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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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New member

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New member

Post  Lisa1627 on Sat Mar 18, 2017 7:37 pm

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's really still there. My doctors say no symptoms no chance of spreading as long as I use condoms but I don't believe it. So needless to say I haven't had sex with my boyfriend in 5 months. This is going to ruin my life. Sorry for the negativity and I imagine no one on here can relate because I haven't read anyone saying theres is caused by hsv. But I thought I would post anyway.

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I'm sorry you're feeling down

Post  overit14 on Fri Apr 07, 2017 12:01 am

Hello. I wanted to respond to tell you that you are not alone. Although my pain is not related to an STD, it is still very painful and affects my sex life greatly. It also affects how I feel about myself as a woman. So just know that even if you haven't found someone with your exact symptoms, you still have people out here dealing with various degrees of pain for different reasons and in different ways. I hate to hear that you feel like you don't want to live b/c of this. There is always hope. I would suggest to continue looking for support online and def offline as well. I know it's super personal, so the only people I talk to about it with are my mom and one of my friends. Keep researching doctors in your area and see who might be able to help you. Just b/c one or even a few doctors didn't work out doesn't mean there isn't one out there that will. Also, b/c you are feeling so sad, I would look into maybe talking to a professional? Just want you to know someone cares and I'm really sorry you're going through this. I wish I could help and make it all better for you but just know you're not alone. I love you

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Thank you

Post  Lisa1627 on Mon Apr 10, 2017 4:08 pm

Thank you for responding to me. I am feeling a bit better as I am on lyrica now, but I still feel pretty hopeless. I just wanted to say that I do appreciate your kind words.

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Re: New member

Post  mary jane on Tue Apr 25, 2017 12:01 pm

the medication doesn't work like anesthetics to trick your brain or anything, they are supposed to try and reprogram it altogether....you can google neuroplasticity for an example.
How have you been btw?
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Re: New member

Post  Lisa1627 on Tue Apr 25, 2017 12:30 pm

mary jane wrote:the medication doesn't work like anesthetics to trick your brain or anything, they are supposed to try and reprogram it altogether....you can google neuroplasticity for an example.
How have you been btw?

Hi Mary Jane, I am hanging in there trying to live a life as normal as possible. I am freaking out right now because my doctor wants me to get an MRI to rule out anything. I always think the worst and am dreading that maybe its MS related. Nerve pain can be ms related. How are you doing? You are new to the forum? What is your story? Thank you for responding. Its always nice to have people to talk to as only my boyfriend and 1 friend know my situation as its too embarasing to tell people.

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What are your symptons?

Post  rmb on Tue May 09, 2017 8:05 pm

I can definitely say you're not alone in feeling like you would rather be dead. This week for some reason has been the toughest week I've had in a long time since dealing with this (10 years and counting). The latest gyno I seen, her end result was I will most likely never feel relief and that my boyfriend will have to wear a condom...I feel so defeated...and Vulvodynia doesn't affect your sexual partner but my boyfriend complains of a "burning pee hole" after sex with me and even days after sex with me. We haven't had sex in a long time so I don't know if he still feels anything but he hasn't said anything. I just feel at the end of my road, I've been tested for everything and everything comes back normal but I have a constant burning vagina and I can't even have sex with my boyfriend or I will pass it on...I'll be alone forever...I've been having suicidal thoughts for months I just don't want to feel this uncomfortable burning I'm going crazy

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Re: New member

Post  Lisa1627 on Wed May 10, 2017 11:21 am

Hi RMB, thank you for responding to me.

Its funny that you responded because yesterday was also a bad day for me, but lately most days are bad. But don't let you gyno tell you that you will never recover. I know 10 years is a long time and I am feeling hopeless only having this for 6 months. But sometimes all we have is hope! So don't give up.
I also don't think having your boyfriend wear a condom is the worst thing in the world... I am afraid to have sex with my boyfriend even with a condom because of the H. And it breaks my heart because we love each other so much. He is a beautiful man and has been my only source of comfort thru this whole ordeal. I tell him everyday that he deserves better than me and should go find someone normal. Because I am broken! I am an attractive 46 year old woman, who doesn't look at all my age, but I feel so bad about myself. 46 is too young to give up on a sex life. I sometimes wish I was older so and over sex so this wouldn't be such a big deal.
So is your pain only when touched or all the time? Mine is burning all the time, touch doesn't bother me. My burning is in my vag and also I get talbone buring and a burning in my butt (feels like a sunburn). Have you tried Lyrica? Its making me gain weight which I hate, but it has helped with the pain.
Last night I sat in the tub with my boyfriends razor staring at my wrist wondering if I could ever really do it. I know I would need a different razor, but the having those thoughts really scares me. Please write back! Lisa

