Vulvodynia Support
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» Hope to all my suffering ladies
cold laser therapy?? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
cold laser therapy?? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
cold laser therapy?? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
cold laser therapy?? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
cold laser therapy?? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
cold laser therapy?? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
cold laser therapy?? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
cold laser therapy?? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
cold laser therapy?? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


cold laser therapy??

2 posters

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Post  Melissa777 Fri Aug 19, 2011 9:55 pm

anyone try cold laser light therapy? im just starting it now

Melissa777

Posts : 55
Join date : 2011-07-10

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Post  ria Sat Aug 20, 2011 9:50 pm

Hi Melissa,

What is cold laser therapy? Dont you just love the way we all help each other on this forum. I am up for ANYTHING so bring it on.......What kind of V do you have provoked/unprovoked?


Take care xxx Ria Smile

ria

Posts : 99
Join date : 2010-07-21

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cold laser therapy?? Empty hi again

Post  Melissa777 Sat Aug 20, 2011 11:44 pm

well- cold laser therapy is a red light therapy, you can research it on the web. usually only dermatologists or chiropractors have it. you can purchase them as well, but they are super expensive.
I read on another msg board a lady here in the us was having good experience with it... and her inflammation/ redness was increasing.

you know my V is odd.... one doctor dx me with provoked, and another dx me with unprovoked.

one said i didnt even have it, but it was dermatitis...
so who knows
all i know is sometimes im irritated down there, and sometimes im not
and sometimes if i look i see red areas... and sometimes it looks better

so im pretty much trying things to just simply get it to feel better..and today seems to be a better day
second day of cold laser so far so good.

ive had literally over 10 cultures for everything- all negative

anyhow whatever works will work

what im currently doing
anti candida diet (low/no carbs or yeast)- just in case this is yeast related- although unproven
(Ive tried a month of diflucan and it made no difference)
phellostatin from acupuncturist to remove damp heat (dont use unless you have a diagnosis of damp heat)
renew life vaginal support pro biotic
fem dophilus
coconut oil 1 tbs per day
agrisept
multi mineral supplement from my MD
vitamin D 3 2000 mg
Cod Liver Oil
NO TUNA or fish that can contain heavy metals
lots of fresh veggies (except yes i eat corn, my acupuncturist said its great for skin)
some fruits- only strawberry's, watermelon, peaches, grapes but no more than 1/2 or 1/4 cup per day
yogurt with low sugar content
and sun chlorella (green supplement)

as well as now cold laser therapy once a week after this week, acupuncture once a week, and NAET (natural allergy technique)

I also see blue light therapy may work... it works on acne and people whom get inflammation that way, but who knows....
I do have estrogen vaginal cream 0.05% in a non allergenic base i use off and on- sometimes i find it helps, sometimes not
i tried emu oil- did not work for me
tried coconut oil topically- made it worse

all of this dang inflammation for me begin after one yeast infection back in sept of 2010. i only used one yeast cream and diflucan back then, it went away- still had itching off and on, so my former GYN had me use boric acid suppositories for a month- all that did was cause major inflammation and dermatitis
which im def better now- way better now than i was a few months ago, but... i think the boric acid is what made my issue worse especially using cortisone ointment at the same time....
now im trying to be simple and not really use anything down there other than the estro cream once in a while
unless some miracle comes up- like the neogyn cream- who knows??




Melissa777

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Join date : 2011-07-10

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