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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

cold laser therapy??

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cold laser therapy??

Post  Melissa777 on Fri Aug 19, 2011 9:55 pm

anyone try cold laser light therapy? im just starting it now


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cold laser therapy

Post  ria on Sat Aug 20, 2011 9:50 pm

Hi Melissa,

What is cold laser therapy? Dont you just love the way we all help each other on this forum. I am up for ANYTHING so bring it on.......What kind of V do you have provoked/unprovoked?

Take care xxx Ria Smile


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hi again

Post  Melissa777 on Sat Aug 20, 2011 11:44 pm

well- cold laser therapy is a red light therapy, you can research it on the web. usually only dermatologists or chiropractors have it. you can purchase them as well, but they are super expensive.
I read on another msg board a lady here in the us was having good experience with it... and her inflammation/ redness was increasing.

you know my V is odd.... one doctor dx me with provoked, and another dx me with unprovoked.

one said i didnt even have it, but it was dermatitis...
so who knows
all i know is sometimes im irritated down there, and sometimes im not
and sometimes if i look i see red areas... and sometimes it looks better

so im pretty much trying things to just simply get it to feel better..and today seems to be a better day
second day of cold laser so far so good.

ive had literally over 10 cultures for everything- all negative

anyhow whatever works will work

what im currently doing
anti candida diet (low/no carbs or yeast)- just in case this is yeast related- although unproven
(Ive tried a month of diflucan and it made no difference)
phellostatin from acupuncturist to remove damp heat (dont use unless you have a diagnosis of damp heat)
renew life vaginal support pro biotic
fem dophilus
coconut oil 1 tbs per day
multi mineral supplement from my MD
vitamin D 3 2000 mg
Cod Liver Oil
NO TUNA or fish that can contain heavy metals
lots of fresh veggies (except yes i eat corn, my acupuncturist said its great for skin)
some fruits- only strawberry's, watermelon, peaches, grapes but no more than 1/2 or 1/4 cup per day
yogurt with low sugar content
and sun chlorella (green supplement)

as well as now cold laser therapy once a week after this week, acupuncture once a week, and NAET (natural allergy technique)

I also see blue light therapy may work... it works on acne and people whom get inflammation that way, but who knows....
I do have estrogen vaginal cream 0.05% in a non allergenic base i use off and on- sometimes i find it helps, sometimes not
i tried emu oil- did not work for me
tried coconut oil topically- made it worse

all of this dang inflammation for me begin after one yeast infection back in sept of 2010. i only used one yeast cream and diflucan back then, it went away- still had itching off and on, so my former GYN had me use boric acid suppositories for a month- all that did was cause major inflammation and dermatitis
which im def better now- way better now than i was a few months ago, but... i think the boric acid is what made my issue worse especially using cortisone ointment at the same time....
now im trying to be simple and not really use anything down there other than the estro cream once in a while
unless some miracle comes up- like the neogyn cream- who knows??


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Re: cold laser therapy??

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