all the pills.
lonelyone48- Posts : 39
Join date : 2013-12-01
Re: Advice for my mother
My gyn doesn't specialize in V but she does know about it and the meds usually given. But the PT does specialize in it. Have you determined that yours might be pelvic floor dysfunction? My PT is Laura Higgins and Decatur Hand and Physical Therapy 404-296-8512. I needed a referrel for ins. to help pay, don't know what your situation is. What meds are you on? Did you write your story on here? If not, care to share. Did you want my gyn name also. I do suggest a female gyn, they seem to have much more empathy with us than men do. I've had good gyns who are male and female but I truly believe a good female beats a good male any day because they can identify with us, but the trick here is to get a good one:) Before I went to mine I was seeing a male gyn with many years experience who actually, finally answered yes to my question?". I had to actually find it myself on the internet after weeks of his "treating" me for infection, hormones, etc. Then his only answer was Estrace cream and SHOTs in my twott that he even admitted only works 1/2 the time! No thank you.
meelie- Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga
Re: Advice for my mother
I think I did share, but I don't mind doing it here. I was diagnosed with V in 2005 by a urologist. Since then I've been on every drug I think they make. Currently I am on gabapentin 1200mg, effexor 150mg, and lidocaine ointment 5%. It is unprovoked and I want to cry as I'm writing this. My GYN thinks it came from the instruments used for my vaginal hysterectomy in 2001. I've had no shots no mention of pt and no mention of surgery. I can see and feel scar tissue on the left side of the vestibule and that is where my pain radiates from. Everything hurts back and legs included.
lonelyone48- Posts : 39
Join date : 2013-12-01
Re: Advice for my mother
Oh and I have IBS which keeps me constipated which has caused thrombosed hemorroids. I am a big body of ailments and I see no relief any time soon.
lonelyone48- Posts : 39
Join date : 2013-12-01
Re: Advice for my mother
I'm going to see a new gyn next month. Female. Maybe she will be able to help me.
lonelyone48- Posts : 39
Join date : 2013-12-01
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» HELP!! Topical cream?
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» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone