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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


cold laser therapy??

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cold laser therapy??

Post  Melissa777 on Fri Aug 19, 2011 9:55 pm

anyone try cold laser light therapy? im just starting it now

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cold laser therapy

Post  ria on Sat Aug 20, 2011 9:50 pm

Hi Melissa,

What is cold laser therapy? Dont you just love the way we all help each other on this forum. I am up for ANYTHING so bring it on.......What kind of V do you have provoked/unprovoked?


Take care xxx Ria Smile

ria

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hi again

Post  Melissa777 on Sat Aug 20, 2011 11:44 pm

well- cold laser therapy is a red light therapy, you can research it on the web. usually only dermatologists or chiropractors have it. you can purchase them as well, but they are super expensive.
I read on another msg board a lady here in the us was having good experience with it... and her inflammation/ redness was increasing.

you know my V is odd.... one doctor dx me with provoked, and another dx me with unprovoked.

one said i didnt even have it, but it was dermatitis...
so who knows
all i know is sometimes im irritated down there, and sometimes im not
and sometimes if i look i see red areas... and sometimes it looks better

so im pretty much trying things to just simply get it to feel better..and today seems to be a better day
second day of cold laser so far so good.

ive had literally over 10 cultures for everything- all negative

anyhow whatever works will work

what im currently doing
anti candida diet (low/no carbs or yeast)- just in case this is yeast related- although unproven
(Ive tried a month of diflucan and it made no difference)
phellostatin from acupuncturist to remove damp heat (dont use unless you have a diagnosis of damp heat)
renew life vaginal support pro biotic
fem dophilus
coconut oil 1 tbs per day
agrisept
multi mineral supplement from my MD
vitamin D 3 2000 mg
Cod Liver Oil
NO TUNA or fish that can contain heavy metals
lots of fresh veggies (except yes i eat corn, my acupuncturist said its great for skin)
some fruits- only strawberry's, watermelon, peaches, grapes but no more than 1/2 or 1/4 cup per day
yogurt with low sugar content
and sun chlorella (green supplement)

as well as now cold laser therapy once a week after this week, acupuncture once a week, and NAET (natural allergy technique)

I also see blue light therapy may work... it works on acne and people whom get inflammation that way, but who knows....
I do have estrogen vaginal cream 0.05% in a non allergenic base i use off and on- sometimes i find it helps, sometimes not
i tried emu oil- did not work for me
tried coconut oil topically- made it worse

all of this dang inflammation for me begin after one yeast infection back in sept of 2010. i only used one yeast cream and diflucan back then, it went away- still had itching off and on, so my former GYN had me use boric acid suppositories for a month- all that did was cause major inflammation and dermatitis
which im def better now- way better now than i was a few months ago, but... i think the boric acid is what made my issue worse especially using cortisone ointment at the same time....
now im trying to be simple and not really use anything down there other than the estro cream once in a while
unless some miracle comes up- like the neogyn cream- who knows??




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Re: cold laser therapy??

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