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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
My story (prev and now)
4 posters
Page 1 of 1
My story (prev and now)
Hi there,
When i was 21 i suffered with Vulvodynia, Basically my vagina was so sore and burning, my thighs and also my bum cheeks and just under them would also be very sore and would burn, i would get a gel type discharge and then every so often i would spot a little bit of blood but this would be more pinkish then when you had your period and also would from time to time get a brown discarge. i went to doctors who didnt know what was up so referred me to the gyno's. It was them who told me i had Vulvodynia and was perscribed Amitriptyline. over thext 2 years i upped my dose and reached 70mg. I changed alot of things like no perfumed shampoo / conditioner / body scrubs etc i only ever wore cotton underwear and soft clothing that wouldnt irritate my body. Within time i became cured and didnt suffer with it for nearly 2 years however the past week and half it has all come back again. I became ill last year and am currently suffering with another condition which is quite rare so not sure if the medication im on for it has triggered it or whether its just because my body is so run down. Im due back at docs tomorrow to see if i can be referred back to gyno or to get the amitriptyline back but i do know that this medication im on at the moment may not be suitable with ami. Does anyone have any tips on how to help with the burning. I am currently off work at the moment due to the other illness i have but cant believe i now i have this on top it too. I could tell something was wrong with my body over the last couple of weeks as i was feeling pins and needles, burning arms, funny feelings in my body, joints ached and the gel type discharge again (very clear discharge).
Please note that you can get better as i did im just annoyed its come back when i thought that aspect was completely in the past. x
When i was 21 i suffered with Vulvodynia, Basically my vagina was so sore and burning, my thighs and also my bum cheeks and just under them would also be very sore and would burn, i would get a gel type discharge and then every so often i would spot a little bit of blood but this would be more pinkish then when you had your period and also would from time to time get a brown discarge. i went to doctors who didnt know what was up so referred me to the gyno's. It was them who told me i had Vulvodynia and was perscribed Amitriptyline. over thext 2 years i upped my dose and reached 70mg. I changed alot of things like no perfumed shampoo / conditioner / body scrubs etc i only ever wore cotton underwear and soft clothing that wouldnt irritate my body. Within time i became cured and didnt suffer with it for nearly 2 years however the past week and half it has all come back again. I became ill last year and am currently suffering with another condition which is quite rare so not sure if the medication im on for it has triggered it or whether its just because my body is so run down. Im due back at docs tomorrow to see if i can be referred back to gyno or to get the amitriptyline back but i do know that this medication im on at the moment may not be suitable with ami. Does anyone have any tips on how to help with the burning. I am currently off work at the moment due to the other illness i have but cant believe i now i have this on top it too. I could tell something was wrong with my body over the last couple of weeks as i was feeling pins and needles, burning arms, funny feelings in my body, joints ached and the gel type discharge again (very clear discharge).
Please note that you can get better as i did im just annoyed its come back when i thought that aspect was completely in the past. x
xmandi88x- Posts : 8
Join date : 2013-04-22
Re: My story (prev and now)
Get some lidocaine from your doctor it will burn when putting it on, but it quickly numbs it. You can also get a compound of that amitryptaline (sp) and gabapentin mixed with lidocaine assuming you're in the states. You could try a warm bath with nothing in it, if anything that will relax you. What worked for me was PT she taught me how to do exercises to relieve muscle tension. Other than that it sucks!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: My story (prev and now)
i use lidocaine already but try and use it sparingly as its only a little tube. im in the uk so not sure if i can get the cream but im at docs tomorrow see if i can be referred back to gyno. x
xmandi88x- Posts : 8
Join date : 2013-04-22
Re: My story (prev and now)
Can I ask what the other rare condition is? You don't have to say if you don't want to I just wondered if it might be connected.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: My story (prev and now)
I have dizziness, off balance, feeling like I'm moving but I'm still, funny vision like bouncy and strained, sore eyes, headaches, neck pains, fatigue etc and then now this. X
xmandi88x- Posts : 8
Join date : 2013-04-22
Re: My story (prev and now)
Isn't that a migraine? I have that stuff too, it sucks, if it is migraines, can they do botox for you? I was considering it. There's also a supplement from vitamin shoppe I just started taking and it works called Migrerelief, I believe. If I'm misunderstanding something though disregard.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: My story (prev and now)
It is a migraine a vestibular migraine but not as easy to treat there is no cure over the counter meds shouldn't be taken for too long I've had this illness for over a year taking over the counter meds too much can actually cause re bound headaches I'm on preventative medication but it depends on the person and if it works for them I've only been on it 8 weeks so early days yet.
xmandi88x- Posts : 8
Join date : 2013-04-22
Re: My story (prev and now)
Never heard of that hope luck I hope it works for you
Alana3- Posts : 1093
Join date : 2012-09-25
Re: My story (prev and now)
Hi There
I was diagnosed with Provoked vestibulodynia two months ago but having it for a bit more than a year. The curious thing about your post is that I also have vestibular migraines but I've been having them for at least 7 years, some of the doctors I've seen think that there's a link between my Vestibular migraines and my vulvodynia, something to do with the nerves sensitization.
For the burning try lidocaine.
I hope it gets better!
I was diagnosed with Provoked vestibulodynia two months ago but having it for a bit more than a year. The curious thing about your post is that I also have vestibular migraines but I've been having them for at least 7 years, some of the doctors I've seen think that there's a link between my Vestibular migraines and my vulvodynia, something to do with the nerves sensitization.
For the burning try lidocaine.
I hope it gets better!
keepdreaming- Posts : 18
Join date : 2013-04-01
Age : 42
Location : Brisbane
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer