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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Partial Vestibulectomy

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Partial Vestibulectomy

Post  JGD13 on Mon Jul 31, 2017 6:44 pm

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is most likely caused by the 1 week antibiotics that i was given, (ny doctor gives these to all her vestibulectomy patients to help fight any infection)
So he gave me the oral capsule for thrush and i took that 29/9. I cant see anymore white but i still have gloopy discharge. I have tried to look online but feel unsuccesful.

Have any of you that have had the surgery done noticed the discharge? Is it just a case of the sistches starting to heal now? And disolving? Should i see a doctor again?
I just want this to heal best it can.

Thankyou in advance

JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Fri Aug 04, 2017 6:12 pm

Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

Hopeitworks

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Re: Partial Vestibulectomy

Post  JGD13 on Sat Aug 05, 2017 6:48 am

Thankyou for replying,
I did visit my gp again who told me off a bit said the stitches look great and i am probably thinking about it too much, and cleaning too much etc which apparently when you do this it can cause change in discharge due to you interfereing with the natural ph balance.
2 days running i bled aswell only at 1 point 5/10 mins but quite a bit, i said hes not sure what this could be but dont worry to much and he has taken a swab just to rule out any infections.
I feel i am now at the itchy stage! Im ok if i ignore it but wen i go to the toilet im aware it suddenly very itchy, im hoping this is my stitches healing.
Oh bless you getting your period thsts bad timing isnt it, wish we was able to control our menstrual cycle, wouldnt that make life easier! I am due mine in around 7 days, my period stopped the day of my op.

I just am very hopful the op did what it was supposed to, i feel some discomfort down there still but the doctor said the skin is sore from the op so fingers crossed its just that.


JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Sat Aug 05, 2017 1:39 pm

JGD13,

Mine itches the most when I go to the bathroom and shower/bath too. It must be our stitches healing of we are both going having the same symptoms. I'm staying as hopeful is all we can be. Keep in touch!

Hopeitworks

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Re: Partial Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:38 am

Hiya

I'm experiencing this gloopy discharge too! Perhaps it's not an infection, but just our body's way of combatting foreign materials (stitches) that it's not used to. It's interesting that we have the same sort of discharge, so I'm sure that means it's quite normal and nothing to worry about.

If you're worried about thrush, apply some bio live yoghurt down there which will kill any infection if there is any Smile

Xx

infinitelywondering

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Re: Partial Vestibulectomy

Post  mary jane on Thu Aug 31, 2017 8:06 pm

Hopeitworks wrote:Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

I get nocturnal itching sometimes. The intense itching you get sounds like neurogenic itching to me (basically it's a nerve dysfunction). It's treated with amitriptyline. Are you on any medication for the nerve pain at all?
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mary jane

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Re: Partial Vestibulectomy

Post  Hopeitworks on Thu Aug 31, 2017 8:10 pm

Mary Jane I was on Ampiteipline and Gabapentin with no improvement. So I stopped taking it and I was on it for a year or so. My itching has gotten better now that may stitches are dissolving.

Hopeitworks

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Re: Partial Vestibulectomy

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