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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Recovered from Vulvodynia

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Recovered from Vulvodynia

Post  chancesunny on Thu May 04, 2017 9:42 pm

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or bacterial infection (i got them from time to time). Then I went to the doctor and they did all the swab and pee tests which came back negative. Then they did the scary tests for STDs which also came back negative. After that, they just sent me home and said hey, you're fine. Obviously that wasn't the case. For the next 3 years I lived in constant pain and kept returning to the gyno who had me try lidocaine, amytriptilline, and a fungal Creme which did help the burning pain I had for maybe 15 mins at a time. The amytriprilline was horrible and just made me completely useless and tired. Lidocaine seemed to make my burning pain worse at first and then would do its job, but I wanted a cure, not a 10 min solution. So after trying all of that, I tried changing my diet and eliminating any acidic foods. That probably helped my body but not my vaginal pain. Pretty much tried everything under the sun, including wearing loose clothing and using non fragrant soaps.

After that I pretty much gave up on my gyno and continued my strenuous research. Finally, the topic of physical therapy came up and changed everything. I mentioned it to my gynecologist and she said "great idea!". Yay. Only took 3 years.

When I went to PT for the first time, I was very excited and also a little worried that it wouldn't work and I would be back to square one. The first thing my therapist asked me was "what's the number one thing you want to fix?" And I said "SEX" a little too enthusiastically. She cracked up and then explained the steps we would have to take to get there and also told me that this would take time. That's one of the most important things I want to share- it does take a little while to get better but just truck through it and know you can do it. It took me about 9 months to heal and train my muscles because I was so tense.

It started with her applying pressure to my pelvic area with her two index fingers. When she did that, I immediately cringed and had a jerk reaction to it. It was amazing because I had no idea how much tension I was holding in my gut. She then explained that those pelvic muscles are the muscles that are pulling my muscles in my vagina and making me squeeze every muscle pretty much 24-7. Crazy. Then came the next step which can make some women uncomfortable. She inserted a finger into my vagina and pressed on one wall at a time. That was SO painful. Then she explained that she was going to insert a sensor device into my vagina to see when I'm tensing and when I release my vaginal muscles. It was insane- she said the results we saw on the monitor were equivalent having continuous and constant Charlie horses all day long. So for the next 9 months, I met her once a week and she would do those steps with me and then have me tense and release my muscles - kegels. After a long time, I was able to hold my muscles for 30 seconds when I was barely able to hold them for 1 months ago.

After my 9 months, I hadn't had sex with anyone yet until maybe 6 months later when I met my boyfriend. When we were ready for sex, I told him about my past and we agreed to try to have sex and would take it slow if it hurt. To my insane delight, it wasn't painful at all. Physical therapy worked!! My physical therapist really saved me and I can't thank her enough.

So if you're having burning pain and pain during sex, this solution might be for you. I still have some pain sometimes when I get stressed and tense again but I know exercises and breathing techniques that can control it.

Good luck to anyone who tries this, I highly recommend it!!

chancesunny

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Re: Recovered from Vulvodynia

Post  mary jane on Wed May 10, 2017 7:29 pm

thanks for posting !
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mary jane

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Re: Recovered from Vulvodynia

Post  sj17 on Thu May 18, 2017 4:20 pm

Hiya.


thanks for posting. is your pain provoked or unprovoked? What type of PT exercises did you do? Thanks

sj17

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Re: Recovered from Vulvodynia

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