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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


cold laser therapy??

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cold laser therapy??

Post  Melissa777 on Fri Aug 19, 2011 9:55 pm

anyone try cold laser light therapy? im just starting it now

Melissa777

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cold laser therapy

Post  ria on Sat Aug 20, 2011 9:50 pm

Hi Melissa,

What is cold laser therapy? Dont you just love the way we all help each other on this forum. I am up for ANYTHING so bring it on.......What kind of V do you have provoked/unprovoked?


Take care xxx Ria Smile

ria

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hi again

Post  Melissa777 on Sat Aug 20, 2011 11:44 pm

well- cold laser therapy is a red light therapy, you can research it on the web. usually only dermatologists or chiropractors have it. you can purchase them as well, but they are super expensive.
I read on another msg board a lady here in the us was having good experience with it... and her inflammation/ redness was increasing.

you know my V is odd.... one doctor dx me with provoked, and another dx me with unprovoked.

one said i didnt even have it, but it was dermatitis...
so who knows
all i know is sometimes im irritated down there, and sometimes im not
and sometimes if i look i see red areas... and sometimes it looks better

so im pretty much trying things to just simply get it to feel better..and today seems to be a better day
second day of cold laser so far so good.

ive had literally over 10 cultures for everything- all negative

anyhow whatever works will work

what im currently doing
anti candida diet (low/no carbs or yeast)- just in case this is yeast related- although unproven
(Ive tried a month of diflucan and it made no difference)
phellostatin from acupuncturist to remove damp heat (dont use unless you have a diagnosis of damp heat)
renew life vaginal support pro biotic
fem dophilus
coconut oil 1 tbs per day
agrisept
multi mineral supplement from my MD
vitamin D 3 2000 mg
Cod Liver Oil
NO TUNA or fish that can contain heavy metals
lots of fresh veggies (except yes i eat corn, my acupuncturist said its great for skin)
some fruits- only strawberry's, watermelon, peaches, grapes but no more than 1/2 or 1/4 cup per day
yogurt with low sugar content
and sun chlorella (green supplement)

as well as now cold laser therapy once a week after this week, acupuncture once a week, and NAET (natural allergy technique)

I also see blue light therapy may work... it works on acne and people whom get inflammation that way, but who knows....
I do have estrogen vaginal cream 0.05% in a non allergenic base i use off and on- sometimes i find it helps, sometimes not
i tried emu oil- did not work for me
tried coconut oil topically- made it worse

all of this dang inflammation for me begin after one yeast infection back in sept of 2010. i only used one yeast cream and diflucan back then, it went away- still had itching off and on, so my former GYN had me use boric acid suppositories for a month- all that did was cause major inflammation and dermatitis
which im def better now- way better now than i was a few months ago, but... i think the boric acid is what made my issue worse especially using cortisone ointment at the same time....
now im trying to be simple and not really use anything down there other than the estro cream once in a while
unless some miracle comes up- like the neogyn cream- who knows??




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Re: cold laser therapy??

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