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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Partial Vestibulectomy

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Partial Vestibulectomy

Post  JGD13 on Mon Jul 31, 2017 6:44 pm

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is most likely caused by the 1 week antibiotics that i was given, (ny doctor gives these to all her vestibulectomy patients to help fight any infection)
So he gave me the oral capsule for thrush and i took that 29/9. I cant see anymore white but i still have gloopy discharge. I have tried to look online but feel unsuccesful.

Have any of you that have had the surgery done noticed the discharge? Is it just a case of the sistches starting to heal now? And disolving? Should i see a doctor again?
I just want this to heal best it can.

Thankyou in advance

JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Fri Aug 04, 2017 6:12 pm

Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

Hopeitworks

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Re: Partial Vestibulectomy

Post  JGD13 on Sat Aug 05, 2017 6:48 am

Thankyou for replying,
I did visit my gp again who told me off a bit said the stitches look great and i am probably thinking about it too much, and cleaning too much etc which apparently when you do this it can cause change in discharge due to you interfereing with the natural ph balance.
2 days running i bled aswell only at 1 point 5/10 mins but quite a bit, i said hes not sure what this could be but dont worry to much and he has taken a swab just to rule out any infections.
I feel i am now at the itchy stage! Im ok if i ignore it but wen i go to the toilet im aware it suddenly very itchy, im hoping this is my stitches healing.
Oh bless you getting your period thsts bad timing isnt it, wish we was able to control our menstrual cycle, wouldnt that make life easier! I am due mine in around 7 days, my period stopped the day of my op.

I just am very hopful the op did what it was supposed to, i feel some discomfort down there still but the doctor said the skin is sore from the op so fingers crossed its just that.


JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Sat Aug 05, 2017 1:39 pm

JGD13,

Mine itches the most when I go to the bathroom and shower/bath too. It must be our stitches healing of we are both going having the same symptoms. I'm staying as hopeful is all we can be. Keep in touch!

Hopeitworks

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Re: Partial Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:38 am

Hiya

I'm experiencing this gloopy discharge too! Perhaps it's not an infection, but just our body's way of combatting foreign materials (stitches) that it's not used to. It's interesting that we have the same sort of discharge, so I'm sure that means it's quite normal and nothing to worry about.

If you're worried about thrush, apply some bio live yoghurt down there which will kill any infection if there is any Smile

Xx

infinitelywondering

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Re: Partial Vestibulectomy

Post  mary jane on Thu Aug 31, 2017 8:06 pm

Hopeitworks wrote:Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

I get nocturnal itching sometimes. The intense itching you get sounds like neurogenic itching to me (basically it's a nerve dysfunction). It's treated with amitriptyline. Are you on any medication for the nerve pain at all?
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Re: Partial Vestibulectomy

Post  Hopeitworks on Thu Aug 31, 2017 8:10 pm

Mary Jane I was on Ampiteipline and Gabapentin with no improvement. So I stopped taking it and I was on it for a year or so. My itching has gotten better now that may stitches are dissolving.

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Re: Partial Vestibulectomy

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