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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
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» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


pain after sex?

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pain after sex?

Post  rayster on Thu Dec 08, 2011 10:23 am

Helluuoo

I'm 21 years old, have had a shitty vagina since I was about 17 (3 months after having sex for the first time). In September of this year (after seeking help cause my pain was getting annoyingly worse) a gynecologist decided to try the laser treatment. I stupidly agreed, and have been in way worse pain ever since. I went back to see him at an earlier follow up appointment cause I was still in so much pain, but it was terrible. This guy had already decided what he was going to say to me before I walked in the door. He told me that my increased pain was due to my increased anxiety (mm..) and I should see a psychosexual counselor. Now, I'm not at all adverse to things like that and I think that psychosexual counseling definitely has a place in treatment... but... not for me I don't think, and I'll explain why in a sec.

Basically what's been happening is now whenever I try to have sex, first my skin tears (I'm assuming this, cause there's always blood, in varying amounts afterwards) (smear tests are up to date and fine, and i'm pretty sure the blood is coming from the vulval skin) and I have a new symptom that I've never really dealt with before: I can have sex (with the assistance of lidocaine) and it's all fine and dandy (sore, but I want to, so I do) and until about 10-15 minutes after wards where I am crippled, completely with pain to such a degree I've never felt. I can't move, I can't think, I feel nauseous, the pain throbs and I can feel my pulse down there (like when you burn your finger or something, and it pulses with pain) and for a couple days I cringe every time I sit down, until it goes back to normal.THis is not normal for me. Usually I end up with burning sensation that is very uncomfortable and sore, but I've always been able to cope. Not now.

When I told this gynaecologist that I think its to do with the laser he said 'there's no way the laser would have anything to do with it, it would have all healed by now so its due to your anxiety'
...some how I don't think so. I've done a pretty good job of dealing with my anxiety surrounding this stupid condition and although it knocked me off my confidence for a while when I was first diagnosed, I since became comfortable in my own skin again and felt sexy and whatnot. I've been in two lovely relationships since I was diagnosed (still in the second one) and sex,although infrequent as it has been, hasn't presented a huge a problem for me - which is why I'm not so sure if my problem is 'psychosexual'.

my hope is that with lots of patience and more time (cause it was only in September) this extreme pain after wards will go away... does anybody else get this?


sorry bout my rant. Am in a bad mood and don't know what to do next.


I'm not really a huge fan of wanting to try things like ami or gabapentin cause I had a horrible time on pregabalin. (and it didn't make a difference anyway)
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rayster

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Re: pain after sex?

Post  Sarah001 on Thu Dec 08, 2011 11:58 am

I can't speak from experience because I've never got to the stage where sex is possible but I think if you're experiencing tears now it might be an idea to leave it for a while and let the skin settle down a bit before you try again, pain like that after sex isn't going to help you at all. There are bits of information online about how the laser treatment can make things worse, I think there's some on Dr Glazer's site so it does sound like it was that that caused this new problem. Give it a bit longer and see what happens is my advice, if it doesn't help change doctors if that one isn't being helpful.
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Sarah001

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