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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


PUDENDAL NEURALGIA, NOT VULVODYNIA?

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PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  Ellen1112 on Tue Oct 04, 2016 8:11 pm

Hi ladies,
So I was diagnosed with vulvodynia about two years ago when I was 16. I am now 18 and only just starting to find answers.
I had every test done and I was showing up perfect. Nobody would do an internal exam as I was so young (which in my opinion is bullshit, I was too young to be in that pain), but after coming to my wits end and finding a lady who does accupuncture/physiotherapy, I am getting answers and this may apply to you.

She did an internal exam and within minutes found my pudendal nerve was pulsing and I have a tight, short pelvic floor. She has been treating me with a small bit of manual internal massaging and needling my pudendal nerve in my lower back and leg, and I can say it has been a long time since I felt this good.

I fell a few years prior on my hip and bum and this is what she thinks caused my pain.
Here were my symptoms:

-Burning/discomfort in the vulva, around the urthra
-Huge relief after urination (due to the warmth calming the nerve)
-Worse when exercising, sitting down for long periods or walking.
-Relief on period.
-Worse a few days prior to ovulation (not sure why)
-vaginal dryness

I hope that somebody finds help in this, I know how painful it is as vulvodynia is very very similar.
Please let me know how you get on.

Best of luck xox I love you

Ellen1112

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  WaahwaahUK on Sun Oct 09, 2016 3:02 pm

Your story and symptoms are very similar to mine. I had the added complication of an infection early on also, but have had pudendal nerve issues too.

WaahwaahUK

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  sailor_moon on Mon Oct 31, 2016 9:44 am

I have recently been properly diagnosed with pudental neuralgia and possible pudental nerve entrapment after seeing the only PN specialist in the southern hemisphere. MRI shows that I have had a fracture in my spine at the s3-s4 junction that was not diagnosed by doctors as despite having numerous falls and having a very sore lower back, they dismissed me. And I have been stuck in this mess for 3 1/2 years.

Recently saw a physio who rejected me and immediately put me in the too-hard basket Sad so i see another one next week who will hopefully be able to help me.

Looking into getting acupuncture...just trying to find a good one!
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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

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