Log in

I forgot my password

Latest topics
Looking for a friend..... and new problems

Sat Jan 06, 2018 5:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Wed Jan 03, 2018 7:15 pm by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Fri Jan 12, 2018 6:10 pm by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 9:46 am by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Tue Dec 05, 2017 8:50 pm by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 3:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 2:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 2:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 8:47 am by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member from US

View previous topic View next topic Go down

New member from US

Post  coralburn on Thu Mar 17, 2011 8:28 pm

Hey everyone! I'm new here. I'm 21 and I've had vulvodynia for my entire life, but I was just diagnosed a few months ago (despite suffering through numerous gynecological exams from doctors who seemed more annoyed with my pain than anything, but that's a subject for another post). I've been treating it with lidocaine gel and with NSAIDS. Neither method works very well, but they definitely help, and I'm optimistic that I'll find a solution in the future.

I have fairly bad vulvodynia pain, though. Vaginal penetration is completely unthinkable for me right now, and being touched sexually is usually hard for me to handle (even on days where I use lidocaine and take NSAIDS and tylenol). I've never had a full pelvic exam because of my pain, and I've had to be sedated for minor procedures such as lynching cysts. The only thing that ever completely helped my pain was taking hydrocodone at the ER, but obviously that's not a good long-term solution... I also have chronic joint pain and chronic migraines, so I'm really sick of being in pain at this point.

Before I was diagnosed, I didn't even know that vulvodynia existed, so I'm pretty pumped that this forum is active! Very Happy

PS: I'm starting a blog about having a healthy sexuality for people who can't have intercourse and people with vulvodynia. It's pretty new, but feel free to check it out: http://sexwithoutpiv.blogspot.com/ (NSFW)

coralburn

Posts : 5
Join date : 2011-03-17
Location : USA

View user profile http://sexwithoutpiv.blogspot.com

Back to top Go down

Re: New member from US

Post  Mouse on Thu Mar 17, 2011 8:52 pm

Hi Coral,

Welcome! What a great blog. I never knew what PIV was!

I posted an article on here a few weeks back about outercourse, it's a much better way for girls anyway.

What are doing to heal your V? The usual stuff we talk about it is PT, meds (if you can tolerate them), therapy - that's a must, this is crazy stuff to deal with every day, good support, staying social (very tricky when you feel like cak), being kind to yourself, diet, exercise, getting your head in the right place and all the good stuff in life.

Good luck with the blog. We are on FB also, it's private and doesn't post to your wall. email Sebby if you want to come over.

Take care
Vicki

Mouse

Posts : 303
Join date : 2010-09-08
Location : New Zealand

View user profile

Back to top Go down

Re: New member from US

Post  coralburn on Thu Mar 17, 2011 9:06 pm

Vicki,

Thanks! The nurse practitioner I'm seeing for my vulvodynia wants me to get physical therapy eventually, but doesn't think I'm ready yet, so I'm just starting off on meds. I also made an appointment to get sex therapy, which should be interesting... I think I probably need normal therapy too with everything going on in my life, though. And I hadn't even thought about how staying social, exercising, etc could be important in healing. Thanks for the advice!

Coral

coralburn

Posts : 5
Join date : 2011-03-17
Location : USA

View user profile http://sexwithoutpiv.blogspot.com

Back to top Go down

Re: New member from US

Post  Mouse on Thu Mar 17, 2011 9:27 pm

Hey Coral!

Nice to meet you.

Now my therapist is a sex therapist. My initial gyny had no idea what vulvodynia was (imagine that!!!) so said (via her receptionist) use evening primrose oil and find a sex therapist ggrrr I still scowl in her direction every time I drive past. She was a stupid bitch! But I was desperate so sent off an angry email to the sex therapist who writes for the Sunday paper and the rest is history. She is amazing and I don't think I need any other type of therapy as well. She is a psychologist who specialises in sexual problems. You couldn't get a bigger sex problem than this one. Well actually you could but this is our show Smile

They are fairly keen on creating a sex positive world. Well that never occurred to me till this came along. It's a whole new world!

I think our challenge is to heal the whole body. I'm more inclined to look at everything I put in my body or do to it than look for another pill or potion now. It fascinates me that people on the celiac forum I'm also on whine about how they can't heal but still eat processed foods that are not completely GF in most of the world. They are in NZ but they are also full of fat and sugar. I mean if you are reading the bloody label to check for gluten check out the fat content at the same time. I was the biggest sugar addict six months ago but have realised I need to heal so it's worth the effort. Sugar is acidic and I want to stop the burn.

Do you feel like you are ready for PT? I think you also need to take control of your own path. You will end up knowing more than most of the experts eventually. When you live this you have a different perspective. There is no set formula and everyone responds differently. It's difficult to find two people with the same symptoms but we all have little pearls of wisdom. Yes I am 95 Smile

V.


Mouse

Posts : 303
Join date : 2010-09-08
Location : New Zealand

View user profile

Back to top Go down

Re: New member from US

Post  Sebby (Admin) on Sat Mar 19, 2011 3:51 pm


Welcome Coral to the forum.

Firstly I have to say I'm really impressed with your blog and have it on my favorites Smile

I have had some form of V since I was a teenager. I have had relationships and intercourse but it was always painful and I just thought it was anxiety. It was only when I devolped constant pain and sex became something I couldnt bear to think about that I made the link.

I am currently doing biofeedback home training as prescribed by Dr Glazer author of 'The Vulvodynia Survival Guide' and part of my treatment is to start masterbating again! so i've ordered another vibrator as my one made my clit sore lol I have to calm it down a bit I think. I was only doing it 3 times a week like prescribed!

Part of my prescription is also to start dating again. This one I have not taken up just yet as I am very scared. I keep thinking Im a women who at the moment cant have intercourse plus I have anxiety and panic attacks. Who would want me! Mum says I just focus on the negative parts and that is not all who I am. I have to agree with her but it is so hard to think positive sometimes.

So keep blogging and I'll keep reading Smile


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: New member from US

Post  noni on Sat Mar 19, 2011 10:30 pm

Hey Coral!

Youve come to the right place!!! I really have Sebby and the other ladies to thank for saving my sanity!!!

A little bit about me: Im 23, am on Elavil (Amitriptyline) 30mg (have worked my way up), will soon try dilators, and I am really looking into Physical Therapy for the pelvic floor muscles, a radical diet change (limit sugar, salt, caffeine, no alcohol/cigarettes)

Coral, there are so many ups and downs with this. But by far the best source for support and advice is right on this forum!!!

My specialist appointment at the Vulva Clinic is at the end of this month. Im sooo anxious its killing me!! Eeek.

Smile Anyways....take care Smile

noni



avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: New member from US

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum