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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


I hate this!!!!!

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I hate this!!!!!

Post  ameliaamelia on Wed Sep 03, 2014 12:27 am

I am really not sure what to do at this point in time. I hate this condition so much but was not told by my gyno any types of treatments available- all she gave me was the NVA self help tips for vulva skin care, and didn't even tell me the name of the condition. I will describe all my symptoms so if any of you have very similar ones/treatements that work you can let me know.

I have been prone to yeast infections all my life and over the fall I noticed an increase in them. I would also have random periods where I would have almost unbearable itching sensations from my vagina. I didn't really think much of it because usually they would go away. In January I had one incident where the I itched the area so much that it caused one outer lip of my vagina to swell almost 4 times the size it usually is. Towards the end of the month sex began becoming slightly painful. I could still have intercource but I could only do very basic positions that had no deep penetration, and after sex I would have slight burning, stinging, and itching from the area.

Forward to march, it became too painful to have sex. Sex felt like sharp shooting pains and it burned too much to even try. I also have this weird white pilly discharge that happens if I dont wash my vaginal area at least twice a day. I went to a doctor in april who had no clue what it was and ran several tests on me for stis and yeast infections etc. After the results being inconclusive he directed me to a gyno.

She seemed to know what my problem was right away but did not tell me the name of the condition. I only found out what the condition is called TODAY! I have felt so absolutely alone during all of this and I am so happy to finally have a name for my condition and a support network. I have broken down crying to my mom several times from feeling so alone and frustrated but she doesn't understand. My doctor only gave me the NVA self help tips and did not tell me the name of this horrible condition which made me feel even more issolated.

My symptoms include: constant redness, periodic intense itching sensations, soreness, burning, white bally discharge, and stinging (all of this is on the vulva), and in my actual vagina there is just extreme soreness if any pressure is applied. It is the most frustrating thing in the entire world. My age is 18 by the way. Non of my friends understand at all what I am going through but they feel really bad for me. I have diarrhea almost daily and I think it could be related to my condition.

The only thing I have found to help is rinsing my vulva area out with cold water. I haven't really tried anything else except for flora pills but those didnt work. I went off of my birth control pills and also have tried to modify my diet to stop my diarrhea. Please recommend treatments if you know of any that have high success rates! (I react badly to anti depressants).

I am so sorry if this entire thing was badly worded or sounded stupid. If any of you took the time to read this THANK YOU. I feel so much better after finding this website. I can not believe there is a support group. This is exactly what I needed. All I can say is this is the most frustrating thing ever and I am so sorry that so many of you have to deal with it.

ameliaamelia

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Re: I hate this!!!!!

Post  ameliaamelia on Wed Sep 03, 2014 1:37 am

Some other symptoms ive identified after reading other peoples posts:
-Strange shooting pain that goes up from vulva randomly
-Muscle cramps in toes/feet/legs/hips

ameliaamelia

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Re: I hate this!!!!!

Post  sailor_moon on Sun Sep 07, 2014 9:52 pm

Oh babe, your vulva symptoms sound exactly like mine! Itching, swelling, the discharge. The only thing that is different is the pain on touch, I don't have that.

Do you have any other symptoms or are you in good health otherwise? I am finally seeing a decent doctor and he thinks it may be hormonal, as my symptoms go in a cycle at certain times of the month....and my period is not regular. I am sick and nauseous every day. Like morning sickness but im not pregnant.

Im only 26 so I know how hard it is being a young person trying to live with this horrific condition. X
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Re: I hate this!!!!!

Post  sailor_moon on Mon Sep 08, 2014 3:56 am

Oh babe, your vulva symptoms sound exactly like mine! Itching, swelling, the discharge. The only thing that is different is the pain on touch, I don't have that.

Do you have any other symptoms or are you in good health otherwise?  I am finally seeing a decent doctor and he thinks it may be hormonal,  as my symptoms go in a cycle at certain times of the month....and my period is not regular. I am sick and nauseous every day. Like morning sickness but im not pregnant.

Im only 26 so I know how hard it is being a young person trying to live with this horrific condition.  X
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My vulvodynia has basically vanished

Post  EverythingIsDifferentNow on Fri Sep 19, 2014 11:54 pm

I'm gonna go straight to the point, try out these treatments:
-calcium citrate pills (cheap, won't upset stomach, can be taken with/without food)
-1 vitamin pill daily (natural!)
-The nerves that are shooting pain in ur leg and foot sound like you have some pelvic nerve damage, so try out pelvic muscle exercises (you don't NEED a physical therapist, you can do it at home like me, can find it on youtube)
-eat organic, low oxalate, not super acidic (Whole Foods will become your best friend, && DON'T TRY AZO CRANBERRY PILLS, they won't help you!)
-EXERCISE daily

to be honest, I dealt with problems with my Vjj since I became 13 or 14, but it got really bad this year, so I feel your pain. I couldn't go to social events, I was in a bad mood a lot of the times, and felt depressed and a bit suicidal. But doing research on my own I found my own *cure*. However, this may not work for you. It varies from woman to woman, but HONESTLY I don't see why it wouldn't.

I hope you get better. PLEASE TAKE MY ADVICE. I am young proof that this can be cured. Don't trust doctors, or at least most of them (;

EverythingIsDifferentNow

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Re: I hate this!!!!!

Post  EverythingIsDifferentNow on Fri Sep 19, 2014 11:56 pm

Btw email me if you need support and advice, I'm here for u I love you

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Re: I hate this!!!!!

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