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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Partial Vestibulectomy

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Partial Vestibulectomy

Post  JGD13 on Mon Jul 31, 2017 6:44 pm

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is most likely caused by the 1 week antibiotics that i was given, (ny doctor gives these to all her vestibulectomy patients to help fight any infection)
So he gave me the oral capsule for thrush and i took that 29/9. I cant see anymore white but i still have gloopy discharge. I have tried to look online but feel unsuccesful.

Have any of you that have had the surgery done noticed the discharge? Is it just a case of the sistches starting to heal now? And disolving? Should i see a doctor again?
I just want this to heal best it can.

Thankyou in advance

JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Fri Aug 04, 2017 6:12 pm

Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

Hopeitworks

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Re: Partial Vestibulectomy

Post  JGD13 on Sat Aug 05, 2017 6:48 am

Thankyou for replying,
I did visit my gp again who told me off a bit said the stitches look great and i am probably thinking about it too much, and cleaning too much etc which apparently when you do this it can cause change in discharge due to you interfereing with the natural ph balance.
2 days running i bled aswell only at 1 point 5/10 mins but quite a bit, i said hes not sure what this could be but dont worry to much and he has taken a swab just to rule out any infections.
I feel i am now at the itchy stage! Im ok if i ignore it but wen i go to the toilet im aware it suddenly very itchy, im hoping this is my stitches healing.
Oh bless you getting your period thsts bad timing isnt it, wish we was able to control our menstrual cycle, wouldnt that make life easier! I am due mine in around 7 days, my period stopped the day of my op.

I just am very hopful the op did what it was supposed to, i feel some discomfort down there still but the doctor said the skin is sore from the op so fingers crossed its just that.


JGD13

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Re: Partial Vestibulectomy

Post  Hopeitworks on Sat Aug 05, 2017 1:39 pm

JGD13,

Mine itches the most when I go to the bathroom and shower/bath too. It must be our stitches healing of we are both going having the same symptoms. I'm staying as hopeful is all we can be. Keep in touch!

Hopeitworks

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Re: Partial Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:38 am

Hiya

I'm experiencing this gloopy discharge too! Perhaps it's not an infection, but just our body's way of combatting foreign materials (stitches) that it's not used to. It's interesting that we have the same sort of discharge, so I'm sure that means it's quite normal and nothing to worry about.

If you're worried about thrush, apply some bio live yoghurt down there which will kill any infection if there is any Smile

Xx

infinitelywondering

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Re: Partial Vestibulectomy

Post  mary jane on Thu Aug 31, 2017 8:06 pm

Hopeitworks wrote:Hi JGD13,

I am in the same situation as you! I had my vestibulectomy on July 28, 2017. Today marks 7 days post op. I started having intense itching today, so my doctor called some yeast meds in just in case. But lucky me I started my period 2 days ago. So not only am I dealing with recovering, but my period as well. I have been dealing with vulvodynia for years also but mine is not provoked. The pain is always there no matter what I do. Please keep in touch and let me know how your doing. I wish us both the best outcomes!

I get nocturnal itching sometimes. The intense itching you get sounds like neurogenic itching to me (basically it's a nerve dysfunction). It's treated with amitriptyline. Are you on any medication for the nerve pain at all?
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Re: Partial Vestibulectomy

Post  Hopeitworks on Thu Aug 31, 2017 8:10 pm

Mary Jane I was on Ampiteipline and Gabapentin with no improvement. So I stopped taking it and I was on it for a year or so. My itching has gotten better now that may stitches are dissolving.

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Re: Partial Vestibulectomy

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