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» 7 months since the diagnosis
Pain After Vestibulectomy  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain After Vestibulectomy  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain After Vestibulectomy  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain After Vestibulectomy  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain After Vestibulectomy  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Pain After Vestibulectomy  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Pain After Vestibulectomy  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Pain After Vestibulectomy  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Pain After Vestibulectomy  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain After Vestibulectomy

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Pain After Vestibulectomy  Empty Pain After Vestibulectomy

Post  Mll2013 on Fri Jun 10, 2016 11:01 pm

Hi all again, I was writing in regards to pain after my vestibulectomy. I am on day 7 of recovery, the first few days went surprisingly well but it seems to be getting worse each day for me now. I have an intense burning or searing pain that will not go away. I have tried to contact the doctor's office but they are not getting back to me. I do not feel like I have a fever, and Ice used to help a lot! Now ice does not help at all and it actually hurts..... I have been trying to do sitz baths but it hurts sitting up, and I have been trying to stay on top of my pain medication. I just wanted to know if anyone else had similar problems and had this burning pain? It is miserable! I am afraid I might have torn something when trying to go the bathroom, maybe an infection, maybe frostbite from using too much cold down there? Any help would be advised, I I'm struggling emotionally right now and it would be nice to talk to someone who can relate to what I'm going through.

As for other relief my mom bought me some witch-hazel, but that ended up just burning more. I have heard Vaseline can help the area and one of my friends suggested dermoplast which she used after giving birth. I didn't know if anyone else tried those things and had any relief? Seriously any input would be extremely helpful right now. Thank you in advance

Mll2013

Posts : 5
Join date : 2016-05-13

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Pain After Vestibulectomy  Empty Re: Pain After Vestibulectomy

Post  emalita on Sat Jun 11, 2016 1:16 pm

I'm so sorry you're in such pain. I've never had the surgery; so I can't provide any support from experience (sorry).

Did your doctor prescribe antibiotics or anything to prevent infection? Has your doctor gotten back to you yet? I can't imagine how much it hurts, but if you tore something or your skin is tight, sitting in a warm bath would probably do wonders to loosen things up and would hopefully provide some relief.

I would be a little hesitant to put anything on the area unless a doctor said it was okay, but I would imagine that if a product is used for women post delivery, then it hopefully would be okay for you post surgery.

I'm happy to listen and provide support any way I can. Feel free to PM me if you want to chat.

I hope your pain reduces soon!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  jjr23 on Tue Aug 23, 2016 5:48 am

Hi Mll2013, I had surgery 8 days ago (so at a similar stage that you were at when you made that post) and I am currently feeling the same pain as you have described. I saw my surgeon yesterday for a one week check up and he said that the pain is normal. He said everything looked like it was healing normally. I'm an anxious person and I tend to worry about stuff even after reassurance! I'm wondering how everything is going for you now that it's been a few weeks since you posted that??

jjr23

Posts : 13
Join date : 2016-08-23
Location : Australia

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Pain After Vestibulectomy  Empty Re: Pain After Vestibulectomy

Post  Alana3 on Fri Aug 26, 2016 2:04 pm

I had that too during my recovery and it ended up being yeast and UTI. I am 4 years post op and am feeling great and able to have sex. Try getting in to your doctor and seeing if you have some crazy infection going on...

Alana3

Posts : 1093
Join date : 2012-09-25

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Pain After Vestibulectomy  Empty Re: Pain After Vestibulectomy

Post  Mitch on Wed Jan 11, 2017 8:39 pm

Hi Alana, I am new to the group and just posted about my wife scheduled to meet with Dr Trabin to get a second opinion. We discovered his info from this forum and your journey. We live in Florida and would love to connect to discuss with you since she is considering her options and the best course of action. She is scheduled for a vestibulectomy with another doctor on Feb 1st.
l. Glad you are doing so well!

Mitch

Posts : 2
Join date : 2017-01-11

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