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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

cold laser therapy??

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cold laser therapy??

Post  Melissa777 on Fri Aug 19, 2011 9:55 pm

anyone try cold laser light therapy? im just starting it now


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cold laser therapy

Post  ria on Sat Aug 20, 2011 9:50 pm

Hi Melissa,

What is cold laser therapy? Dont you just love the way we all help each other on this forum. I am up for ANYTHING so bring it on.......What kind of V do you have provoked/unprovoked?

Take care xxx Ria Smile


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hi again

Post  Melissa777 on Sat Aug 20, 2011 11:44 pm

well- cold laser therapy is a red light therapy, you can research it on the web. usually only dermatologists or chiropractors have it. you can purchase them as well, but they are super expensive.
I read on another msg board a lady here in the us was having good experience with it... and her inflammation/ redness was increasing.

you know my V is odd.... one doctor dx me with provoked, and another dx me with unprovoked.

one said i didnt even have it, but it was dermatitis...
so who knows
all i know is sometimes im irritated down there, and sometimes im not
and sometimes if i look i see red areas... and sometimes it looks better

so im pretty much trying things to just simply get it to feel better..and today seems to be a better day
second day of cold laser so far so good.

ive had literally over 10 cultures for everything- all negative

anyhow whatever works will work

what im currently doing
anti candida diet (low/no carbs or yeast)- just in case this is yeast related- although unproven
(Ive tried a month of diflucan and it made no difference)
phellostatin from acupuncturist to remove damp heat (dont use unless you have a diagnosis of damp heat)
renew life vaginal support pro biotic
fem dophilus
coconut oil 1 tbs per day
multi mineral supplement from my MD
vitamin D 3 2000 mg
Cod Liver Oil
NO TUNA or fish that can contain heavy metals
lots of fresh veggies (except yes i eat corn, my acupuncturist said its great for skin)
some fruits- only strawberry's, watermelon, peaches, grapes but no more than 1/2 or 1/4 cup per day
yogurt with low sugar content
and sun chlorella (green supplement)

as well as now cold laser therapy once a week after this week, acupuncture once a week, and NAET (natural allergy technique)

I also see blue light therapy may work... it works on acne and people whom get inflammation that way, but who knows....
I do have estrogen vaginal cream 0.05% in a non allergenic base i use off and on- sometimes i find it helps, sometimes not
i tried emu oil- did not work for me
tried coconut oil topically- made it worse

all of this dang inflammation for me begin after one yeast infection back in sept of 2010. i only used one yeast cream and diflucan back then, it went away- still had itching off and on, so my former GYN had me use boric acid suppositories for a month- all that did was cause major inflammation and dermatitis
which im def better now- way better now than i was a few months ago, but... i think the boric acid is what made my issue worse especially using cortisone ointment at the same time....
now im trying to be simple and not really use anything down there other than the estro cream once in a while
unless some miracle comes up- like the neogyn cream- who knows??


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Re: cold laser therapy??

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