Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
Its not in your head...its actually something going on! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Its not in your head...its actually something going on! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Its not in your head...its actually something going on! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Its not in your head...its actually something going on! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Its not in your head...its actually something going on! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Its not in your head...its actually something going on! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Its not in your head...its actually something going on! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Its not in your head...its actually something going on! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Its not in your head...its actually something going on! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Its not in your head...its actually something going on!

2 posters

Vulvodynia Support :: Support and Advice

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Its not in your head...its actually something going on! Empty Its not in your head...its actually something going on!

Post  ece_123 Mon Oct 07, 2013 4:04 am

Hi all,

So today i found out that what i thought was 'in my head' was infact potentially vulvodynia. I have thought it was normal to feel pain during sex, to have the symptoms constantaly and its only taken me until i am 25 years old to do something about it and ask for help. It was a releif to know it was something and not nothing. I am married and have an amazing husband, but honestly i feel like he has lucked out. Surely all men want a partner that can "do it" every day or is that not reality? Its something i have to work through in myself and find a happy medium when it comes to a sexual realtionship. Honestly, i feel alot of shame and support is hard to find when you have family and friends just telling you to have sex and get over it. WEll of course i would if it wasnt painful and a horrible expereience!

Hopefully i can feel a bit more 'normal' as i embark on this jouney.

E x

ece_123

Posts : 1
Join date : 2013-10-07

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Its not in your head...its actually something going on! Empty Re: Its not in your head...its actually something going on!

Post  mary jane Thu Oct 10, 2013 10:11 pm

Hi,

Are you sure it's not vaginismus or something else?
I used to get burning pain with sex with all my partners except one (?). and entry dyspareunia which lasted 5 min until I relaxed my muscles?

For now, try to be positive and start visiting some doctors.
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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