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Re: New member

Post  rmb on Wed May 10, 2017 7:40 pm

My pain is burning in my vag constant...sometimes it's worse than others for some reason but none the less it is there, rain or shine. I agree my boyfriend wearing a condom isn't the worst thing but I feel like that's a band aid to the problem "just put a condom on and pretend nothing is wrong." I haven't even told my boyfriend about my problem only because I don't know what to tell him..."Hey Babe, I have a constant burn in my vag and the doctors say nothing is wrong with me but sorry it's making your penis burn too." If I knew 100% what was wrong I would tell him and we would figure it out. I know that Vulvodynia makes the most sense for me as every test comes back as normal and trust me I've been tested for every possible thing just the only thing that does not make sense is that it affects my sexual partners. I've had 5 boyfriends and everyone has complained at some point or another. I would rather have Vulvodynia and do all the steps to help beat it then to just not know...that's the part that's killing me is the not knowing...Has your boyfriend ever complained of having a burning or irritated feeling after sex?

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Re: New member

Post  Lisa1627 on Thu May 11, 2017 12:15 pm

I would have to say that you must have something else going on that's not being detected by testing... No my boyfriend has not complained about burning. Have you tried using probiotics for women? Maybe its some kind of BV that tests aren't finding? I wish I knew what to tell you. How long have you been with this boyfriend? Isn't it hard to keep this from him? I am depressed alot from this and there is no way I could keep it from my boyfriend because of how said it makes me. How old are you? Where are you from? You can PM me if you want. I'm just asking questions to get to know you more.

Talk to you soon!
Lisa

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Private Message

Post  rmb on Thu May 11, 2017 3:03 pm

I have PM'd you!

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Re: New member

Post  mary jane on Tue Jun 06, 2017 10:32 am

Lisa1627 wrote:
mary jane wrote:the medication doesn't work like anesthetics to trick your brain or anything, they are supposed to try and reprogram it altogether....you can google neuroplasticity for an example.
How have you been btw?

Hi Mary Jane, I am hanging in there trying to live a life as normal as possible. I am freaking out right now because my doctor wants me to get an MRI to rule out anything. I always think the worst and am dreading that maybe its MS related. Nerve pain can be ms related. How are you doing? You are new to the forum? What is your story? Thank you for responding. Its always nice to have people to talk to as only my boyfriend and 1 friend know my situation as its too embarasing to tell people.

I was never embarrassed to tell others but I could see they feel embarrassed FOR ME if I tried to open the topic ...whatever, fuck them.
It really sounds like you have post herpetic neuralgia ..I don't know why they call it vulvlodynia
I found some info on other forums
https://www.ic-network.com/forum/showthread.php?52591-Genital-Herpes-A-Non-Traditional-Cause-of-Pudendal-Neuralgia
http://www.healthboards.com/boards/trigeminal-neuralgia/462517-genital-post-herpetic-neuralgia.html

I would go back to your doctor and mention this ..I can't believe doctors plaster vulvodynia on so many different types of symptoms and conditions...

Oh, and definitely stick to your medication for the time being... Most likely it is going to go away for you, I'm sure..

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Re: New member

Post  Lisa1627 on Tue Jun 06, 2017 11:47 am

Hi Mary Jane, I did mention the post hepetic neuralgia, so I am also taking antivirals, but they do nothing for the pain.

I haven't done the MRI because i am too afraid.

I have had this for 8 months now. It doesn't seem to be going away.

Thank you for responding.
Lisa

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Re: New member

Post  mary jane on Tue Jun 06, 2017 12:33 pm

Lisa1627 wrote:Hi Mary Jane, I did mention the post hepetic neuralgia, so I am also taking antivirals, but they do nothing for the pain.

I haven't done the MRI because i am too afraid.

I have had this for 8 months now. It doesn't seem to be going away.

Thank you for responding.
Lisa

Sad I'm sorry to hear ..
I think it will go away with time. IT should
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