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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Acupuncture advice please

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Acupuncture advice please

Post  Bx11 on Sun Jan 21, 2018 10:59 pm

I've suffered for 7 years now and just cannot have sex with my husband – he is a saint. The worse problem I have faced is this is stopping us trying for a baby which we both want more than anything. It breaks my heart and I'm sure his. Have tried lots over the years with no joy or support from the NHS so I'm researching alone. I have an amazing physio that I see for my Hypermobility and she is going to try acupuncture on me. I've seen comments about different types and I was wondering what other people have had done and what worked for them. I'm hoping to work with her and advice her what's recommended for his as she isn't a woman health physio normally.
Any help greatly appreciated x

Bx11

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Re: Acupuncture advice please

Post  PainBlogger on Wed Jan 24, 2018 8:29 pm

I've found acupuncture helpful- in conjunction with physio and medication (duloxetine). I had electroacupuncture as well as needles. Unfortunately, I was having needles in for other things at the same time so I don't know which points were for the pelvic pain. So I know that's not very helpful but I just wanted to wish you good luck with it all anyway.

PainBlogger

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 01, 2018 3:35 am

I tried dry needling with pelvic floor physical therapy. I can't say 100% if it was the dry needling, the PT, or the combination of the two, but I definitely felt the severity of my symptoms decrease. While it didn't solve everything I think it's worth a shot! Crossing my fingers that you find relief as well!

ryn207

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Re: Acupuncture advice please

Post  Bx11 on Mon Feb 19, 2018 12:00 am

Thank u. I have my first PT assessment with a woman health Physio tomorrow and the anxiety of it being a dead end has brought on a massive increase in symptoms.
So far no joy with the needles but only had two sessions so far. Can I ask where ur needles were put as finding different info on locations and not sure what to try.

Bx11

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Re: Acupuncture advice please

Post  fairlight10 on Mon Feb 19, 2018 6:08 pm

Hi bx 11 l had 20 sessions of acupuncture after first being diagnosed. The needles for vulvodynia where put into ankle, leg/knee area , small of the back and abdomen area. You need needles for the stress this condition is causing you. I was also treated at the same time for migraine and acid reflux disease. When l had my first session l had no idea if this would help but l felt that something powerful had happened to me. I was already on nortriptyline which was starting to help. But l definitely know it brought down my stress levels and l came off reflux medication. I tried chinese herbs which did not help what so ever.Goodluck.

fairlight10

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Acupuncture

Post  infinitelywondering on Tue Feb 20, 2018 11:27 pm

Hi there.

I think Acupuncture is great and I've been having it for maybe 3/4 sessions now. It hasn't totally eradicated my pain but it's certainly reduced it. I don't know if that is because it has ACTUALLY helped or it's just my brain telling me it's helping. Either way, I am seeing a difference and I keep going back because it just makes me feel more positive, like something is moving forward in this.

Please feel free to message me about any info on Acupuncture x

infinitelywondering

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 22, 2018 2:25 am

I typically had them in my legs, feet, stomach, vulva, and fingers. I don't know how much relief I got from acupuncture itself. I know that pelvic floor PT helped me for sure. After the needles I definitely felt more relaxed, but I can't say if it really helped long term.

ryn207

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Re: Acupuncture advice please

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