Disappointed burning when I went for a long walk

I have been doing really well I managed to get the pain under control and felt I was getting somewhere, untill today went for a long walk with my dogs and I could feel the burning. My vulvodynia is constant so for me to have no pain it was like winning the jackpot. So I have to sort the walking out I have not had any physio it was never mentioned, I see my consultant in 2 weeks and I am going to ask him to send me. Can the Consultant refuse Physio? I am thinking about hospital budgets.

Its only when I go walking I get the burning so I feel I should get my pelvis checked out.


Does anyone else have problems walking? Underwear makes no difference, infact its worse without any on.


Ria

I sometimes get more pain after a long walk, especially if I do hill walking (which I love). My physio advised me not to give up walking, but to make sure I do my relaxation exercises as soon as I get back. This can include a warm bath or gentle stretching, relaxation and breathing exercises. I think the problem is that I tend to tighten my pelvic muscles when I go walking, especially up-hill walking. Worth a try, maybe. I do think that physio can be helpful for pelvic pain.

Hey ladies,

Too much of anything kinda sets my V.

I have constant generalized pain, too. And walking or standing both make it worse, as does sitting and lying on either side. So it's flat on my back most of the time. It took me a while to figure out that standing or walking made the pain worse. Sitting was obviously painful, but it turns out that being on my feet is bad, too. So I usually limit standing/walking to 20 minutes or less.

Just last week, I discovered that exerting myself with heaving pushing and pulling (e.g. mowing the lawn) causes a huge flair. I was having a better day, and I thought I could mow our postage-size lawn in about 5 minutes, so it would be okay. But I had a huge flair up. I didn't realize how much I use my core and pelvic floor muscles when lifting, pushing or pulling something heavy - how dumb am I?! It's so difficult to manage this condition when we really don't have proper medical advice and treatment.

I think that pain that is exacerbated by position or movement must be related to muscles and ligaments, etc. I hope you get to see a good physio. I think I am beyond physio right now, and am going to try and get in with a vulvar pain specialist for some botox or trigger point injections first. I think there is also great variability in the skill and techniques used by all these practitioners, as well as a pain condition that has multiple causes, so each person's outcome is unique. One physio may make you worse, but another one may "cure" you. How much botox and where to inject? It's all still experimental. It is really tough to know what to do next....