Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Recovered from Vulvodynia

View previous topic View next topic Go down

Recovered from Vulvodynia

Post  chancesunny on Thu May 04, 2017 9:42 pm

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or bacterial infection (i got them from time to time). Then I went to the doctor and they did all the swab and pee tests which came back negative. Then they did the scary tests for STDs which also came back negative. After that, they just sent me home and said hey, you're fine. Obviously that wasn't the case. For the next 3 years I lived in constant pain and kept returning to the gyno who had me try lidocaine, amytriptilline, and a fungal Creme which did help the burning pain I had for maybe 15 mins at a time. The amytriprilline was horrible and just made me completely useless and tired. Lidocaine seemed to make my burning pain worse at first and then would do its job, but I wanted a cure, not a 10 min solution. So after trying all of that, I tried changing my diet and eliminating any acidic foods. That probably helped my body but not my vaginal pain. Pretty much tried everything under the sun, including wearing loose clothing and using non fragrant soaps.

After that I pretty much gave up on my gyno and continued my strenuous research. Finally, the topic of physical therapy came up and changed everything. I mentioned it to my gynecologist and she said "great idea!". Yay. Only took 3 years.

When I went to PT for the first time, I was very excited and also a little worried that it wouldn't work and I would be back to square one. The first thing my therapist asked me was "what's the number one thing you want to fix?" And I said "SEX" a little too enthusiastically. She cracked up and then explained the steps we would have to take to get there and also told me that this would take time. That's one of the most important things I want to share- it does take a little while to get better but just truck through it and know you can do it. It took me about 9 months to heal and train my muscles because I was so tense.

It started with her applying pressure to my pelvic area with her two index fingers. When she did that, I immediately cringed and had a jerk reaction to it. It was amazing because I had no idea how much tension I was holding in my gut. She then explained that those pelvic muscles are the muscles that are pulling my muscles in my vagina and making me squeeze every muscle pretty much 24-7. Crazy. Then came the next step which can make some women uncomfortable. She inserted a finger into my vagina and pressed on one wall at a time. That was SO painful. Then she explained that she was going to insert a sensor device into my vagina to see when I'm tensing and when I release my vaginal muscles. It was insane- she said the results we saw on the monitor were equivalent having continuous and constant Charlie horses all day long. So for the next 9 months, I met her once a week and she would do those steps with me and then have me tense and release my muscles - kegels. After a long time, I was able to hold my muscles for 30 seconds when I was barely able to hold them for 1 months ago.

After my 9 months, I hadn't had sex with anyone yet until maybe 6 months later when I met my boyfriend. When we were ready for sex, I told him about my past and we agreed to try to have sex and would take it slow if it hurt. To my insane delight, it wasn't painful at all. Physical therapy worked!! My physical therapist really saved me and I can't thank her enough.

So if you're having burning pain and pain during sex, this solution might be for you. I still have some pain sometimes when I get stressed and tense again but I know exercises and breathing techniques that can control it.

Good luck to anyone who tries this, I highly recommend it!!

chancesunny

Posts : 2
Join date : 2017-05-04

View user profile

Back to top Go down

Re: Recovered from Vulvodynia

Post  mary jane on Wed May 10, 2017 7:29 pm

thanks for posting !
avatar
mary jane

Posts : 297
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Recovered from Vulvodynia

Post  sarahjane1332343 on Thu May 18, 2017 4:20 pm

Hiya.


thanks for posting. is your pain provoked or unprovoked? What type of PT exercises did you do? Thanks

sarahjane1332343

Posts : 13
Join date : 2017-05-06

View user profile

Back to top Go down

Re: Recovered from Vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum