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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I think I've developed vulvodynia?? Please help!

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I think I've developed vulvodynia?? Please help!

Post  Necromeowncer on Mon Oct 23, 2017 9:10 pm

I have been suffering for months and no doctor has been able to help me. So I've come here to share my story and hope one of you lovely ladies will be able to help me. I've grown very desperate to get rid of this pain.

It all started in march when I had developed a nasty abscess on my clitoris. It was very, very small, never grew, and started off painless. Went to the regular doctor to get it examined. She did not want to try to pop or irritate it because of the location it was in, so she prescribed something that I have unfortunately forgotten the name of the antibiotics because this was months ago... She was very sure it would work to shrink it. I had gone to her three times for a refill, desperate to get rid of this nasty abscess. Nothing had changed, except for the fact that I had gotten a yeast infection from the pills.

Next, I had visited a VERY rude gynecologist, who looked at me once, immediately ruled out that I had an STD and then sent me to get my blood tested for multiple STDs and also gave me medication meant for HPV. WITHOUT EVEN GETTING THE LAB RESULTS FIRST OR ASKING ME ABOUT MY SYMPTOMS. Results came back clean. Needless to say, she caused a lot of paranoia. Did not go back to that crap doctor.

It was about may or June now, and I visited yet another gynecologist. The abscess remained, and I was still having yeast problems. So we started off with tests. I had gotten tested for STDs (once again), got a Pap smear, a vaginal ultrasound, vitamin levels tested. The only thing abnormal about me was that my vitamin levels were low. After the tests were done, the treatment began.

I had taken countless rounds of terazol, with no improvement. I started getting desperate. I cut soda completely out of my diet, while cutting sweet foods out to an extent, same with bread. I began to take vitamin D tablets, probiotics, garlic supplements. I did my best to avoid tight clothing and keeping the area dry, I had gone off of birth control as I believed it was only making the pain worse. My doctor has told me it's the yeast causing all the problems and nothing else. So I did everything I could to keep it away. The pain remained despite all my efforts.

August was when the abscess had finally gone, for it had not popped by itself. The doctor squeezed the absolute hell out of it until it had given out, doing what I was afraid to do. Let me remind you this abscess was on my clitoris. The pain was probably the most horrible thing I've felt in my whole life. I thought after the abscess had gone my pain would too, but it had not.

I started my final treatment. 3 days of terazol, two weeks of estrogen cream, and 600 mg boric acid, 3 times a week for 3 weeks. While I was on this treatment I continued to take probiotics and supplements, stay totally hydrated, and cut out bread and sugar to a great extent. I finished everything, yet the raw burning sensation still remains. The only time I felt the smallest bit of relief was when I was using the estrogen cream.

I have become desperate and very depressed. I am not sure where to look for a doctor that can help me. Some days the pain is worse than others. Jeans feel horrible to wear, and sitting is absolute hell. I cannot get comfortable. Sometimes I feel a burning sensation when I pee and have to frequently urinate and occasionally I will have pelvic pain. A nurse thought I had a UTI but nothing came up on the test.

I am wondering if from the over treatment of yeast, and the irritation/pain that was put on my clitoris caused nerve damage and this all developed into vulvodynia? I'm not sure what to do now or how to get rid of the pain I feel.

Necromeowncer

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Re: I think I've developed vulvodynia?? Please help!

Post  survivor on Wed Nov 01, 2017 4:17 am

Hey - I never had the abscess but I dealt with much of the rest for about ten years before everything finally went away. I am now in 98% remission with the smallest of breakthrough pain.

My recommendation while you are looking for the underlying cause and cure would be to immediately try a large dose of gabapentin and take it 4x a day as well as an antidepressant (for both the body and mind).

See a naturopathic doctor if you can afford it. Great to get a different perspective as well.

The basics: Stay hydrated with a good diet (heavy on veggies, no dairy), sleep underwear free, only wear white cotton underwear during the day. Make sure soap and laundry detergent are gentle. Find small forms of relief to say sane - masturbating & extreme temperatures helped me. Get some pain killers. Try prescription lidocaine cream, etc.

Good luck. Stay strong, I know it's a true hell - but I promise you come out the other side a stronger, more empathetic person.

survivor

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Re: I think I've developed vulvodynia?? Please help!

Post  Mintaherb on Thu Nov 02, 2017 2:20 am

Hi, I'm so sorry to hear about what you're going through! I've had two clitoral abscesses in the last seven years and the pain is awful. Like you, I was given antibiotics which gave me thrush/yeast. In my experience, taking the anti-thrush pill (Fluconazole in the UK) made my vulvar skin red and sore. So it's possible that your skin is still reacting to this, especially if you took several rounds of anti-yeast treatment. It takes time for your body to heal, especially such a sensitive area as the clitoris. I wouldn't necessarily rush into taking powerful drugs for nerve pain, as the drugs have side effects and can cause horrible withdrawal symptoms when you stop taking them too. I had an especially 'interesting' withdrawal symptom from taking 10mg per day of nortriptylene - I actually went temporarily numb 'down there'. I guess at least that solved the vulvadynia problem! Maybe give your body two or three months to recover from what it's been through first, and then see how you feel. I know that waiting and doing nothing is really hard, but the body works on its own timetable and won't hurry up just because we want it to.

Also, taking the right probiotic to help your gut bacteria/microbiome recover after using antibiotics will hopefully also help your vaginal microbiome, as this is affected by the gut microbiome. A naturopath should be able to advise about this.

Sounds like you're doing all the right things with stopping the contraceptive pill etc. I also wonder if you might be estrogen deficient after stopping the pill , as you say that using estrogen cream helped your symptoms. Have your periods come back properly yet/are you ovulating again and therefore making enough of your own estrogen, now that you're no longer getting synthetic estrogen from the pill? Vulvar tissue needs estrogen, so perhaps there's more than one issue going on here (possible clitoral nerve pain from the abscess/over-use of anti-thrush treatment/disrupted gut microbiome from antibiotics, which in turn has affected vaginal microbiome/estrogen deficiency if ovulation hasn't resumed after stopping birth control). Good luck and don't give up hope!

Mintaherb

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Re: I think I've developed vulvodynia?? Please help!

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