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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


What is Vulvodynia?

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What is Vulvodynia?

Post  Sebby (Admin) on Thu Dec 03, 2009 10:46 pm

Vulvodynia - the term means "pain in the vulva" and is a description of the syndrome and not a formal diagnosis. It consists of Chronic itching, burning, rawness, stinging...bascially pain that has lasted for at least 3 months. Many women see several doctors, have several tests, get told their vulva looks ok, or its all in their head before either finding a doctor who knows enough to provide a diagnosis or discover the term "Vulvodynia" by an internet search like I did because the doctor's have never heard of it!!!

What is the Vulva? - Ok I am not patronising you I promise, but it is easy to get confused with the terms 'Vulva' and 'Vagina'. The Vagina is the canal that extends from the opening up to the cervix. The 'Vulva' is the outer tissue including the vaginal opening, labia, clitoris,urethra and the mons pubis.

Categories of Vulvadynia - Dysesthetic Vulvodynia, this includes symptoms of burning, stinging, rawness etc that comes and goes without warning anywhere within the vulvar area and can occur without being touched.
- Vulvar vestibulitis - This pain is located only around the vulvar vestible which is the shiny mucous tissue around the vaginal opening, inside the lips of the vagina. This pain is made worse by touch, such as intercourse, prolonged sitting, tight clothing etc.

Taken from 'The Vulvodynia Survival Guide' Howard I Glazer & Gae Rodke - for more information on Dr Glazer see www.vulvodynia.com




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Re: What is Vulvodynia?

Post  lunadaisy on Tue Oct 29, 2013 9:53 pm

Thank you for the definition. It seems like such an odd thing to have. I think I have had it for a long time but have tried my best to ignore or dismiss it. However, it went from acute to chronic in the past year and it consumes me and my quality of life. I am glad to find this site as I am just now figuring out what is going on with me. Strange but I only learned about this condition just the other night from a late night tv commercial for some cream that helps vulva pain....and it described the symptoms I have been having to a tee! (who would think?) I have been complaining of these symptoms for over a year and yet no doctor I have seen has pin pointed it. I saw a urologist recently because I have uti symptoms with out having a uti infection. I have thought it was a yeast infection and would buy monostate and yet that did not help the itching and burning. Anyway, I am probably writing on the wrong page or post but I feel slightly relived just knowing that there is a name for what I have and it isn't all in my head. I will be reading other post and posting my condition. I do have graves and hyperthyroid and I was wondering if this condition could be exacerbated by autoimmune disorders. Does anyone else have Graves or a hyperthyroid condition that also has vulv?

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Re: What is Vulvodynia?

Post  Alana3 on Tue Oct 29, 2013 9:57 pm

Its considered.autoimmune I have endometriosis

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Re: What is Vulvodynia?

Post  KimiKat on Sun Apr 13, 2014 12:49 pm

I have celiac disease, which is also autoimmune.

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RE: What is Vulvodynia?

Post  OBRN2007sms on Wed Feb 11, 2015 7:59 pm

I was wondering the same thing; I have lupus anticoagulant, fibromyalgia and IBS.

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re autoimmune

Post  surprisemom44 on Mon Feb 20, 2017 8:45 am

Just saw this...I have inverse psoraisis and psoriatic arthritis, these are also autoimmune diseases. I also have IBS, polycycstic ovarian syndrome, type 2 diabetes, and Lyme disease. I have been tested for Lupus and told I do not have it, but I have many of the symptoms of it.

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Re: What is Vulvodynia?

Post  jungleclover on Wed Jul 19, 2017 10:42 pm

I don't have anything autoimmune and I have this. I possibly have a semen allergy or like a hypersensitivity to yeast. Also when I get yeast it just won't go away. Horrid stuff.

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Re: What is Vulvodynia?

Post  mary jane on Sat Jul 22, 2017 9:21 pm

I think vulvodynia is a symptom and not a condition. I think it's a symptom of central sensitization, which would explain why we get a million other pain issues like back pain, coccyx pain, TMJ, IBS, etc
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Re: What is Vulvodynia?

Post  Jenjen on Tue Oct 17, 2017 11:57 pm

Hello Ladies! Am currently experiencing relief for my diagnosed vulvodynia - using a product called Ichthammol Ointment it's a black goo called a "drawing salve". Got from Amazon...7 years of agony - raw itchy vagina and anus....also using Prebiotic vaginal suppositories....if you've suffered from vaginal strep, or weird yeast and have never recovered I would add this to your list of things to try - hope this helps....blessings...

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Re: What is Vulvodynia?

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