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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Acupuncture advice please

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Acupuncture advice please

Post  Bx11 on Sun Jan 21, 2018 10:59 pm

I've suffered for 7 years now and just cannot have sex with my husband – he is a saint. The worse problem I have faced is this is stopping us trying for a baby which we both want more than anything. It breaks my heart and I'm sure his. Have tried lots over the years with no joy or support from the NHS so I'm researching alone. I have an amazing physio that I see for my Hypermobility and she is going to try acupuncture on me. I've seen comments about different types and I was wondering what other people have had done and what worked for them. I'm hoping to work with her and advice her what's recommended for his as she isn't a woman health physio normally.
Any help greatly appreciated x

Bx11

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Re: Acupuncture advice please

Post  PainBlogger on Wed Jan 24, 2018 8:29 pm

I've found acupuncture helpful- in conjunction with physio and medication (duloxetine). I had electroacupuncture as well as needles. Unfortunately, I was having needles in for other things at the same time so I don't know which points were for the pelvic pain. So I know that's not very helpful but I just wanted to wish you good luck with it all anyway.

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 01, 2018 3:35 am

I tried dry needling with pelvic floor physical therapy. I can't say 100% if it was the dry needling, the PT, or the combination of the two, but I definitely felt the severity of my symptoms decrease. While it didn't solve everything I think it's worth a shot! Crossing my fingers that you find relief as well!

ryn207

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Re: Acupuncture advice please

Post  Bx11 on Mon Feb 19, 2018 12:00 am

Thank u. I have my first PT assessment with a woman health Physio tomorrow and the anxiety of it being a dead end has brought on a massive increase in symptoms.
So far no joy with the needles but only had two sessions so far. Can I ask where ur needles were put as finding different info on locations and not sure what to try.

Bx11

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Re: Acupuncture advice please

Post  fairlight10 on Mon Feb 19, 2018 6:08 pm

Hi bx 11 l had 20 sessions of acupuncture after first being diagnosed. The needles for vulvodynia where put into ankle, leg/knee area , small of the back and abdomen area. You need needles for the stress this condition is causing you. I was also treated at the same time for migraine and acid reflux disease. When l had my first session l had no idea if this would help but l felt that something powerful had happened to me. I was already on nortriptyline which was starting to help. But l definitely know it brought down my stress levels and l came off reflux medication. I tried chinese herbs which did not help what so ever.Goodluck.

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Acupuncture

Post  infinitelywondering on Tue Feb 20, 2018 11:27 pm

Hi there.

I think Acupuncture is great and I've been having it for maybe 3/4 sessions now. It hasn't totally eradicated my pain but it's certainly reduced it. I don't know if that is because it has ACTUALLY helped or it's just my brain telling me it's helping. Either way, I am seeing a difference and I keep going back because it just makes me feel more positive, like something is moving forward in this.

Please feel free to message me about any info on Acupuncture x

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 22, 2018 2:25 am

I typically had them in my legs, feet, stomach, vulva, and fingers. I don't know how much relief I got from acupuncture itself. I know that pelvic floor PT helped me for sure. After the needles I definitely felt more relaxed, but I can't say if it really helped long term.

ryn207

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Re: Acupuncture advice please

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