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» 7 months since the diagnosis
Recovered from Vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Recovered from Vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Recovered from Vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Recovered from Vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Recovered from Vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Recovered from Vulvodynia EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Recovered from Vulvodynia EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Recovered from Vulvodynia EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Recovered from Vulvodynia EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Recovered from Vulvodynia

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Recovered from Vulvodynia Empty Recovered from Vulvodynia

Post  chancesunny on Thu May 04, 2017 9:42 pm

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or bacterial infection (i got them from time to time). Then I went to the doctor and they did all the swab and pee tests which came back negative. Then they did the scary tests for STDs which also came back negative. After that, they just sent me home and said hey, you're fine. Obviously that wasn't the case. For the next 3 years I lived in constant pain and kept returning to the gyno who had me try lidocaine, amytriptilline, and a fungal Creme which did help the burning pain I had for maybe 15 mins at a time. The amytriprilline was horrible and just made me completely useless and tired. Lidocaine seemed to make my burning pain worse at first and then would do its job, but I wanted a cure, not a 10 min solution. So after trying all of that, I tried changing my diet and eliminating any acidic foods. That probably helped my body but not my vaginal pain. Pretty much tried everything under the sun, including wearing loose clothing and using non fragrant soaps.

After that I pretty much gave up on my gyno and continued my strenuous research. Finally, the topic of physical therapy came up and changed everything. I mentioned it to my gynecologist and she said "great idea!". Yay. Only took 3 years.

When I went to PT for the first time, I was very excited and also a little worried that it wouldn't work and I would be back to square one. The first thing my therapist asked me was "what's the number one thing you want to fix?" And I said "SEX" a little too enthusiastically. She cracked up and then explained the steps we would have to take to get there and also told me that this would take time. That's one of the most important things I want to share- it does take a little while to get better but just truck through it and know you can do it. It took me about 9 months to heal and train my muscles because I was so tense.

It started with her applying pressure to my pelvic area with her two index fingers. When she did that, I immediately cringed and had a jerk reaction to it. It was amazing because I had no idea how much tension I was holding in my gut. She then explained that those pelvic muscles are the muscles that are pulling my muscles in my vagina and making me squeeze every muscle pretty much 24-7. Crazy. Then came the next step which can make some women uncomfortable. She inserted a finger into my vagina and pressed on one wall at a time. That was SO painful. Then she explained that she was going to insert a sensor device into my vagina to see when I'm tensing and when I release my vaginal muscles. It was insane- she said the results we saw on the monitor were equivalent having continuous and constant Charlie horses all day long. So for the next 9 months, I met her once a week and she would do those steps with me and then have me tense and release my muscles - kegels. After a long time, I was able to hold my muscles for 30 seconds when I was barely able to hold them for 1 months ago.

After my 9 months, I hadn't had sex with anyone yet until maybe 6 months later when I met my boyfriend. When we were ready for sex, I told him about my past and we agreed to try to have sex and would take it slow if it hurt. To my insane delight, it wasn't painful at all. Physical therapy worked!! My physical therapist really saved me and I can't thank her enough.

So if you're having burning pain and pain during sex, this solution might be for you. I still have some pain sometimes when I get stressed and tense again but I know exercises and breathing techniques that can control it.

Good luck to anyone who tries this, I highly recommend it!!

chancesunny

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Recovered from Vulvodynia Empty Re: Recovered from Vulvodynia

Post  mary jane on Wed May 10, 2017 7:29 pm

thanks for posting !
mary jane
mary jane

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Post  sj17 on Thu May 18, 2017 4:20 pm

Hiya.


thanks for posting. is your pain provoked or unprovoked? What type of PT exercises did you do? Thanks

sj17

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