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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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My story (prev and now)

Post  xmandi88x on Mon Apr 22, 2013 2:05 pm

Hi there,

When i was 21 i suffered with Vulvodynia, Basically my vagina was so sore and burning, my thighs and also my bum cheeks and just under them would also be very sore and would burn, i would get a gel type discharge and then every so often i would spot a little bit of blood but this would be more pinkish then when you had your period and also would from time to time get a brown discarge. i went to doctors who didnt know what was up so referred me to the gyno's. It was them who told me i had Vulvodynia and was perscribed Amitriptyline. over thext 2 years i upped my dose and reached 70mg. I changed alot of things like no perfumed shampoo / conditioner / body scrubs etc i only ever wore cotton underwear and soft clothing that wouldnt irritate my body. Within time i became cured and didnt suffer with it for nearly 2 years however the past week and half it has all come back again. I became ill last year and am currently suffering with another condition which is quite rare so not sure if the medication im on for it has triggered it or whether its just because my body is so run down. Im due back at docs tomorrow to see if i can be referred back to gyno or to get the amitriptyline back but i do know that this medication im on at the moment may not be suitable with ami. Does anyone have any tips on how to help with the burning. I am currently off work at the moment due to the other illness i have but cant believe i now i have this on top it too. I could tell something was wrong with my body over the last couple of weeks as i was feeling pins and needles, burning arms, funny feelings in my body, joints ached and the gel type discharge again (very clear discharge).

Please note that you can get better as i did im just annoyed its come back when i thought that aspect was completely in the past. x

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Post  Alana3 on Mon Apr 22, 2013 3:03 pm

Get some lidocaine from your doctor it will burn when putting it on, but it quickly numbs it. You can also get a compound of that amitryptaline (sp) and gabapentin mixed with lidocaine assuming you're in the states. You could try a warm bath with nothing in it, if anything that will relax you. What worked for me was PT she taught me how to do exercises to relieve muscle tension. Other than that it sucks!

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Post  xmandi88x on Mon Apr 22, 2013 3:14 pm

i use lidocaine already but try and use it sparingly as its only a little tube. im in the uk so not sure if i can get the cream but im at docs tomorrow see if i can be referred back to gyno. x

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Post  Sarah001 on Mon Apr 22, 2013 5:26 pm

Can I ask what the other rare condition is? You don't have to say if you don't want to I just wondered if it might be connected.
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Re: My story (prev and now)

Post  xmandi88x on Mon Apr 22, 2013 7:48 pm

i have vestibular migraines. x

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Post  Alana3 on Mon Apr 22, 2013 8:45 pm

what are vestibular migraines?

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Post  xmandi88x on Wed Apr 24, 2013 9:11 am

I have dizziness, off balance, feeling like I'm moving but I'm still, funny vision like bouncy and strained, sore eyes, headaches, neck pains, fatigue etc and then now this. X

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Post  Alana3 on Wed Apr 24, 2013 3:00 pm

Isn't that a migraine? I have that stuff too, it sucks, if it is migraines, can they do botox for you? I was considering it. There's also a supplement from vitamin shoppe I just started taking and it works called Migrerelief, I believe. If I'm misunderstanding something though disregard.

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Post  xmandi88x on Thu Apr 25, 2013 7:06 am

It is a migraine a vestibular migraine but not as easy to treat there is no cure over the counter meds shouldn't be taken for too long I've had this illness for over a year taking over the counter meds too much can actually cause re bound headaches I'm on preventative medication but it depends on the person and if it works for them I've only been on it 8 weeks so early days yet.

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Post  Alana3 on Thu Apr 25, 2013 10:45 am

Never heard of that hope luck I hope it works for you

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Re: My story (prev and now)

Post  keepdreaming on Fri Apr 26, 2013 8:24 am

Hi There

I was diagnosed with Provoked vestibulodynia two months ago but having it for a bit more than a year. The curious thing about your post is that I also have vestibular migraines but I've been having them for at least 7 years, some of the doctors I've seen think that there's a link between my Vestibular migraines and my vulvodynia, something to do with the nerves sensitization.

For the burning try lidocaine.

I hope it gets better!

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