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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Acupuncture advice please

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Acupuncture advice please

Post  Bx11 on Sun Jan 21, 2018 10:59 pm

I've suffered for 7 years now and just cannot have sex with my husband – he is a saint. The worse problem I have faced is this is stopping us trying for a baby which we both want more than anything. It breaks my heart and I'm sure his. Have tried lots over the years with no joy or support from the NHS so I'm researching alone. I have an amazing physio that I see for my Hypermobility and she is going to try acupuncture on me. I've seen comments about different types and I was wondering what other people have had done and what worked for them. I'm hoping to work with her and advice her what's recommended for his as she isn't a woman health physio normally.
Any help greatly appreciated x

Bx11

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Re: Acupuncture advice please

Post  PainBlogger on Wed Jan 24, 2018 8:29 pm

I've found acupuncture helpful- in conjunction with physio and medication (duloxetine). I had electroacupuncture as well as needles. Unfortunately, I was having needles in for other things at the same time so I don't know which points were for the pelvic pain. So I know that's not very helpful but I just wanted to wish you good luck with it all anyway.

PainBlogger

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 01, 2018 3:35 am

I tried dry needling with pelvic floor physical therapy. I can't say 100% if it was the dry needling, the PT, or the combination of the two, but I definitely felt the severity of my symptoms decrease. While it didn't solve everything I think it's worth a shot! Crossing my fingers that you find relief as well!

ryn207

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Re: Acupuncture advice please

Post  Bx11 on Mon Feb 19, 2018 12:00 am

Thank u. I have my first PT assessment with a woman health Physio tomorrow and the anxiety of it being a dead end has brought on a massive increase in symptoms.
So far no joy with the needles but only had two sessions so far. Can I ask where ur needles were put as finding different info on locations and not sure what to try.

Bx11

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Re: Acupuncture advice please

Post  fairlight10 on Mon Feb 19, 2018 6:08 pm

Hi bx 11 l had 20 sessions of acupuncture after first being diagnosed. The needles for vulvodynia where put into ankle, leg/knee area , small of the back and abdomen area. You need needles for the stress this condition is causing you. I was also treated at the same time for migraine and acid reflux disease. When l had my first session l had no idea if this would help but l felt that something powerful had happened to me. I was already on nortriptyline which was starting to help. But l definitely know it brought down my stress levels and l came off reflux medication. I tried chinese herbs which did not help what so ever.Goodluck.

fairlight10

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Acupuncture

Post  infinitelywondering on Tue Feb 20, 2018 11:27 pm

Hi there.

I think Acupuncture is great and I've been having it for maybe 3/4 sessions now. It hasn't totally eradicated my pain but it's certainly reduced it. I don't know if that is because it has ACTUALLY helped or it's just my brain telling me it's helping. Either way, I am seeing a difference and I keep going back because it just makes me feel more positive, like something is moving forward in this.

Please feel free to message me about any info on Acupuncture x

infinitelywondering

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Re: Acupuncture advice please

Post  ryn207 on Thu Feb 22, 2018 2:25 am

I typically had them in my legs, feet, stomach, vulva, and fingers. I don't know how much relief I got from acupuncture itself. I know that pelvic floor PT helped me for sure. After the needles I definitely felt more relaxed, but I can't say if it really helped long term.

ryn207

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Re: Acupuncture advice please

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