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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

What is Vulvodynia?

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What is Vulvodynia?

Post  Sebby (Admin) on Thu Dec 03, 2009 10:46 pm

Vulvodynia - the term means "pain in the vulva" and is a description of the syndrome and not a formal diagnosis. It consists of Chronic itching, burning, rawness, stinging...bascially pain that has lasted for at least 3 months. Many women see several doctors, have several tests, get told their vulva looks ok, or its all in their head before either finding a doctor who knows enough to provide a diagnosis or discover the term "Vulvodynia" by an internet search like I did because the doctor's have never heard of it!!!

What is the Vulva? - Ok I am not patronising you I promise, but it is easy to get confused with the terms 'Vulva' and 'Vagina'. The Vagina is the canal that extends from the opening up to the cervix. The 'Vulva' is the outer tissue including the vaginal opening, labia, clitoris,urethra and the mons pubis.

Categories of Vulvadynia - Dysesthetic Vulvodynia, this includes symptoms of burning, stinging, rawness etc that comes and goes without warning anywhere within the vulvar area and can occur without being touched.
- Vulvar vestibulitis - This pain is located only around the vulvar vestible which is the shiny mucous tissue around the vaginal opening, inside the lips of the vagina. This pain is made worse by touch, such as intercourse, prolonged sitting, tight clothing etc.

Taken from 'The Vulvodynia Survival Guide' Howard I Glazer & Gae Rodke - for more information on Dr Glazer see www.vulvodynia.com


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Re: What is Vulvodynia?

Post  lunadaisy on Tue Oct 29, 2013 9:53 pm

Thank you for the definition. It seems like such an odd thing to have. I think I have had it for a long time but have tried my best to ignore or dismiss it. However, it went from acute to chronic in the past year and it consumes me and my quality of life. I am glad to find this site as I am just now figuring out what is going on with me. Strange but I only learned about this condition just the other night from a late night tv commercial for some cream that helps vulva pain....and it described the symptoms I have been having to a tee! (who would think?) I have been complaining of these symptoms for over a year and yet no doctor I have seen has pin pointed it. I saw a urologist recently because I have uti symptoms with out having a uti infection. I have thought it was a yeast infection and would buy monostate and yet that did not help the itching and burning. Anyway, I am probably writing on the wrong page or post but I feel slightly relived just knowing that there is a name for what I have and it isn't all in my head. I will be reading other post and posting my condition. I do have graves and hyperthyroid and I was wondering if this condition could be exacerbated by autoimmune disorders. Does anyone else have Graves or a hyperthyroid condition that also has vulv?


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Re: What is Vulvodynia?

Post  Alana3 on Tue Oct 29, 2013 9:57 pm

Its considered.autoimmune I have endometriosis


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Re: What is Vulvodynia?

Post  KimiKat on Sun Apr 13, 2014 12:49 pm

I have celiac disease, which is also autoimmune.


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RE: What is Vulvodynia?

Post  OBRN2007sms on Wed Feb 11, 2015 7:59 pm

I was wondering the same thing; I have lupus anticoagulant, fibromyalgia and IBS.


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re autoimmune

Post  surprisemom44 on Mon Feb 20, 2017 8:45 am

Just saw this...I have inverse psoraisis and psoriatic arthritis, these are also autoimmune diseases. I also have IBS, polycycstic ovarian syndrome, type 2 diabetes, and Lyme disease. I have been tested for Lupus and told I do not have it, but I have many of the symptoms of it.


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Re: What is Vulvodynia?

Post  jungleclover on Wed Jul 19, 2017 10:42 pm

I don't have anything autoimmune and I have this. I possibly have a semen allergy or like a hypersensitivity to yeast. Also when I get yeast it just won't go away. Horrid stuff.


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Re: What is Vulvodynia?

Post  mary jane on Sat Jul 22, 2017 9:21 pm

I think vulvodynia is a symptom and not a condition. I think it's a symptom of central sensitization, which would explain why we get a million other pain issues like back pain, coccyx pain, TMJ, IBS, etc
mary jane

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Re: What is Vulvodynia?

Post  Jenjen on Tue Oct 17, 2017 11:57 pm

Hello Ladies! Am currently experiencing relief for my diagnosed vulvodynia - using a product called Ichthammol Ointment it's a black goo called a "drawing salve". Got from Amazon...7 years of agony - raw itchy vagina and anus....also using Prebiotic vaginal suppositories....if you've suffered from vaginal strep, or weird yeast and have never recovered I would add this to your list of things to try - hope this helps....blessings...


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Re: What is Vulvodynia?

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