Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
Log in

I forgot my password

Similar topics
Latest topics
» Hope to all my suffering ladies
Taken over by the pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Taken over by the pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Taken over by the pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Taken over by the pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Taken over by the pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Taken over by the pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Taken over by the pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Taken over by the pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Taken over by the pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Taken over by the pain

2 posters

Vulvodynia Support :: Your Story

Go down

Taken over by the pain Empty Taken over by the pain

Post  painfulV Mon Nov 05, 2012 8:23 pm

Hey everyone,
I am 19 years old and just recently formally diagnosed with vulvodynia and interstitial cystitis. Needless to say, I am in constant pain and discomfort. So far I have tried taking Uribel for my bladder and using some nameless cream for my vulvodynia. Both of these have been to no avail...What are some treatments that have helped you?? As far as oral and topical medications?? Do any of you use any kind of numbing gel/cream before sex? This is my worst problem...I am in a relationship and have been for 3 years and we used to have an AMAZING you-know-what life, then this set in. It has completely changed our relationship. I just broke the news to him yesterday and he was upset to hear what I am suffering with is chronic and not able to be cured however promised he would work with me and loves me regardless of those kinds of things. Please give me tips on how to keep my relationship alive in spite of this awful condition!!! I also have to sell my horse this month because I can no longer ride him since I am in so much pain and discomfort. These stupid conditions are breaking my heart as I feel like I am losing my loved ones because of it; it is even difficult to hang out with friends or go to college anymore (mostly because of the IC). I feel like this condition is taking over me and my life.. Sorry to be so morose but I know this isn't exactly the most flowery condition or situation.PLEASE any advice or just sharing stories to help me not feel so terrible would be greatly appreciated!!!!

painfulV

Posts : 1
Join date : 2012-11-05

Back to top Go down

Taken over by the pain Empty Re: Taken over by the pain

Post  Ceriane Wed Nov 07, 2012 7:19 pm

While you do everything you can to cure the condition, you can still be intimate with your partner in ways that don't involve penetration, just take it out of the equation, so that you are not backing off through fear and then getting screwed up about it if he initiates anything, and then you won't be afraid to initiate anything either....just do what feels good, you can find ways of having a sex life without pain.

Ceriane

Posts : 76
Join date : 2012-02-16

Back to top Go down

Back to top

- Similar topics

Vulvodynia Support :: Your Story

 
Permissions in this forum:
You cannot reply to topics in this forum