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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


pain after sex?

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pain after sex?

Post  rayster on Thu Dec 08, 2011 10:23 am

Helluuoo

I'm 21 years old, have had a shitty vagina since I was about 17 (3 months after having sex for the first time). In September of this year (after seeking help cause my pain was getting annoyingly worse) a gynecologist decided to try the laser treatment. I stupidly agreed, and have been in way worse pain ever since. I went back to see him at an earlier follow up appointment cause I was still in so much pain, but it was terrible. This guy had already decided what he was going to say to me before I walked in the door. He told me that my increased pain was due to my increased anxiety (mm..) and I should see a psychosexual counselor. Now, I'm not at all adverse to things like that and I think that psychosexual counseling definitely has a place in treatment... but... not for me I don't think, and I'll explain why in a sec.

Basically what's been happening is now whenever I try to have sex, first my skin tears (I'm assuming this, cause there's always blood, in varying amounts afterwards) (smear tests are up to date and fine, and i'm pretty sure the blood is coming from the vulval skin) and I have a new symptom that I've never really dealt with before: I can have sex (with the assistance of lidocaine) and it's all fine and dandy (sore, but I want to, so I do) and until about 10-15 minutes after wards where I am crippled, completely with pain to such a degree I've never felt. I can't move, I can't think, I feel nauseous, the pain throbs and I can feel my pulse down there (like when you burn your finger or something, and it pulses with pain) and for a couple days I cringe every time I sit down, until it goes back to normal.THis is not normal for me. Usually I end up with burning sensation that is very uncomfortable and sore, but I've always been able to cope. Not now.

When I told this gynaecologist that I think its to do with the laser he said 'there's no way the laser would have anything to do with it, it would have all healed by now so its due to your anxiety'
...some how I don't think so. I've done a pretty good job of dealing with my anxiety surrounding this stupid condition and although it knocked me off my confidence for a while when I was first diagnosed, I since became comfortable in my own skin again and felt sexy and whatnot. I've been in two lovely relationships since I was diagnosed (still in the second one) and sex,although infrequent as it has been, hasn't presented a huge a problem for me - which is why I'm not so sure if my problem is 'psychosexual'.

my hope is that with lots of patience and more time (cause it was only in September) this extreme pain after wards will go away... does anybody else get this?


sorry bout my rant. Am in a bad mood and don't know what to do next.


I'm not really a huge fan of wanting to try things like ami or gabapentin cause I had a horrible time on pregabalin. (and it didn't make a difference anyway)
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rayster

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Re: pain after sex?

Post  Sarah001 on Thu Dec 08, 2011 11:58 am

I can't speak from experience because I've never got to the stage where sex is possible but I think if you're experiencing tears now it might be an idea to leave it for a while and let the skin settle down a bit before you try again, pain like that after sex isn't going to help you at all. There are bits of information online about how the laser treatment can make things worse, I think there's some on Dr Glazer's site so it does sound like it was that that caused this new problem. Give it a bit longer and see what happens is my advice, if it doesn't help change doctors if that one isn't being helpful.
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Sarah001

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