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» Sex after vulvodynia (husband edition)
Yesterday at 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Did going off antidepressants cause this?
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» Hi girls! New in this forum
Thu Aug 02, 2018 11:11 am by Taylor1

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


PUDENDAL NEURALGIA, NOT VULVODYNIA?

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PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  Ellen1112 on Tue Oct 04, 2016 8:11 pm

Hi ladies,
So I was diagnosed with vulvodynia about two years ago when I was 16. I am now 18 and only just starting to find answers.
I had every test done and I was showing up perfect. Nobody would do an internal exam as I was so young (which in my opinion is bullshit, I was too young to be in that pain), but after coming to my wits end and finding a lady who does accupuncture/physiotherapy, I am getting answers and this may apply to you.

She did an internal exam and within minutes found my pudendal nerve was pulsing and I have a tight, short pelvic floor. She has been treating me with a small bit of manual internal massaging and needling my pudendal nerve in my lower back and leg, and I can say it has been a long time since I felt this good.

I fell a few years prior on my hip and bum and this is what she thinks caused my pain.
Here were my symptoms:

-Burning/discomfort in the vulva, around the urthra
-Huge relief after urination (due to the warmth calming the nerve)
-Worse when exercising, sitting down for long periods or walking.
-Relief on period.
-Worse a few days prior to ovulation (not sure why)
-vaginal dryness

I hope that somebody finds help in this, I know how painful it is as vulvodynia is very very similar.
Please let me know how you get on.

Best of luck xox I love you

Ellen1112

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  WaahwaahUK on Sun Oct 09, 2016 3:02 pm

Your story and symptoms are very similar to mine. I had the added complication of an infection early on also, but have had pudendal nerve issues too.

WaahwaahUK

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

Post  sailor_moon on Mon Oct 31, 2016 9:44 am

I have recently been properly diagnosed with pudental neuralgia and possible pudental nerve entrapment after seeing the only PN specialist in the southern hemisphere. MRI shows that I have had a fracture in my spine at the s3-s4 junction that was not diagnosed by doctors as despite having numerous falls and having a very sore lower back, they dismissed me. And I have been stuck in this mess for 3 1/2 years.

Recently saw a physio who rejected me and immediately put me in the too-hard basket Sad so i see another one next week who will hopefully be able to help me.

Looking into getting acupuncture...just trying to find a good one!
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sailor_moon

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Re: PUDENDAL NEURALGIA, NOT VULVODYNIA?

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