Vulvodynia Support
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» Hope to all my suffering ladies
new member EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
new member EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
new member EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
new member EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
new member EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
new member EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
new member EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
new member EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
new member EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  sadone Mon Dec 12, 2011 4:12 pm

I just posted in one of the forums. I'm a new member, so I hope that's okay. I'd appreciate any responses. I'm really feeling pretty low. Sad

sadone

Posts : 53
Join date : 2011-12-12

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Post  ButterflyLiz Mon Dec 12, 2011 7:50 pm

Hi hun,

I read your post in the other thread & thought I’d reply here. I wanted to reply cos I really sympathise with you, honestly your post could have been from me 5 years ago. Big hugs to you.

There are no easy answers cos I know how crappy a situation this is. I know this is not at all what you want to hear but it does seem that you feeling low, desperate and like an object is a direct result of your boyfriend’s attitude towards you and your v problems. My ex said exactly with the same things & at the time I thought well I suppose that makes sense, that seems fair. But when you’re removed from the situation you realise that it’s really not. The sacrifice you are making is living your life with this horrible & unwanted problem. Nevermind adding to that your boyfriend pretty much forcing you into sexual activities that you don’t want to do. You don’t have to justify to anyone why you don’t want to do this or that activity. What he is doing is an out and out guilt trip.

Just think; what if he spontaneously developed erectile dysfunction or sexual pain? Would he put up with the same attitude & ultimatum from you that he is expecting you to accept from him now?

We are all worthwhile & loveable in our own right, v or no v. And painful as it might be in the short term to end things with him, could you put up with feeling this way for the rest of your life if you stayed with him?

I don’t say any of this lightly; I was with my ex for seven years and we were engaged too and owned a house together. But hand on heart, leaving was the best thing I ever did. I needed to be single for a while & get my head together & get my confidence back. And I did find someone who’s more understanding & doesn’t make me feel like crap over the v.

Keep your head held high, we’re all here for you.

Liz x
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

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Post  naomi Tue Dec 13, 2011 5:51 pm

hi there!

i cant find your post! its not highlighting new posts for some stupid reason.

im so sorry no one replied. I'll be honest I havent been on here much of late, i have been stressed out with the government cutting my benefits and having to appeal etc.

Do you want to join the facebook group (secret one so not open to public, none of ur friends would know)?

if so, message me on here and i will send you a link to my facebook and add me. Then i can add you to the group. they are all lush ladies on there and we do have a giggle. and a good winge too!

tend to touch base in the facebook group most days...as i admit...i love keeping in contact with my friends on there!

anyways, PM me if you want.
naomi
naomi
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Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  naomi Tue Dec 13, 2011 5:56 pm

just realised! did reply to ur post!! im loosing the plot! unless youve written another one?!

loooooooong day! (thats my excuse Smile

xxx
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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new member Empty Thank you, Liz

Post  sadone Wed Dec 14, 2011 7:40 pm

I really appreciate your response. It really echoes my feelings about all of this. At this point in the game, he has apologized profusely and has asked me to forgive him. He also really wants to work on things and go to a sex/couples therapist together. My therapist has asked me to refrain from anymore discussion of this until we see the therapist. Thanks for your good thoughts. I am praying that some kind of agreeable solution is reached.

Thanks again, Liz... Smile

sadone

Posts : 53
Join date : 2011-12-12

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new member Empty No problem!

Post  ButterflyLiz Sun Dec 18, 2011 10:29 am

No problem, honey! I'm glad to hear your b/f has apologised and wants to work on things. Best of luck to you. Just remember that despite the v, you still deserve to be happy x
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

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