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    » Lichen Sclerosus
    Fri Feb 16, 2018 2:47 am by ryn207

    » MAY HAVE FOUND A CURE- PLEASE READ
    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
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    » NO PAIN DURING SEX
    Wed Feb 14, 2018 3:33 am by Athena

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
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    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11


    I think I've developed vulvodynia?? Please help!

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    I think I've developed vulvodynia?? Please help!

    Post  Necromeowncer on Mon Oct 23, 2017 9:10 pm

    I have been suffering for months and no doctor has been able to help me. So I've come here to share my story and hope one of you lovely ladies will be able to help me. I've grown very desperate to get rid of this pain.

    It all started in march when I had developed a nasty abscess on my clitoris. It was very, very small, never grew, and started off painless. Went to the regular doctor to get it examined. She did not want to try to pop or irritate it because of the location it was in, so she prescribed something that I have unfortunately forgotten the name of the antibiotics because this was months ago... She was very sure it would work to shrink it. I had gone to her three times for a refill, desperate to get rid of this nasty abscess. Nothing had changed, except for the fact that I had gotten a yeast infection from the pills.

    Next, I had visited a VERY rude gynecologist, who looked at me once, immediately ruled out that I had an STD and then sent me to get my blood tested for multiple STDs and also gave me medication meant for HPV. WITHOUT EVEN GETTING THE LAB RESULTS FIRST OR ASKING ME ABOUT MY SYMPTOMS. Results came back clean. Needless to say, she caused a lot of paranoia. Did not go back to that crap doctor.

    It was about may or June now, and I visited yet another gynecologist. The abscess remained, and I was still having yeast problems. So we started off with tests. I had gotten tested for STDs (once again), got a Pap smear, a vaginal ultrasound, vitamin levels tested. The only thing abnormal about me was that my vitamin levels were low. After the tests were done, the treatment began.

    I had taken countless rounds of terazol, with no improvement. I started getting desperate. I cut soda completely out of my diet, while cutting sweet foods out to an extent, same with bread. I began to take vitamin D tablets, probiotics, garlic supplements. I did my best to avoid tight clothing and keeping the area dry, I had gone off of birth control as I believed it was only making the pain worse. My doctor has told me it's the yeast causing all the problems and nothing else. So I did everything I could to keep it away. The pain remained despite all my efforts.

    August was when the abscess had finally gone, for it had not popped by itself. The doctor squeezed the absolute hell out of it until it had given out, doing what I was afraid to do. Let me remind you this abscess was on my clitoris. The pain was probably the most horrible thing I've felt in my whole life. I thought after the abscess had gone my pain would too, but it had not.

    I started my final treatment. 3 days of terazol, two weeks of estrogen cream, and 600 mg boric acid, 3 times a week for 3 weeks. While I was on this treatment I continued to take probiotics and supplements, stay totally hydrated, and cut out bread and sugar to a great extent. I finished everything, yet the raw burning sensation still remains. The only time I felt the smallest bit of relief was when I was using the estrogen cream.

    I have become desperate and very depressed. I am not sure where to look for a doctor that can help me. Some days the pain is worse than others. Jeans feel horrible to wear, and sitting is absolute hell. I cannot get comfortable. Sometimes I feel a burning sensation when I pee and have to frequently urinate and occasionally I will have pelvic pain. A nurse thought I had a UTI but nothing came up on the test.

    I am wondering if from the over treatment of yeast, and the irritation/pain that was put on my clitoris caused nerve damage and this all developed into vulvodynia? I'm not sure what to do now or how to get rid of the pain I feel.

    Necromeowncer

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    Re: I think I've developed vulvodynia?? Please help!

    Post  survivor on Wed Nov 01, 2017 4:17 am

    Hey - I never had the abscess but I dealt with much of the rest for about ten years before everything finally went away. I am now in 98% remission with the smallest of breakthrough pain.

    My recommendation while you are looking for the underlying cause and cure would be to immediately try a large dose of gabapentin and take it 4x a day as well as an antidepressant (for both the body and mind).

    See a naturopathic doctor if you can afford it. Great to get a different perspective as well.

    The basics: Stay hydrated with a good diet (heavy on veggies, no dairy), sleep underwear free, only wear white cotton underwear during the day. Make sure soap and laundry detergent are gentle. Find small forms of relief to say sane - masturbating & extreme temperatures helped me. Get some pain killers. Try prescription lidocaine cream, etc.

    Good luck. Stay strong, I know it's a true hell - but I promise you come out the other side a stronger, more empathetic person.

    survivor

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    Re: I think I've developed vulvodynia?? Please help!

    Post  Mintaherb on Thu Nov 02, 2017 2:20 am

    Hi, I'm so sorry to hear about what you're going through! I've had two clitoral abscesses in the last seven years and the pain is awful. Like you, I was given antibiotics which gave me thrush/yeast. In my experience, taking the anti-thrush pill (Fluconazole in the UK) made my vulvar skin red and sore. So it's possible that your skin is still reacting to this, especially if you took several rounds of anti-yeast treatment. It takes time for your body to heal, especially such a sensitive area as the clitoris. I wouldn't necessarily rush into taking powerful drugs for nerve pain, as the drugs have side effects and can cause horrible withdrawal symptoms when you stop taking them too. I had an especially 'interesting' withdrawal symptom from taking 10mg per day of nortriptylene - I actually went temporarily numb 'down there'. I guess at least that solved the vulvadynia problem! Maybe give your body two or three months to recover from what it's been through first, and then see how you feel. I know that waiting and doing nothing is really hard, but the body works on its own timetable and won't hurry up just because we want it to.

    Also, taking the right probiotic to help your gut bacteria/microbiome recover after using antibiotics will hopefully also help your vaginal microbiome, as this is affected by the gut microbiome. A naturopath should be able to advise about this.

    Sounds like you're doing all the right things with stopping the contraceptive pill etc. I also wonder if you might be estrogen deficient after stopping the pill , as you say that using estrogen cream helped your symptoms. Have your periods come back properly yet/are you ovulating again and therefore making enough of your own estrogen, now that you're no longer getting synthetic estrogen from the pill? Vulvar tissue needs estrogen, so perhaps there's more than one issue going on here (possible clitoral nerve pain from the abscess/over-use of anti-thrush treatment/disrupted gut microbiome from antibiotics, which in turn has affected vaginal microbiome/estrogen deficiency if ovulation hasn't resumed after stopping birth control). Good luck and don't give up hope!

    Mintaherb

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    Re: I think I've developed vulvodynia?? Please help!

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