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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New member- Elyssa Morse

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New member- Elyssa Morse

Post  Guest on Tue Aug 30, 2011 1:24 am

Hiii,
So I'm sixteen and I haven't been officially diagnosed with vulvodynia, but my doctor believes that I have it. I lost my virginity back in April, and obviously it was painful. But, no matter how many times we had sex, it was painful and the burning actually get so bad that we would have to stop. I started to realize it wasn't normal, so I researched it and found an article about vulvodynia. All the symptoms matched up with what I was experiencing, so the next time I went to my doctor's, I told her that I believe I have vulvodynia. She examined my vulva/vagina and did a pain test. After the examination, she believed that my self-diagnosis was correct and she referred me to a gynecologist for treatment. Unfortunately, I don't have time to go to the gynecologist because I leave in a few days to spend 10 months in Germany (I won a scholarship to study there). I'm really frustrated because I wanted to be able to enjoy sex, if I had it, in Germany. Then, I found this water-based organic lubricant that said it could get rid of the pain from vulvodynia during sexual intercourse. I tried it and, sadly, it didn't make a difference. Then, I researched the causes of vulvodynia and one of the possible causes is hormone levels changing. I started on a birth control pill in February and I'm pretty sure I never had a burning sensation when sitting down for extended periods of time before I went on the pill. So, I think the cause of my vulvodynia may be the birth control pill (Ocella). I've decided that I want to go off of it to see if the vulvodynia goes away (even though I'll start to have heavier and longer periods again Sad ). I really hope it works. When I get back from Germany, I'm going to try different birth control pills if the cause of my vulvodynia was my current birth control pill. Anyways, I joined this forum to hear people's opinions, rant, and seek support.
Responses are appreciated Smile

Guest
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Re: New member- Elyssa Morse

Post  Sarah001 on Tue Aug 30, 2011 7:43 pm

Hi and welcome, have a good browse through the sections and see what you can find that will hopefully help you. There's not much else I can say really except hi.
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Sarah001

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The Pill

Post  Aussie on Tue Sep 06, 2011 1:37 am

Please please please get off and stay off any hormonal birth control. Google Dr Goldstein and you will see his research about the pill causing vulva pain. The theory is that it perminantly alters your testosterone and oestrogen levels and something to do with sex hormone binding globin. Goldstein thinks that anyone with vulva pain should come off the pill and get a baseline hormone test. From speeking with a parmacy the best way to do this is via saliva testing because it test for only free hormones (which are the ones effected)

For me, even if there is any chance what so ever of somehting I am putting in my body causing vulva pain, I am going to avoid it at all costs.

There is research suggesting that if you start the pill in your teens you are 900x more likely to develop v. And the fact that you started the pill in Febuary and then got pain in April strongly suggests a conneciton.

My pain with sex has improved to the point it rarely hurts as long as I am properly turned on and lubricated. Daily pain remains unchanged. I have been off the pill for 2 months now. No period yet. But sex pain is heaps heaps better! (I have had pain with sex and daily pain for 1 year)

If nothing else just get off the pill.

Claire

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Re: New member- Elyssa Morse

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