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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Anyone have pain with urination?

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Anyone have pain with urination?

Post  mertzwl on Tue Oct 16, 2018 2:35 pm

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain when you pee? I feel burning/razor blades/fire every time I pee and especially if I've had a few drinks. I've had what I call flare ups before that seem come out of the blue but are more likely if I've had a few drinks. Either the pain goes away after several seconds or it escalates and I want to die. I've done antibiotics, been scoped, and had blood and urine test and haven't gotten an answer.

I don't have issues with sex or tampons. I got an ablation last year so I don't have to worry about that any more.

I'm so thankful I found this "bread crumb!" I can't get in to see the Dr until Dec so I'm going to just use my lidocaine until then.

Thank you for any feedback. Being new to this, I'm looking for support.

Thanks!!
WM

mertzwl

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Re: Anyone have pain with urination?

Post  emalita on Wed Oct 17, 2018 11:16 pm

Hi,

Does it feel like the pain with urination is coming from within your urethra or that the urine is causing burning when it comes into contact with your skin?

emalita

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pain with urination

Post  mertzwl on Thu Oct 18, 2018 1:11 am

Well, I'm not sure. It's really painful at the point when urine leaves the urethra. I don't think it's within the urethra, it's more the opening. And if urine comes into contact with the skin around the urethra, it's not a problem.

How about you? Is this a problem for you too?

mertzwl

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Re: Anyone have pain with urination?

Post  emalita on Thu Oct 18, 2018 1:16 am

Yes, sadly this has been a symptom of mine off and on the last year or so. I've found varying causes (lubricant irritation, urinating when I don't really have to, food irritants, etc.).

I can deal with a lot of pain types, but urethral symptoms make me want to give up on life. Sad

emalita

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Re: Anyone have pain with urination?

Post  mertzwl on Thu Oct 18, 2018 1:52 am

Ugh, me too. I wouldn't wish it on my worst enemy. I've had exacerbated episodes that don't go away that are like a blow torch on my "business". I end up suffering until I can take a hydrocodone. Then I'm useless.

I see an escalation with coffee and alcohol. I feel like the only thing I can drink is water (boring)!

And I also feel like it's worse when I go to the bathroom when I don't have to pee really bad. So weird.

Have you been treated? What are you doing for it?

mertzwl

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Re: Anyone have pain with urination?

Post  emalita on Thu Oct 18, 2018 1:56 am

Well, the first thing I did was identify my food irritants by doing a massive elimination diet (removing supplements like B6 and vitamin C too), and then I took aloe vera supplements to encourage healing in my bladder. I think I have the food irritations under control, but then there are other things causing me pain...I just have to figure put the causes one at a time.

Have you tried an elimination diet?

emalita

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Re: Anyone have pain with urination?

Post  Gaby on Thu Oct 18, 2018 9:55 am

Hi WM,

Next to my VV i also have urination problems. I also have a weird pain after peeing that goes away a few minutes later. I feel like a sharp needle being pulled in my urethra and the feeling of keep on peeing, it is AWFUL!! Fortunately i have found a doctor who is treating me with gabapantine creme 2 times per day.
I also to take cranberry tablets to avoid cystitis, ( i noticed that after my last one this pain started next to my vv).

My advise is to find the right doctor for this kind of issues, here i leave you a link http://www.cvvd.org/.
You can find some tips and help there.

Good luck!

Gaby.

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Re: Anyone have pain with urination?

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