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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

New member- Elyssa Morse

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New member- Elyssa Morse

Post  Guest on Tue Aug 30, 2011 1:24 am

So I'm sixteen and I haven't been officially diagnosed with vulvodynia, but my doctor believes that I have it. I lost my virginity back in April, and obviously it was painful. But, no matter how many times we had sex, it was painful and the burning actually get so bad that we would have to stop. I started to realize it wasn't normal, so I researched it and found an article about vulvodynia. All the symptoms matched up with what I was experiencing, so the next time I went to my doctor's, I told her that I believe I have vulvodynia. She examined my vulva/vagina and did a pain test. After the examination, she believed that my self-diagnosis was correct and she referred me to a gynecologist for treatment. Unfortunately, I don't have time to go to the gynecologist because I leave in a few days to spend 10 months in Germany (I won a scholarship to study there). I'm really frustrated because I wanted to be able to enjoy sex, if I had it, in Germany. Then, I found this water-based organic lubricant that said it could get rid of the pain from vulvodynia during sexual intercourse. I tried it and, sadly, it didn't make a difference. Then, I researched the causes of vulvodynia and one of the possible causes is hormone levels changing. I started on a birth control pill in February and I'm pretty sure I never had a burning sensation when sitting down for extended periods of time before I went on the pill. So, I think the cause of my vulvodynia may be the birth control pill (Ocella). I've decided that I want to go off of it to see if the vulvodynia goes away (even though I'll start to have heavier and longer periods again Sad ). I really hope it works. When I get back from Germany, I'm going to try different birth control pills if the cause of my vulvodynia was my current birth control pill. Anyways, I joined this forum to hear people's opinions, rant, and seek support.
Responses are appreciated Smile


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Re: New member- Elyssa Morse

Post  Sarah001 on Tue Aug 30, 2011 7:43 pm

Hi and welcome, have a good browse through the sections and see what you can find that will hopefully help you. There's not much else I can say really except hi.

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The Pill

Post  Aussie on Tue Sep 06, 2011 1:37 am

Please please please get off and stay off any hormonal birth control. Google Dr Goldstein and you will see his research about the pill causing vulva pain. The theory is that it perminantly alters your testosterone and oestrogen levels and something to do with sex hormone binding globin. Goldstein thinks that anyone with vulva pain should come off the pill and get a baseline hormone test. From speeking with a parmacy the best way to do this is via saliva testing because it test for only free hormones (which are the ones effected)

For me, even if there is any chance what so ever of somehting I am putting in my body causing vulva pain, I am going to avoid it at all costs.

There is research suggesting that if you start the pill in your teens you are 900x more likely to develop v. And the fact that you started the pill in Febuary and then got pain in April strongly suggests a conneciton.

My pain with sex has improved to the point it rarely hurts as long as I am properly turned on and lubricated. Daily pain remains unchanged. I have been off the pill for 2 months now. No period yet. But sex pain is heaps heaps better! (I have had pain with sex and daily pain for 1 year)

If nothing else just get off the pill.



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Re: New member- Elyssa Morse

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