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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


PUDENDAL NEURALGIA, NOT VULVODYNIA?

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PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  Ellen1112 on Tue Oct 04, 2016 8:11 pm

Hi ladies,
So I was diagnosed with vulvodynia about two years ago when I was 16. I am now 18 and only just starting to find answers.
I had every test done and I was showing up perfect. Nobody would do an internal exam as I was so young (which in my opinion is bullshit, I was too young to be in that pain), but after coming to my wits end and finding a lady who does accupuncture/physiotherapy, I am getting answers and this may apply to you.

She did an internal exam and within minutes found my pudendal nerve was pulsing and I have a tight, short pelvic floor. She has been treating me with a small bit of manual internal massaging and needling my pudendal nerve in my lower back and leg, and I can say it has been a long time since I felt this good.

I fell a few years prior on my hip and bum and this is what she thinks caused my pain.
Here were my symptoms:

-Burning/discomfort in the vulva, around the urthra
-Huge relief after urination (due to the warmth calming the nerve)
-Worse when exercising, sitting down for long periods or walking.
-Relief on period.
-Worse a few days prior to ovulation (not sure why)
-vaginal dryness

I hope that somebody finds help in this, I know how painful it is as vulvodynia is very very similar.
Please let me know how you get on.

Best of luck xox I love you

Ellen1112

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  WaahwaahUK on Sun Oct 09, 2016 3:02 pm

Your story and symptoms are very similar to mine. I had the added complication of an infection early on also, but have had pudendal nerve issues too.

WaahwaahUK

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  sailor_moon on Mon Oct 31, 2016 9:44 am

I have recently been properly diagnosed with pudental neuralgia and possible pudental nerve entrapment after seeing the only PN specialist in the southern hemisphere. MRI shows that I have had a fracture in my spine at the s3-s4 junction that was not diagnosed by doctors as despite having numerous falls and having a very sore lower back, they dismissed me. And I have been stuck in this mess for 3 1/2 years.

Recently saw a physio who rejected me and immediately put me in the too-hard basket Sad so i see another one next week who will hopefully be able to help me.

Looking into getting acupuncture...just trying to find a good one!
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sailor_moon

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

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